Hi all
Wow 7 years, I don’t know how I manage sometimes, on a massive spike at the moment.
Why can’t I habituate why can’t I move on I get depressed I take it out on my beautiful partner, I’m sorry
No one else can see or hear my grief, I am all alone
Oh Gazzer ....you are not alone, there are loads of us out here who sympathise. It’s so hard to explain to someone else what it’s like, isn’t it.
Personally I get out into the fresh air when it’s not raining - and even when it is - and have a good tramp around the streets. It’s too muddy to walk in the woods. The birds have started to sing: listen to them! It’s going to snow: sounds outside will be dampened so you will be able to hear the birds even better.
We are with you and know what’s it like. You are not alone. I hope you get some relief soon. Stay strong.
Thanks for the reply’s so quick, lucky to have a garden so we have both been outside pottering round for the last couple of hours.It’s good to share my feeling, thanks for the encouragement and it does help I’m not alone
Your far from alone Gazzer , I’ve been in a bad state this afternoon. Got out in the fresh air , with two bouncy poodles to walk. I try to be cheerful but I’m convinced I’ve got more than tinnitus , I think I’ve got hyperacusis. condition as well , as everything is amplified . So look your not on your own . I hope this evening your feeling happier. From Penny
Hi PennySounds like we are going through the same, I suffer with hyperacusis as well, I’m sure many of us do, I do feel better today thankfully, I hope that you are in a much better place as well , you reply yesterday was very helpful, Gary
Hello Gary,Thank you for your reply.
Firstly I would also like to thank this forum for all the support on here and keeping us connected to others in the same boat. Gary let’s really hope that one day someone in the medical field will take a keen interest in this nightmare journey of tinnitus and hyperacusis . I live in hope that there might be a breakthrough one day. Like you I have my good moments. I tell myself that there is always someone worse off than myself out there. My salvation has to be walking out there in the fresh air whatever the weather is like (snow in Bexhill today) I wish you lots of luck and best foot forward. From Penny
Hi Gazzer . I'd like to echo everything everyone has said so far. You're not alone. This forum is amazing. So much good advice. So many kind people. I'd not met anyone with tinnitus until I signed up. It's such a relief to know there are other people who feel the same way. All the best.
I've had it for nearly forty years. I agree sometimes it's b tough, I regard it as the little devil who sits in my shoulder and no way is that B going to win. You are doing amazing ❣️ just keep going
Hi Gazzer. I do sympathise, I had this condition for 30 years, but over the last eight months it has come to a level which I never thought possible. And it is absolutely debilitating. I can truly understand the pain and suffering that you’re going through at this moment. I wish you well and please hang in there. Nick.
Your post stuck a chord with me Gazzer, you certainly are not alone in feeling as you are at the moment.
It’s a terrible condition that we have to deal with alone, no one else hears what we do and therefore are oblivious that we are suffering.
My only advice is to keep your chin up and try to focus on the positives in your life.
All the best my friend
Wow thanks everyone for the positive words, I always hoped that I would wake up one morning and ITS GONE peace at last, but I know it won’t and that I will have to deal with it.
It’s good to share my problems
Thanks again everyone
starveycat / NickReid . That's very long time .. What advice would you give to people - like me - in the early stages? Does tinnitus change over time? Does it get better or worse? I know you've said yours is now worse Nick. Has it shaped your life to the point where you've done or not done things you've wanted to do? Sorry. Lots of questions.
It’s certainly a painful path to tread,once you get up to the higher levels.And no matter how high people say It can get Ibelieve that it can always get louder. just be grateful for whatever you have in life and take one day at a time ,has it stop me from doing things,not really,because I Just allow it to scream a way ,I want two take it out on somebody and you can’t there’s no point you just got to accepted the situation.longer you hold onto the past the more it is going hurt. Having a light-hearted sense of humour helps a lot. You’re very lucky to get through this life scot-free.
You eventually learn to accept it. I cannot stand silence as then the brain concentrates in it.With tinnitus the brain hears a sound which triggers the fight/flight response, but there is no threat, but there is the sound and so the fight,/fight response. The brain becomes confused which can lead to depression etc. That is how it was explained to me.
Eventually you become acclimatised to it, but it isn't easy.
I do wish I could help you more but it's b awful. I wish you gentle hugs to help you in your journey with tinnitus
Starveycat, I’m going to slightly disagree with you on one point. I relish silence ... though I can hear the T. I cannot bear the loud noises in, for instance, clothes shops. The noise of traffic. Which just goes to show we are all different!!
Silence frightens me as I have mennieres disease and when my ears go quiet I know I'm going to have an attack
Wow starveycat I didn’t realise you had Ménière's. Commiserations.
You really are not alone, I have had it for 5 years and keep getting told to stop focusing on it and enjoy the things I enjoy, but how can you enjoy socialising and spending time with friends when your noise is so loud you have to spend your whole life concnetrating just to get by. Its not ok, its hard and its not helpful when people respond in a dismissive way.
You won’t get dismissive responses here, Gazzer! Safe place! Some people just don’t understand and when you start to explain their eyes just glaze over ..... but when you realise that one in six (ish) of the population also suffers from it you might find some new friends!
Hi
Know what you are going through, just started a big spike, don’t know how long it will, don’t know what brought it on just hope it calms down a bit before bed. As for habituation I think you have more chance of winning the lottery
Keep strong
Catman68
Thanks starveycat & NickReid. Very helpful.
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