TED and puffy eyes: I have TED and my upper... - Thyroid UK

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TED and puffy eyes

Silver_Fairy profile image
8 Replies

I have TED and my upper eyelids are always puffy (I presume it's fluid). Any tips on lessening the puffiness?

Thank you.

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Silver_Fairy profile image
Silver_Fairy
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8 Replies
123hih123 profile image
123hih123

Sleep with your head raised I have been sleeping on the sofa for over a year with my head on the arm

Also a cold compress

Silver_Fairy profile image
Silver_Fairy in reply to123hih123

I already sleep with my head quite high as I cannot lie flat because of heart problems, so unfortunately, that doesn't help me :\

My eyes were so blown I looked like I'd been in a fight and didn't even know what was wrong with me. To cut a very long story short, the only thing that reduced my swellling back to 'near' normal was Prednisolone steroids. The GP popped me on a course for 5 days and then a second course and my eyes are as they are now. The are still slightly bulging but others don't notice - only me. Hope you can get some help from this x

Silver_Fairy profile image
Silver_Fairy in reply to

I'm under the Ophthalmologist but she doesn't have any answers. To be honest she only seems interested in the condition of the eye and whether the movement is affected. I have never had steroids for my eyes, maybe because my TED is seen as mild? Although my eyes bulge slightly and I have the TED 'stare' :(

My Opthalmologist just prescribed me eye lubricants and check my eyes every 6 months but it was the GP who gave me the steroids which returned my eyes to near normal. I feel I still have the stare but the family say I really don't.

Silver_Fairy profile image
Silver_Fairy

Do you know if the steroids need to be used asap?

Maddie profile image
Maddie

The British Thyroid Foundation has some info on the use of selenium supplements for those with mild thyroid eye disease. This is the link;

tinyurl.com/az3y838

The link to the research paper referred to is;

nejm.org/doi/full/10.1056/N...

The selenium used was given as sodium selenite in a dose of 100 µg twice daily for a six month period - Maddie

Silver_Fairy profile image
Silver_Fairy

Yes the Ophthalmologist

recommended selenium, same dose but no mention of for how long. Pity she left it until I had seen her over half a dozen times *rolls eyes*

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