not sure what’s going on …

[nooneimportant]

currently on Carbimazole 1.25mg per day - been feeling poop so thought I’ve reduced too much (for context I have no way of knowing whether I’m high or low in the range as symptoms for me are the same 🤷‍♀️- l I took 2.5mg (half a pill) I feel worse (my body is sensitive to these meds and appears to react quickly to any changes) my face has puffed up even more now and I went to bed at 21:00 and didn’t wake until 05:00 feel heavy and tired and my joint pain was a lot worse

I can’t get a blood test until January and I’ve wasted another £44 on a finger prick test that is unusable - even with assistance I couldn’t get more than a smear there’s no possibility of filling that tube - and that was following guidance and even tried light exercise.

anyway more a grumble than anything because I’m stuck feeling crap until I know which way my bloods are until mid January 😡

[nooneimportant]

Aw thank you for responding - it’s not a reaction though that I’m sure of - feeling like I’m either high (quite probably) or low but my symptoms are the same either which way 🤷‍♀️ … I’m just sensitive to the horrid side effects of this medication. I know people find it to be a life saver but I’ve felt like I’m being slowly murdered on it myself 😂

It’s just frustrating that I’ve yet another Christmas feeling poop because of these meds 😖 not that I’m doing anything. I guess being on my own I can’t impact on anyone else 😂 but was kinda hoping to go for a nice long walk and be in nature or something but feeling rubbish making it unlikely 😔 booooo 😭

[nooneimportant]

So sorry for the delay in responding - what a week?! anyway sounds like you've been through a right ordeal 😔 so I think what's happened with me is I reduced the meds to 1.25mg however, I think it's cutting them that small that might be causing the issue - I think I just need to take 2.5mg every other day - I think it's just disintegrating them so almost like nothing is going in - since I started taking 2.5mg every other day I feel a bit better (as better as I ever get on these meds) :/ who knows - I'm not dead yet so I'm taking that as a good sign 😂