New member in need of some advice : Hi đź‘‹ I... - Thyroid UK

Thyroid UK

139,084 members • 163,227 posts

New member in need of some advice

TDL131 profile image
TDL131
•9 Replies

Hi đź‘‹ I developed a goitre about 10 years ago (in my 30's) scanned fairly regularly and reported as multi nodular and GP monitoring/ignoring

Recently feeling really tired, sluggish bowels, nails are all ridged and generally feel lousy.

Bloods at GP attached, advised to just monitor but really don't feel right and weight gain is really depressing me, I exercise 5 x 30mins per week and regular long hikes and just seems to be getting bigger.

Any advice welcome.

Written by
TDL131 profile image
TDL131
To view profiles and participate in discussions please or .
9 Replies
•
greygoose profile image
greygoose

Hi TDL131, welcome to the forum. :)

FT4: 14.9 pmol/l (Range 11.5 - 22.7) 30.36%

Not surprised you don't feel well, your FT4 is very low - should be at least 50% through the range.

What time of day was the blood draw for this test? Because your TSH is low compared to your FT4, which makes me think it was probably done early afternoon? TSH is highest early morning - before 9 am - and as the TSH is all doctors tend to look at, we need it as high as possible.

A multi-nodular goitre sounds like Autoimmune Thyroiditis. Have you had TPO and Tg antibodies tested? If not, that's the next thing that needs doing.

And also stop all that exercise! It is not going to make you lose the weight and will probably make you put more on by making you more hypo. Just gentle walking until you get all this sorted. :)

TDL131 profile image
TDL131 in reply to greygoose

Thanks for the reply, 8am bloods. I have a repeat appointment so will ask for the bloods you mentioned.

greygoose profile image
greygoose in reply to TDL131

You're welcome. :)

J972 profile image
J972 in reply to TDL131

Are you taking any supplements containing biotin by any chance? Biotin in certain doses can affect blood test results.

TDL131 profile image
TDL131 in reply to J972

No, just on the contraceptive pill, no supplements, no other meds.

SlowDragon profile image
SlowDragonAdministrator

just testing TSH and Ft4 is completely inadequate

For full Thyroid evaluation you need TSH, FT4 and FT3 tested

Also both TPO and TG thyroid antibodies tested at least once to see if your hypothyroidism is autoimmune

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease

About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high TPO and/or high TG thyroid antibodies

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis.

Both are autoimmune and generally called Hashimoto’s.

Significant minority of Hashimoto’s patients only have high TG antibodies (thyroglobulin)

20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis

In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

Post all about what time of day to test

healthunlocked.com/thyroidu...

Testing options and includes money off codes for private testing

thyroiduk.org/testing/

Medichecks Thyroid plus BOTH TPO and TG antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes BOTH TPO and TG antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Only do private testing early Monday or Tuesday morning.

Link about thyroid blood tests

thyroiduk.org/testing/thyro...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism

thyroiduk.org/signs-and-sym...

Tips on how to do DIY finger prick test

support.medichecks.com/hc/e...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

Come back with new post once you get results

TDL131 profile image
TDL131 in reply to SlowDragon

Thanks for the reply, will look at all the information you've added đź‘Ť

Helene- profile image
Helene-

hi, so sorry to hear that. I don’t know about your dosage and blood tests, but concerning your goitre and nodules, did you have an operation to remove them? I hope yes. My daughter, when she was 15 had a goitre and one big nodule. Operation, one love removal. Usually operation is the first immediate step. And to find the right dosage of Levothyroxine is the seccond step.

For your weight, I’m sorry about that as this is hard psychologically, you exercise, this is good, but not enough, diet is way more important. Diet is the most important. Exercise will just tone your body and maintain you in good health. But to loose weight, you have to eat healthy, and in reasonable proportions. Forget sauces, sugar of every kind, snacking. Try intermittent fasting, it works great, accelerate your metabolism, and keep you in good health on the long term. I do it since years, and I will do it for life, so good it is.

Weight gain is not always related to thyroid. It can be related to many other conditions, or no conditions at all, you can simply be insulin resistant, and this will not make you burn the calories. And if it is the case, intermittent fasting will solve your problem, believe me, I did it and will do it for the rest of my life. I love it, and I eat good, I am never hungry, I just eat in specific hours, from 11:00 to 18:00, that’s all. Now that I’m stable, sometimes on the WE, I eat more, or I eat later if I go to the restaurant. But I keep eating healthy at the restaurant. But this is only when you feel really stable with ideal weight. In the beginning you have to try to be strict. You body will thank you:-)

Try this. You have on one side your thyroid problems, but if on the other side you can reduce the weight, it will make you feel so much better. Because it might be not related at all. You know there is no medecine for that, only diet, new habits, but believe me it’s great to do it, it is like a little gift you do to yourself.

I started in the beginning of perimenopause dieting, which means for me eating healthy, not counting calories, I hate that stress. My body was changing and I noticed I was gaining weight. I started intermittent fasting, I was always putting the food I had to eat in one single plate. (I still do) Not more. Nice good stuff. Paleo style. Grilled meat/fish and vegetables. But you can be vegetarian if you prefer, no matter. No sugar, no crab, no processed food. No sodas, only water and tea. I was eating Mediterranean, with olive oil, squeezing lemon everywhere (lemon is effective!). Well, I became another woman. I am 59, skinny, feeling good. I do a little exercise (not hard) at home, I do yoga, I dance, I cycle (I use my bike as transport as much as I can). I don’t do hard sport,

If you don’t have much time to cook, do like me: I take one day per week, or one evening per week, to cook many meals, I froze them or just put them in the refrigerator. I just have to reheat them gently at the oven to eat quickly after work. I bring one of my meal for lunch. no more sandwich, mayonnaise and all the crab. only good and healthy stuff.

Why don’t you try this too?

I wish you the best. Hope you will feel better. The endocrinologist will help you for your thyroid. But for the weight, it is a real change that you have to operate and it is so worth it, I know you can do it too:-) after one week you feel already so relieved, feeling better, and when you will weight yourself, you will have motivation!!!! Because this works for real.

TDL131 profile image
TDL131 in reply to Helene-

Appreciate the message. Not had any surgery, just monitoring and felt well so didn't question it. I eat a really healthy diet, don't fast but stear clear of processed foods, eat fish and small amounts of white meat, no red meat, eat loads of veg and fruit, but try to limit sugary fruits.

I will see GP again and if no joy will look for a private endo.

I do exercise, but as a family we are planning the 3 peaks challenge so need to keep fitness up for now and then will review this after.

I may look into intermittent fasting, thanks đź‘Ť

You may also like...

Hi new member here, advice and experience needed.

testing these two things and sending me on my way. Im really at breaking point with it all. Is...

Blood test ok? Some advice on this please (new member)

when I found out I was iron deficient and was advised to get a print out and upload it if anyone can

New member feel very alone could use some advice

levothyroxine. I was previously taking 150mcg. I feel very alone with being underactive and my...

New to this and need some advice.

are; TSH 0.11. Free T3 6.4. Free T4 22.0. She advised drop the Levothyroxine to 100mcg. I would like

New member after advice

anything as in normal range. Exhaustion and Weight gain really getting me down but gp insists...