Carbimazole dosage?

[Jay_may]

Hi, was unwell last October but was told I didn’t have any thyroid issues but by April I was told I have hyperthyroidism and Graves’ disease but at this time all my symptoms went away and I was feeling great for the last few months but my dr said I had to start Carbimazole (30mg once a day ) I did just over a week ago and I feel like all my symptoms have come back, palpitations, tired all the time, shakey etc. I’ve seen other posts and it seems my dosage is quite high, could that be what’s making me feel so unwell? Apart from telling me what I have I’ve been giving no info or help about these conditions at all.

Thanks

[PurpleNails Administrator]

welcome to forum.

30mg is moderate starting dose. Max is 60mg. It takes time to lower levels as it works by reducing production of NEW hormone.

What is your current FT4 & FT3? because carbimazole dose need to be adjusted by these (not TSH). TSH might stay low for a prolonged time. Mine hasn’t recovered yet & I’ve taken carbimazole 5 years.

was Graves confirmed by positive antibodies trab or TSI? Other antibodies can be present but Trab / TSI should be tested. There are other reasons for hyper & you need to ensure the hyper is not transient.

Carbimazole can lower levels too quickly if levels naturally drop & carbimazole is lowering production.

[Jay_may in reply to PurpleNails]

I have these test results from my nhs app, I’ve only been told verbally over the phone that I have graves and hyperthyroidism, I was given no other information.

Test

[PurpleNails Administrator in reply to Jay_may]

There’s no FT4 result & no mention of FT3. Only says elevated. That could be .01 over “normal range”. In which case it’s difficult to say if dose is appropriate.

GPs often say they aren’t authorised to test TRab, TSI antibodies. Usually hyper patients are referred to endocrinology & this is then arranged.

Graves is the most common cause of continuous hyper, but that can’t be diagnosed on suppressed TSH / elevated FT4.

[pennyannie]

Hello Jay_may and welcome to the forum :

Can you possibly type in any information that appears in these blacked out screen shots above ?

If you go into ' More ' and then ' edit/ you can just write these details in this first post/question.

Ideally before being told you have a diagnosis of any disease an antibody blood test should have been run as the proof of the diagnosis and for Graves you need positive and over range -

TRab - TSI - or TSH Receptor antibodies and hopefully a TSH, Free T3 and Free T4 reading :

Since it sounds like your symptoms were transient this might actually be Hashimoto's which starts off in a similar way to Graves and why it's essential that the antibody reading is run - as Hashimoto's is a different antibody reading of TPO abs - and not treated with an Anti Thyroid drug such as Carbimazole.

Hopefully - you have more information there so then we can see what your blood test actually reveals and be able to explain things more clearly for you.