Advice on Viral Response Please: Hello lovely... - Thyroid UK

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Advice on Viral Response Please

SilverSavvy profile image
11 Replies

Hello lovely people. I have only been on this journey for about three years or so but I recently had a virus (not Covid) that, latterly, knocked me off my feet for four days and then caused my heart to go a bit crazy. Beating too fast on and off post-virally. This also happened to me when I had Covid last year. Felt like my adrenalin was all over the place...sometimes whizzy, sometimes I was out cold sleeping. Was taken to hospital but heart was not responding badly at the time and so all the tests results seemed to indicate most things were normal. ( Further heart tests to follow.)

However, it's taken me two weeks to get back to feeling normal and being able to go for a walk without the weird heart spikes or needing to sleep a lot.

Is this it now, do you think? Does everyone with hypothyroidism take so long to recover? I did all the usual Get Well Quick things like rest, hydrate and eat well. I used to bounce back if I did it all correctly after about 5-7 days. But it seems to take longer now with each passing year and I am wondering if I am going to have to give up work :(

Any advice gratefully received.

ps. My most recent thyroid bloods were 'perfect' according to the docs. Can't say what they are as it's difficult to get to see the doc and they've now made it awkward to check out myself. However, I don't doubt them as I was feeling well balanced before the virus hit.

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SilverSavvy profile image
SilverSavvy
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11 Replies
FallingInReverse profile image
FallingInReverse

My opinion/experience. Short answer - kind of yes, for me. But it gets better as I optimize my free Ts and have more of a stable reserve of FT4 and good FT3 at any given time.

We really can’t say for you though without results - if you’re in the UK you are legally entitled to them through the receptionist or the app. If you’re somewhere else I would do everything possible to get copies - your health management depends on it!

Lastly - did you stay on 75 Levo for the past 6 months. You are likely under-replaced- which would contribute to the slow turnaround. I am still optimizing (at it for 2 years) and over the last 2 years I’ve had weeks/months to recover from some viruses or situations and have had serial viruses that have made me dip for months. So your question makes sense but we are all different and it depends on your Ts.

SilverSavvy profile image
SilverSavvy in reply toFallingInReverse

Sorry to hear about your virus experiences FiR...never stops giving this condition, does it :(

FallingInReverse profile image
FallingInReverse in reply toSilverSavvy

Yeah - I had quite a run from about November through maybe March… fatigue, involuntary naps, quite the challenge. I couldn’t believe how long I dipped for.

But I will say that it’s my blood test results, the advice from this board for titration , and then re-testing every ~6-8 weeks or so that give me hope. Against how I felt I could see my Free ts were getting better but I had room to be even better than that.

Even if you feel ok… it’s possible you’re not optimized and therefore viruses knock you out for longer. When not optimal just about anything can do that to me… I’ll be ok then - too much physical exertion, emotional stress, an hour less sleep, one drink, etc etc and I don’t recover.

So it will be helpful to see exactly what your tsh, ft4 and ft3 are.

We always have to manage this disease and pace ourselves… but in the early years I think we all spend a lot of time inching up to optimal. Prob never perfect and prob never like it was! But at least a little better than it is now.

Keep us posted. Good luck with the nhs app !!!

SilverSavvy profile image
SilverSavvy in reply toFallingInReverse

Interesting..especially the stuff about physical exertion and emotional stress. Too much of either floor me too :( I will just have to keep on trying for optimisation. I wish the NHS tested my vits at the same time as my thyroid: would be so much easier to know what's amiss. Unfortunately, I mostly have to go private for those.

SlowDragon profile image
SlowDragonAdministrator

as FallingInReverse says

You’re legally entitled to copies of your own blood test results

SilverSavvy profile image
SilverSavvy in reply toSlowDragon

Hi both, thanks. I will get them somehow. Due to speak to doc before too long anyway. Will try again on the system but they've introduced a new one and it was really complicated to get onto last time I tried (previously great, so that's a shame.) I'll post them when I have obtained.

Anthea55 profile image
Anthea55 in reply toSilverSavvy

Usually best to ask at reception for blood test results. You don't have to wait to speak to the doctor.

SilverSavvy profile image
SilverSavvy in reply toAnthea55

Tks. Avoiding the surgery presently! But will get the numbers one way or another soon

Bertwills profile image
Bertwills

Covid tests are not very reliable. It’s possible you have had it again recently, there is a new strain that is causing many people to get it at the moment.

As no central testing is being done nobody knows how many people are affected but hospitalisations & deaths from COVID have both increased in the last month, every week. Locally my village has been very affected including many immunised people.

Selenium & echinacea might be worth supplementing as both help .

Bertwills profile image
Bertwills

interesting article I’ve read which clinically examines supplements to help treat or recover from COVID or other viruses. Sorry you’ll have to search for it as I can’t link, just a photo.

Supplements to use against Covid article
SilverSavvy profile image
SilverSavvy in reply toBertwills

Tks Bertwills. Will look into it

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