NHS results from endocrinology can anyone help ... - Thyroid UK

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NHS results from endocrinology can anyone help me make sense?

Nem14 profile image
10 Replies

I recently attended specialist for chronic fatigue whom had endocrinology do tests as Dr hadn’t yet ruled out everything.

I have hypothyroidism, pernicious anemia, PCOS and endometriosis.

Symptoms are mainly chronic fatigue, muscle aches/tiredness, brain fog/focus issues, memory issues, dizziness, lightheaded, sore/tender throat, always feeling cold, absent periods, dry flaky skin, brittle nails, joint pain, anxiety, weight gain of 10kg

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Nem14 profile image
Nem14
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10 Replies
greygoose profile image
greygoose

I'm afraid no-one can without the ranges. Ranges vary from lab to lab so we need those that came with your results. Otherwise, it's just guessing. :)

Nem14 profile image
Nem14 in reply togreygoose

No ranges given via NHS as they sent the letter I posted. It wasn’t updated on my app so unfortunately don’t have access to these.

I will contact GP to see if they can enlighten me.

FallingInReverse profile image
FallingInReverse

As GG says, we need ranges for those results to be helpful.

Also share how much Levo you are on and how many hours before the results above your last Levo dose was.

What other supplements do you take, and I’m guessing your getting b12 injections?

But I will also suggest you get a full iron panel:

* Iron

* Total iron-binding capacity (TIBC)

* Transferrin saturation %

* Ferritin

* High Sensitivity CRP (CRP-hs)

|

Can you also get copies of your results from what I assume was a full blood count based on them concluding you have no anemia.

Both low iron and low B12/folate can hinder red blood cells (an indicator of anemia) and the FBC can help explain.

|

Your fatigue has many contributing factors, and iron could be one that needs a tweak. But we need more info !

SlowDragon profile image
SlowDragonAdministrator

vitamin D will be 51nmol as you are based in U.K.

How much vitamin D are you currently taking

Aiming for at least over 80nmol

GP will often only prescribe to bring vitamin D levels to 50nmol.

Some areas will prescribe to bring levels to 75nmol or even 80nmol

leedsformulary.nhs.uk/docs/...

GP should advise on self supplementing if over 50nmol, but under 75nmol (but they rarely do)

mm.wirral.nhs.uk/document_u...

But, improving to around 80nmol or 100nmol by self supplementing may be better

pubmed.ncbi.nlm.nih.gov/218...

vitamindsociety.org/pdf/Vit...

Once you Improve level, very likely you will need on going maintenance dose to keep it there.

Test twice yearly when supplementing

Can test via NHS private testing service

vitamindtest.org.uk

Vitamin D mouth spray by Better You is very effective as it avoids poor gut function.

There’s a version made that also contains vitamin K2 Mk7.

One spray = 1000iu

amazon.co.uk/BetterYou-Dlux...

It’s trial and error what dose we need, with thyroid issues we frequently need higher dose than average

NHS Guidelines on dose vitamin D required

panmerseyapc.nhs.uk/media/2...

Web links about taking important cofactors - magnesium and Vit K2-MK7

Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine

betterbones.com/bone-nutrit...

medicalnewstoday.com/articl...

livescience.com/61866-magne...

sciencedaily.com/releases/2...

Vitamin K2 mk7

betterbones.com/bone-nutrit...

healthline.com/nutrition/vi...

SlowDragon profile image
SlowDragonAdministrator

Definitely get full iron panel

come back with new post once you get results

Test early morning, only water to drink between waking and test. Avoid high iron rich dinner night before test

If taking any iron supplements stop 5 days before testing

Medichecks iron panel test

medichecks.com/products/iro...

monitormyhealth.org.uk/anae...

SlowDragon profile image
SlowDragonAdministrator

TSH 1.16

FT4 20.5

Ft3 5.5

We need ranges on Ft4 and Ft3

Was test done early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

How much levothyroxine are you taking

Do you always get same brand Levo at each prescription

Is your hypothyroidism autoimmune

Nem14 profile image
Nem14 in reply toSlowDragon

Hi thank you for the response

I followed all of these guidelines, no Levothyroxine for 24hrs prior, test was done fasted and before 9am.

I take 100mcg of levothyroxine, same brand for 4 years. No issues.

I previously had private tests done in Jan that showed I had highly elevated TgAB antibodies 431kU/L.

NHS endocrinology didn’t provide ranges on the letter they sent?!

SlowDragon profile image
SlowDragonAdministrator in reply toNem14

Suggest you request ranges on that results

Or retest yourself

Randox FULL thyroid test including both thyroid antibodies just £31

Test at home or in clinic

Also available via Amazon

randoxhealth.com/en-GB/at-h...

And test full iron panel

Nem14 profile image
Nem14 in reply toSlowDragon

I tested with Thriva in Jan and the

TSH was 3.15 mIU/L (range being 0.27-4.2)

FT4 was 19.8pmol/l (range 12-22)

FT3 was 4.9 pmol/L (range 3.1-6.8)

TPOAb 14.5 kIU/L (range 0-34)

T4 94nmol/L (range 59-154)

SlowDragon profile image
SlowDragonAdministrator in reply toNem14

Free T4 (fT4) 19.8 pmol/L (12 - 22) 78.0%

Free T3 (fT3) 4.9 pmol/L (3.1 - 6.8) 48.6%

Improving iron/ferritin levels assuming test shows it’s needed ……should help increase Ft3

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