It's six years since I was diagnosed with Graves Disease, (undiagnosed for 20yrs) and 4yrs since I had eye surgery to attempt correction of the muscle damage caused by T.E.D.
On the whole the surgery was successful and my recent bloods report I'm still in remission for the eye disease, so I do have a lot to be grateful for, even if I have developed arthritis in my hands feet and knees !.
However, I'm wondering if there's anybody out there who is at a similar stage to me with this illness, as I'm starting to feel a bit lost and vulnerable. Although appearance wise my eyes look nearly perfect, they are misaligned slightly from over corrective surgery, which has left a multitude of problems.
I have no recognition capabilities, and no peripheral vision, I cannot focus on moving objects, cannot look up, or to my right, I have no night vision, and am completely blinded by light and wind.
This in itself has changed my life beyond all recognition, and yes as my surgeon informed me, my brain would and has rewired itself to evaluate and understand the double vision I've been left with.
BUT and its a big BUT, it's left me feeling completely insane, I don't see, hear, think, or understand things the same as I used to, and I'm constantly met with confusion by people when I try to communicate my brains NEW coding, which causes me to get angry, defensive and frustrated..
It takes me forever to do anything, as I'm constantly double checking EVERYTHING , to the point where I feel I'm developing O.C.D.
So please if anybody else out there recognises this can you let me know.