TED and puffy eyes

[Silver_Fairy]

I have TED and my upper eyelids are always puffy (I presume it's fluid). Any tips on lessening the puffiness?

Thank you.

[123hih123]

Sleep with your head raised I have been sleeping on the sofa for over a year with my head on the arm

Also a cold compress

[Silver_Fairy in reply to 123hih123]

I already sleep with my head quite high as I cannot lie flat because of heart problems, so unfortunately, that doesn't help me :\

[Hidden]

My eyes were so blown I looked like I'd been in a fight and didn't even know what was wrong with me. To cut a very long story short, the only thing that reduced my swellling back to 'near' normal was Prednisolone steroids. The GP popped me on a course for 5 days and then a second course and my eyes are as they are now. The are still slightly bulging but others don't notice - only me. Hope you can get some help from this x

[Silver_Fairy in reply to Hidden]

I'm under the Ophthalmologist but she doesn't have any answers. To be honest she only seems interested in the condition of the eye and whether the movement is affected. I have never had steroids for my eyes, maybe because my TED is seen as mild? Although my eyes bulge slightly and I have the TED 'stare'

[Hidden]

My Opthalmologist just prescribed me eye lubricants and check my eyes every 6 months but it was the GP who gave me the steroids which returned my eyes to near normal. I feel I still have the stare but the family say I really don't.

[Silver_Fairy]

Do you know if the steroids need to be used asap?

[Maddie]

The British Thyroid Foundation has some info on the use of selenium supplements for those with mild thyroid eye disease. This is the link;

tinyurl.com/az3y838

The link to the research paper referred to is;

nejm.org/doi/full/10.1056/N...

The selenium used was given as sodium selenite in a dose of 100 µg twice daily for a six month period - Maddie

[Silver_Fairy]

Yes the Ophthalmologist

recommended selenium, same dose but no mention of for how long. Pity she left it until I had seen her over half a dozen times *rolls eyes*