Tell the ATA and AACE how YOU feel about their treatment guidelines - if you haven't yet done this please read on...

[Clarebear]

Hi everyone - I am reposting this in case any one has missed it, as I think it is a great opportunity to give feedback to the endos (in America anyway).

ThyroidChange, the United Voice of Thyroid Patients Worldwide, are encouraging thyroid patients to comment on their thoughts about the American Thyroid Associaton (ATA) and the American Association of Clinical Endocrinologists (AACE) treatment guidelines.

Although the guidelines are American, it may well help thyroid patients worldwide so Thyroid UK also encourages you to comment. ThyroidChange wrote an excellent letter to the ATA and the AACE which you can read here: irthyroidchange.org/response-...

ThyroidChange ask the following:

PLEASE tell the ATA and AACE how YOU feel about their treatment guidelines that encourage TSH only testing and treatment with Levothyroxine (T4) only.

WE NEED CHANGE NOW!

Please write something that explains how their emphasis on the TSH test and Levothyroxine (T4) only treatment has impacted your life and health. Write as LITTLE or AS MUCH as you want. JUST WRITE!

Tell these organizations the consequences of their guidelines.

The way to do this is to post your comment on the first link and then copy & paste it on the other 3 links:

ATA FB post regarding their 2012 guidelines: facebook.com/ThyroidAssocia...

ATA main wall:

facebook.com/ThyroidAssocia...

AACE FB post regarding TSH supremacy:

facebook.com/TheAACE/posts/...

AACE main wall:

facebook.com/TheAACE

[shaws]

I am not a member of Facebook and cannot access the above.

[Clarebear]

Yes I agree that this is annoying but unfortunately this is the way that they have asked to have feedback.

I have offered to post Rod's comments (if he wants me to) and could do the same for you. I could just say I am doing it for a friend not on Facebook.

[Hidden in reply to Clarebear]

I don't do Facebook either Clare - would you be willing to post a sentence from me too?

"We need you to issue guidelines that make it clear that thyroid sufferers are individuals and should not be treated with the 'one size fits all' approach. Over-reliance on blood tests, in particular TSH results alone, leads to many patients going undiagnosed. The blinkered belief that T4 is the only treatment available should also be abandoned."

[Clarebear in reply to Hidden]

Hi Sue - Thanks for this. I have managed to post your comment on the last link but they seem to have taken the pages down - maybe they can't cope with the deluge. I will update when I know more. x

[Hidden in reply to Clarebear]

Thanks Clare - let's hope they've been swamped.

x

[nobodysdriving in reply to Clarebear]

HAHAHAHAHAHAHA they've taken the pages DOWN???

WHAT A BUNCH OF MORONS!

showing EVEN MORE what they're made of! I hope they will hide in shame forever!

[Clarebear in reply to nobodysdriving]

They seem to be working again OK now

[nobodysdriving in reply to Clarebear]

I'll 'chill off' then

[Hidden]

Yeah I've not used my Facebook acc since seriously ill in 2010, largely because I was no long well enough, and wasn't going to go on there a pretend all was well and jolly, when in fact my life was shattered but, I no longer trust Facebook either.

[sarahstevenson]

Have posted Clare thanks for reminding me

[Clarebear in reply to sarahstevenson]

Thanks x

[Heloise]

The AACE main wall is the only one that came up and I could type in my comments. Thank you!

[Clarebear in reply to Heloise]

The other links seem to work again now so it would be great if you could copy and paste it to these others too Thanks for your help. xx

[oktoday15112011]

Hi, I have added my comment, at least I hope I have, I'm not used to Facebook

Caroline

[Clarebear in reply to oktoday15112011]

Thanks