Does anyone feel this bad on carbimazole??? My... - Thyroid UK

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Does anyone feel this bad on carbimazole??? My update.

shazzaroo profile image
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Thank-you to everyone for their advice and comments they gave me the confidence to speak up for my self when i went to the hospital yesterday. The specialist whom i saw said he has seen lots of women like me and he thinks i,m menopausal (i,m 47) he also said he has never come across anyone who has reacted this bad to carbimazole (which i know my reaction isn't uncommon after reading articles on this site, however he said i can switch you to propylthiouracil 120mg aday. he also said he has a colleague who has the same as me and manages to work day and night shifts and he thinks my symptoms are to do with my personality. I said to him i didn't have menopausal symptoms before taking carbimazole , however he insisted on a blood test for this. he also upped my levothyroxine from 50mc to 75mc so i will see how i go, he also said he will speak to the surgeon and they are going to remove my thyroid gland. He also said removal could make my graves disease much worse so i,m a bit worried about this. I suppose i need to weigh it all up when i speak to the surgeon and decide what to do (having my throat cut is a bit scary) but at least they are willing to do something about it. I also hope it is defiantly how it seems to me that it is the carbimazole and not the menopause! once again i thank everyone who replied to my question it made me feel so much better because i did feel like i was going crazy and i felt so alone, i felt a 100 times better after reading the comments which were left i showed my 21 and 22 year old and said see lots of people feel like i do or have some of the symptoms which i have on carbimazole im not going mad lol xxxx

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efilwol profile image
efilwol

Well, that's good news - glad to hear that things are a bit better. Keep asking questions and think carefully about surgery -once it's gone, it's gone for good and all that is left is a life time of medication. From what I have read, most people with Graves' Disease end up going hypo naturally in the end - I guess the thyroid just gets exhausted.

Anyway, I'm going to ask my new endo about that on Tuesday. ;-)

Autoimmune conditions like Graves' Disease can cause premature menopause. Testing for menopause is simple, since the already have your blood they will do a FSH (follicle stimulating hormone) test and that will give them a good indication of whether or not you are peri-menopausal. I began menopause at 47.

Thanks for the update and hope things get better for you.

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