Has the new drug been released for Graves’ disease via apitope does anyone know about it ?

[Zahrazori]

over active thyroid Graves’ disease I was told there will be a new drug on the horizon

[Coulby]

Hi there..Gosh I havnt heard this in NZ ...What is the name of it? 😊

[Zahrazori in reply to Coulby]

It’s called ATX-GD-59,

I believe they did a trail phase one and it was successful google it type Apitope graves new drug

[helvella Administrator Thyroid UK in reply to Zahrazori]

Apitope were taken over by Worg Pharma.

WP1302

worgpharma.com/index.php?c=...

[Zahrazori]

has there been any success with this study

[Fruitandnutcase in reply to Zahrazori]

I think the first trials were successful. I was diagnosed with Graves in November 2012 and I first came across mention of it at some point probably in 2013 so it has been a long time coming.

For me (who has no medical knowledge) if I were young and being offered radioactive iodine or a thyroidectomy unless I had thyroid cancer I would want to hang on until it was on the market.

[Zahrazori in reply to Fruitandnutcase]

aw thank you for your reply I feel ever so poorly with graves I hope ur in remission

[Fruitandnutcase in reply to Zahrazori]

Yes, it’s a pretty awful condition. It affects your entire body in so many ways. I’ve been in remission since 2013 which is good. I hadn’t felt great for a long time before I reached a stage where a doctor finally made the diagnosis. Until then the symptoms were so vague that I felt as if I was seen as a bit of a hypochondriac.

I was stunned that after feeling so bad for so long I finally ‘had something wrong with me’. Imagine feeling glad to be told you had Graves’ disease 🤣. I was though because I had been told by a different doctor only three months before I reached rock bottom that ‘I think you’re needing your holiday’. We drove to the south of France in our camper van with me overdosing on Dr Bach’s Rescue Remedy gummies and spray to try and feel less stressed. Turned out I was needing a lot more than that.

I hope you can find out more and even get to try Apitope. I was in my late 60s when I was diagnosed and when I read about it I figured it wouldn’t be developed in time to benefit me but I saw it as a real hope for younger people - I didn’t expect it to take 10 years + though. Hopefully for the sake of so many younger people it will become available in the not too distant future.

Good luck with it all, I hope you can get into remission too, try to be kind to yourself, do do things you want to do rather than things you feel you ‘should’ do and get as much rest as you can which probably isn’t easy for someone younger, I was fortunate my children had left home and it was just my husband and I, plus I was working on a supply basis and could adjust my hours to suit how I was feeling.