Parathyroid advice - Is this the best group or is there a specific place we can go to post results for feedback

[Kisca]

Hello members 😀

My partner has parathyroid issues and was wondering is this the best place to post his results and get advice ?

Thank you very much for taking the time to respond !

Thank you , Kelly

[helvella Administrator Thyroid UK]

A very reasonable question and, while parathyroids are discussed here, the more specialist sites might be better able to help.

helvella - Parathyroid Links

The parathyroid glands are physically located by the thyroid gland but seem to have little other connection to thyroid disorder.

However, it has been far too common for parathyroid glands to be damaged by treatment for thyroid disorders - for example by surgery or due to radioactive iodine. Therefore parathyroid issues do get raised.

Hyperparathyroid UK (HPT UK)

hyperparathyroiduk.com/

Parathyroid UK

parathyroiduk.org/

And even the NHS site - a bit thin but better than I remembered it!

nhs.uk/conditions/hyperpara...

There is also the website of a USA parathyroid specialist. However, there has been some criticism that being commercial might have some influence on their judgment. However, it is a large and very detailed site.

parathyroid.com/

helvella - Parathyroid Links

Some links to parathyroid information.

Last updated 18/07/2024

helvella.blogspot.com/p/hel...

[Kisca in reply to helvella]

Thank you 🙏 so much will pass all info to my partner 👍

[SlowDragon Administrator]

As per your previous post

Low folate levels

Low B12

Low GFR

Definitely worth getting FULL thyroid and vitamin testing too

As these suggest low thyroid levels

[Kisca in reply to SlowDragon]

Thank you so much for responding 👍

[birkie]

Hi fellow parathyroid suffer here I'm on [Hyperparathyroid UK Action 4 change] its a great site and got me all the information I need to get my diagnosis, as the silly endos within the nhs were just gaslighting me😡 best of luck👍

[Kisca in reply to birkie]

Thank you so much !

We will take a look 👀

Much appreciated 😀

[Loseley in reply to birkie]

I recommend them too.