4 and 1/2 years ago I was diagnosed hypothyroid with a TSH of 16 but with a normal free T4 (not sure of exact figure and I don't know the ranges as am only now becoming aware of how little vital info GPs and specialists have shared with me over the years.) The test was taken as I was suffering with anxiety and severe insomnia. I was immediately medicated with 50mcg Thyroxine. After taking it for 6mths noticed no difference in my health at all, good or bad. I was retested and increased to 75. In just a few months I dropped about half a stone. This is not good news for me as I am naturally very slim. On returning to my GP with this complaint my dose was lowered to 62.5. I maintained this dose for about a year; my only symptom the weight loss which did not resolve.
About two years ago I began suffering what I thought to be allergic reactions where my body broke out in very itchy hives. It happened about 3 times in the space of a year. I paid for allergy tests and tried diff diets to no avail. In the meantime my thyroxine dose had been increased again to 75. About one year ago I began breaking out every day in random intermittent hives on my face and torso. A very embarassing and uncomfortable problem. My GP increased my thyroxine to 100mcg in Dec 2011 due to a very high TSH reading. After a few months on this dose I began to suspect it was too high; I lost more weight and now my BMI is too low. I currently have very sensitive dry itchy skin that breaks out regularly in hives, my weight is too low, my hair is thinning, dry and brittle. I am exhausted and still do not sleep well. After badgering my GP I reduced my dose to 50 in summer last year and was referred to an endo. The endo, on the basis of TSH tests, has now increased me to intermittent 50/ 75.
I feel like I am going around in circles. Is it possible that I do not need medication with a normal free T4 but an elevated TSH as I am more ill now than ever before and just so frustrated and sick of this merry go round? My most recent TSH was 4.2, range 0.2-4. Any help gratefully received (sorry for the life story).