Tinnitus Hope?

[beaverwood]

Is anybody aware of positive research into tinnitus at all? all the doom and gloom connected to tinnitus adds to the depression.

[rabbits65]

I couldn’t agree with you more . You are so right. As far as I know there is some research but no where near as much as there should be.

[beaverwood in reply to rabbits65]

Thank you for your reply, I was told onFriday by a GP that there is nothing can be done other than stop listening to it, Fantastic 2021 and that is the best advice on offer, I have yet to hear of any positive steps to finding a cure on any site, perhaps there is a lot of money to be made from tinnitus and its victims.

[rabbits65 in reply to beaverwood]

Don’t get caught up on these sales freaks in USA that claim this that and the other, you will just waste your money. Your GP should have explained better that although it’s good (eventually) to stop listening to the tinnitus , this takes ages and ages to happen. Others on this site are having good results from eventual habitation . Relaxation and going out for long walks listening to the outside world is about as good as it gets for me . There are some good books out there on the tinnitus subject . Look online .

Good luck

[beaverwood in reply to rabbits65]

Thank you very much, all I can do is carry on in hope.

[rabbits65 in reply to beaverwood]

I have today received my book called “ Tinnitus from tyrant to friend”. By Julian Cowan Hill . I think it’s going to be a helpful read to me . You could try it too . Best wishes from me, Penny rabbits65

[Louie04 in reply to beaverwood]

A lot of money to made from a cure also but your right people take advantage of conditions that are not easily fixed Sent people to the moon in 1960s can’t fix T in 2021. Hopeless

[iraymond]

Beaverwood, I understand where you are coming from, it would be amazing to take a pill and the T is gone. And I guess many people would tell me I don't know what I'm taking about as I have only had T from 2 months. But from my perspective there seems to have been great steps forward in our understanding and treatment? I have been in a very dark place but I have realised that T feeds on negative emotions. The more I think about T and the more I listen to it, the stronger it gets. So I am choosing to be positive, it is as much a part of me now as my ugly face and bald head... but I accept those too and don't waste time worrying about those either. Progression is not linear, I realise that, and not listening to T is not easy, it takes practice and that is what I am doing every day. I have to have hope and I celebrate small victories. If I don't hear my T for 10 mins, that is a victory and not a failure when I do hear it after the 10 mins. Tomorrow it might be 11 mins, let's hope so. It is only in my head, so I am the only one who can control it. And I am not going to let it control me.

[beaverwood in reply to iraymond]

Thank you, I appreciate your reply, I agree to a certain degree but I do feel very let down by the so called proffesionals as this is supposed to be their field, all I have heard this far is that nobody knows the cause of tinnitus, where is all the research? I sincerely hope you manage to reach the target of this menace not bothering you any longer.

[iraymond in reply to beaverwood]

I do feel a bit let down by the doctors I have seen so far. I have been misdiagnosed several times, been prescribed uneccessary treatments ( that made my T 10x worse!) and in one instance when I told a doctor that I felt really depressed about my T he told me "oh yes well there is a high suicide rate for T suffers". Are you kidding me, is that is the best response you can come up with??I guess I have been searching for a curable, medical reason for my T so that it could be fixed. I accept now that that is not going to happen, so I am going deal with this myself. All the interesting new things I have been learning, such as CBT, mindfulness, self-care are really helpful IMO and in a funny sort of way, the future is exciting. I think T could make me a better person!!

[beaverwood in reply to iraymond]

I love your positivity and feel you are doing the right thing, I cannot accept that there is not a cure as the experts are all saying they don't know what causes it, I think it drives me on pursuing the cause and the cure. best of luck for the future.

[iraymond in reply to beaverwood]

Thank you and the very best of luck to you too. Take care 🙂

[doglover1973 in reply to iraymond]

You're as qualified as any of us to talk about T. I admire your outlook too . How did you get so wise in only two months?! I have to remind myself daily to stay positive. I don't always manage it but feel better if I do.

[iraymond in reply to doglover1973]

Hi doglover, it's not always been like this. I have been in a dark place for many weeks. But you know what, the depression, the dark thought, the self-pity... it wasn't helping! The medication doctors were giving me certainly wasn't helping! So I decided to take control. I have a couple of apps on my phone and they are really helping me. And I noticed that when I listened to my tinnitus, it got louder, more intrusive. So I have decided not to listen to it. Easy right!? It is a struggle but instead of getting down when I do listen to it (which at the moment is most of the day) I congratulate myself if I can do it for 10 mins. 10, blissful minutes when I'm not thinking about or listening to my T. Tomorrow I'll do better and if I don't I'll do better the next day. I'm am really trying to take all the positives from everyday from now because quite frankly the negatives were getting me nowhere.I'm rambling again....sorry everyone. I'll be briefer from now on 😁

[PopcornLover1971 in reply to iraymond]

Would you care to share the apps that are helping you?

[iraymond in reply to PopcornLover1971]

I have two on my phone that I find useful, Oto and Tinnibot.They both have limited free access, otherwise, after a free trial, you have to take a monthly or yearly subscription. I have subscribed to Oto but also use the free stuff in Tinnibot.

[PopcornLover1971 in reply to iraymond]

Thanks for sharing! I like Oto, too, and purchased their yearly subscription about 2 weeks ago.

I hadn't yet heard of Tinnibot, so thank you.

I also like White Noise as it allows you to combine a couple of sounds for free as a blocker.

[Earsareangry]

Have you got hearing aids, if not I would highly recommend them. I've had tinnitus (louder than the world we live in) for 30 years. Couldn't believe how much they take the sound away during the day.Obviously at night still on zopiclone or beer. But at least 75% of the day I'm oblivious to high pitched noise. Good luck to you.

[beaverwood in reply to Earsareangry]

I do have hearing aids although they are not very effective for me, I think we are all different and have to try many ways to work out what suits, thank you for your help.

[DJR2020]

Hello all... I developed tinnitus in Oct 20 after receiving chemotherapy for cancer (cisplatin, which is platinum based )which is known to damage the cochlear. I knew I had been given an overdose on the first dose, as I had low tinnitus almost straight away. It then went ballistic 10 months later. I thought I was going to kill myself, how do you live with a high pitched squeal for the rest of your life ? It took several months to get used to it, I tried hearing aids, but they only were of use at night, and they don't recommend using them at night and I was worried about damaging them. I learnt that having noise in the background helped, but I was the kind of person who needed absolute silence to sleep. Well, I had to change that, so started off with putting the radio on (to go off after an hour) on a talk station... it took me a while to get used to that. And opening the window to get the outside noise too. Unbelievably it worked, it took a while though, and I now sleep better as I've trained my mind to focus on the radio and not the tinnitus. I used to have a racing mind at night, but that's now stopped. Every morning I wake up and think T has gone, but then it pops back up. During the day I have headphones on and am managing it this way. I also take Gingko Biloba which is good for inflammation, and I feel that has done me a lot of good in other ways. No doubt the not focusing on it at night is the main thing you have to overcome, but it's doable. Best, Diane

[beaverwood in reply to DJR2020]

Thank you very , I hope you continue to feel better every day.

[iraymond in reply to DJR2020]

Hi DianeThanks for sharing that, it's great to hear the positives steps people have taken. I am still struggling with sleeping and a little bit of "going to bed" anxiety but I'm working through it.

[Blonde600]

Hi beaverwood, youre so right , there should be more research, this is a life changing consition for a lot of people who cant cope,with it, people who have other conditions on top of it.. I have to say it how it is. Without money and funding, research will be limited, we need funding, I believe there isnt even a charity .

[beaverwood in reply to Blonde600]

Thank you, Please see my latest post that gives some hope at last.