Does any1 suffer with weakness/ dizziness if st... - Thyroid UK

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Does any1 suffer with weakness/ dizziness if standing up or walking around for an hour or two. This always progresses to pressure headaches.

Femme1 profile image
11 Replies

Whenever I go shopping, or stand around for any length of time I start to feel weak, and then start with a pressure type headache too that I cant shift for the rest of the day, this has happened quite a lot recently. I have naturally low blood pressure which I know can make people feel faint, but this feels like exhaustion too, and always the headache????

Any ideas? I am awaiting blood test results as getting nowhere with doctor, as discussed in previous posts I have a massive list of hypo symptoms, and this also runs in our family. Last TSH test (taken early afternoon was 1.8) so I'm 'Normal'

Also one other thing, I can no longer tolerate alcohol, I get drunk very quickly ESPECIALLY with wine, and if I even have just one glass, headache again, and over the top hang overs the next day .

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Moggie profile image
Moggie

Have you ever looked into your adrenals? Apparently (according to my endo) low blood pressure can be a sign of adrenal problems as can exhaustion so maybe you could ask your GP to look into this.

Lots of people on here find that they can no longer drink alcohol and find, like you, they get terrible headaches just with a small amount.

Moggie x

Femme1 profile image
Femme1 in reply toMoggie

Thanks Moggie, I will try anything at this point :-/ will wait on results and then take it from there, I know when I asked about T3 and antibody testing my gp refused saying my TSH was fine so no need, however she ran a cortisol test and this came back fine. They did pick up smooth muscle antibodies , but after six weeks and another test they came back normal so she basically wrote me off as being ok now. Ah well I suppose its easy to ignore three years of return visits with growing and repeat symptoms if you find a short term cop out. Grrrr I know everyone here has a similar story though so this in itself is reassuring :-) x

nichola79 profile image
nichola79

I get this, also be useful to have your b12 checked x

Femme1 profile image
Femme1 in reply tonichola79

I am taking a multi vitamin which includes B12 now, so hopefully if there is a prob this will right itself :-) x

nichola79 profile image
nichola79 in reply toFemme1

The multi-vitimins usually haven't got enough vitimin b12 in for the daily intake x

Femme1 profile image
Femme1 in reply tonichola79

Never simple is it, started taking vitamin d, at much higher levels than required,

because my bloods showed I was low in this, but assumed vit b12 would be ok in multi vit level, doh. Thank you for the tip :-) x

nichola79 profile image
nichola79

Its ok the ones you dissolve under your tongue are good, and no its never easy :( x

mighty_mouse profile image
mighty_mouse

Hello Femme1

May I suggest that you get your doctor to examine you for 'Low T3 Syndrome'

Low T3 Syndrome presents with Normal Thyrotropin (TSH) and Free Thyroxine (FT4) blood serum concentrations but low Free Triiodothyronine (FT3) and often unusually elevated Reverse T3.

You may have another underlying condition which is suppressing the activity of the Type 1 Deiodinase Enzymes (D1) and stimulating the type 3 Deiodinase (D3).

Even the auto-immune anti-bodies present in Hashimoto's Thyroiditis and responsible for many cases of Primary Hypothyroidism can trigger suppression of D1 and stimulation of D3 deiodinase enzymes.

Indeed I suspect that your ALT may be elevated suggesting perhaps some minor damage to your liver, given your reaction to alcohol, which may also provoke the same protective response in the thyroid system.

Given the fact that you assert low blood pressure (low diastolic and systolic pressures) may I suggest you review the study Relation between free triiodothyronine/free thyroxine ratio, echocardiographic parameters and mortality in dilated cardiomyopathy

eurjhf.oxfordjournals.org/c...

If your Free Triiodothyronine (FT3) is at or around 4.0 pmol/l then you are at risk from congestive heart disease (Dilated Cardiomyopathy {DCMP]).

There is a PDF version of the Study you should download and then print off to give to your GP, which hopefully might be sufficient of a kick in the pants for him/her to order tests to establish your FT3 and Reverse T3 blood serum concentrations.

Please do not start worrying unnecessarily. We need to encourage your doctor to do what he/she should, and your low diastolic & systolic pressures should provide the means.

Regards

Michael.

mighty_mouse profile image
mighty_mouse

Hi Femme1

I forgot to add that a healthy FT4:FT3 ratio is around 3:1.

Your TSH of 1.8 mIU/l suggests an FT4 of above 17.0 pmol/l which if your FT3 were 4.0 pmol/l then your FT4:FT3 ratio would be above 4:1.

Femme1 profile image
Femme1 in reply tomighty_mouse

Hi Mighty Mouse, Thank you for your in depth respose, My new blood results are in now and are:-

TOTAL THYROXINE(T4) 97 nmol/L 59 - 154

THYROID STIMULATING HORMONE 2.59 mIU/L 0.27 - 4.2

FREE THYROXINE 13.7 pmol/l 12.0 - 22.0

FREE T3 4.0 pmol/L 3.1 - 6.8

IMMUNOLOGY

THYROID ANTIBODIES

Thyroglobulin Antibody 18.8 IU/mL 0-115(Negative)

Method used for Anti-Tg: Roche Modular

Thyroid Peroxidase Antibodies 7.7 IU/mL <34 (Negative)

Method used for Anti-TPO: Roche Modular

Not sure how this figures with the above, but an interesting issue you raise re liver, when I had previous bloods taken (before christmas) after complaining of symptoms to the doctor once again, she took an auto antibodies blood test which at the time I was unaware of until i requested print out. The results were anti smooth muscle antibody POSITIVE 1gG 1.40, I took this to be a liver issue, although she just said that I had probably had a bad virus and not been aware of it. I worried about my liver because I had endured six months of nausea and retching over the summer/autumn prior to this. I had been on the pill for six months when this began, and came off by twelve months (when these results came, just in case) All sorts of concerns filled my head mainly drug toxicity re the pill.

I will mention this when at the surgery again!

Thank you for the pointer :-)

Femme1 profile image
Femme1 in reply toFemme1

I had a further Lft test six weeks later, didn't get a print out but was informed these were fine? Mystery eh!

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