Thank you Paul for bringing this to our attention, wish I'd seen it earlier as I believe every bit helps. I have posted to all four sites anyway as below:
Please Listen to Patients. They know their bodies better than anyone.
TSH Levels don’t tell the whole story. Thyroxine (T4) doesn’t work for us all.
I know this because despite 18months on Thyroxine (T4) I did not get better.
I was delighted to initially be given a reason for my failing health. Hypothyroid, no problem said my GP take this T4 once a day and you’ll be fine. Simple I thought. I loved the concept until it didn’t work.
Sadly. I felt far worse than before I started on T4. Within weeks I felt toxic, and frightened. My voice failed, I could barely function, by brain and body shut down.
My GP just kept asking me to be patient and take more T4. Despite asking he refused me any other alternative treatment. Desperate I sort help from a Thyroid expert and tried supplementing my T4 with NT trying to boost the T3. This had some effect and indeed I did feel better for a while only if I cut out the T4 and increased the NT, which contained T4 and T3.
This also failed and finally left me with Rt3 and Jaundice. The conclusion was that I was unable to tolerate the T4. My only alternative was to try Triiodothyronine (T3) on its own to clear the Rt3 and hopefully improve my Hypo symptoms and give me back my life.
Recovering with T3 is working.
I am now almost totally free from all my hypothyroid symptoms and feel so very much better. Normal!
Please let our GP’s offer alternative medications.
I want other to be given the chance to try all the available Thyroid medications, which are currently not being offered readily.
Please don’t rely totally on a one-part blood test.
Please allow our professionals to give their patients a full Thyroid Blood Test currently only being offered privately Including FT3, FT4, and ReverseT3 alongside the not always so useful TSH.
Please allow our Professionals to prescribe and monitor medications based on clinical signs and symptoms being given by their patients alongside those blood tests.
Please allow patients to have other vital clinical tests to be done to make sure their bodies can actually absorb and utilize the Thyroid medications they are then given.
Every patient that is not getting better on Thyroxine (T4) is costing the NHS and other Healthcare bodies far far more than the alternative options in the long term.
Hope this brings the blog back up to the top for more to see.