I was just wondering if anyone could offer any advice/opinions on my current thyroid situation.
In July I was diagnosed with a ‘severely overactive thyroid.’ I was put on Carbimazole but then my levels went too low so I was taken off the tablet.
during this time I was getting a lot of discomfort in my throat, constantly feeling like someone was pushing down on my throat with a lot of pressure, changes in my voice, trouble swallowing sometimes, a big fullness feeling in my throat. I went back to the doctor who expressed concern that I had a substernal goiter after feeling my throat and being unable to get behind my right side collar bone and feeling a lot of resistance. She referred me for a scan which was cancelled and I was sent to a consultant. He felt my neck and said he couldn’t feel a goiter but couldn’t say why the one side of my throat behind my collar bone can’t be pushed in. He said that he thought it was acid reflux and has put me on tablets despite not having any of the main symptoms of acid reflux or anything similar. He said that they could do a ct scan but he didn’t want to because ‘7/10 come back as abnormal’ so told me to wait for my endocrinology appointment so they could refer me back to him, which could take up to a year.
My parents, who were both nurses, and a family member who is in the medical profession are all doubtful that this is the case.
So I was just wondering if anyone had any similar experiences? Or if this was ‘normal’?
Can you have a substernal or compressive thyroid but not actively feel a lump in the throat because it’s growing inwards/downwards?
Are there any other reasons why I can’t get behind my collar bone on the one side and now occasionally on the other?
I’m going to speak with my normal GP Friday but I was just wondering if anyone had any similar experiences.
Thank you for taking the time to read, I’m sorry for waffling.
Take Care
Written by
Serisu
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We were considering going private, even just for peace of mind.
I came off the Carbimazole around the 28th of October.
I’m not aware of having those tests done, just follow up bloods to check my levels.
The consultant I saw yesterday did however say when he saw me ‘so you have Graves disease’ and I was like no? I’ve never been told that’s something I have or something that’s even been mentioned. I’m going to mention it when I speak with my GP next.
I have had a lot of issues with my Vitamin D and folic acid levels. I was prescribed folic acid and vitamin d tablets which I’m not on anymore. My GP wanted my levels to be between 70-100 but I’m not sure what they are as my GP surgery couldn’t find the results of my last vitamin d test.
My next bloods are at 8.40am so fits in well with that, I’ll make a note - thank you.
I’ve had no tests related to my stomach acid or anything and had mentioned to the consultant about my history of vitamin deficiencies and how fast my levels drop. I’m going to speak with my GP before taking any so that I don’t make anything worse.
All of those links and the information is super helpful, so thank you so much for that. I appreciate your time and knowledge very much
You are legally entitled to printed copies of your blood test results and ranges.
The best way to get access to current and historic blood test results is to register for online access to your medical record and blood test results
UK GP practices are supposed to offer everyone online access for blood test results. Ring and ask if this is available and apply to do so if possible, if it is you may need "enhanced access" to see blood results.
This currently only applies in England, not across the whole of the UK. Nether Scotland nor N.Ireland have released an NHS app for patients. (Scotland supposedly due in December '24.) Wales has an app, but only for booking appointments, repeat prescriptions and amending personal details
I have a couple of printed copies of my levels but it’s just the TSH and T4 levels. I’m seeing the doctor tomorrow so hopefully will have some more answers!
Separately - have you had or do you know if thyroid issues can cause extreme anxiety? The past couple of days I have been experiencing completely extreme nervousness and anxiety about everything. I am having a breakdown a day minimum and feel sick constantly. Do you know if that can happen?
Do you have on-line access to your medical records held at your surgery - if so can you please share the results and ranges of the blood test that prompted the prescribing on the Carbimazole ?
Carbimazole is an Anti Thyroid drug and blocks your new, daily, own thyroid hormone production - maybe it was just the dose of the Carbimazole that was too high for your T3 and T4 results ?
Can you see if anyantibodies were run - these would look like TPO - TgAB - TSI - TRab - or reading as a TSH Thyroid Receptor ab - with ranges and / or single number cut off levels ?
If you haven't on-line access please arrange this through the surgery receptionist as then we are better placed to help and answer your questions.
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Symptoms - sore throat/lungs hurting??
Non-Toxic Multinodular goiter?
Natural reduction of goiter and nodules
why wouldn't the consultant order a scan of a goiter ( I have confirmed Graves Disease?) 
HASHIMOTIOS and SULENT REFLUX
