Explanation and Hope - at last !: Hi all. I've... - Tinnitus UK

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Explanation and Hope - at last !

Lindsay6 profile image
5 Replies

Hi all. I've been quiet ( how ironic!) on this forum due to being very poorly with my tinnitus and the resultant CFS . however , I keep plodding on and after 5 and half years of not finding anything or anyone who could provide an explanation that fitted my continually downward trajectory of pain , I came across this yesterday in Mindfulness for Health by Vidyamala Burch and Danny Penman. I finally have a bit of hope ! They ' get ' tinnitus and offer ways to manage and improve my life .

I hope it is ok to share this

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Lindsay6 profile image
Lindsay6
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5 Replies
Ingrid-p profile image
Ingrid-p

Hi I really hope you get some positive results from this. Keep us posted. I'm sick of mine now, just wish I could switch my brain off from constantly thinking about it.

Take care.

Ingrid xx

NicBTA profile image
NicBTAPartner

Hi Lindsay

I think the impetus into the mindfulness studies for tinnitus came because of the realisation that tinnitus is similar in many ways to chronic pain.

I think we've spoken with Vidyamala and she's interested in tinnitus. Hopefully mindfulness will be beneficial for you.

Angela-H profile image
Angela-H

Hi Lindsay, sending positive thoughts to you and truly wish that you get respite from your pain.

Love

Angela xx

AnneJ7 profile image
AnneJ7

Hello Lyndsay..have missed you and I'm sure the mindfulness will work because it helps us to 'be' in the moment rather than have time, with all it's stresses and strains, both real and imaginary, crowding in - which makes me exhausted before I even wake or move.

I'm just recovering from shingles so the M.E and tinitus is only being held in place by regular 'coming into THIS moment' time.

I found some thoughts on the internet which helped me - like - 'It is ok to say 'no' !

Love and prayers AnneJ xx

Lindsay6 profile image
Lindsay6

Thanks everyone . I have to admit I'm getting fed up now , and I'm a tough cookie ! I would bring out the flags if today were as bad as yesterday ! That would be progress. I think it's the not understanding why that's getting to me , and I have to ( finally admit) I'm beginning to feel anxious now as it's just crazy . That vicious circle. Heh ho...

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