What Is It

[Luna2024]

hi,

Can anyone please explain to me why my thyroid glows really red and you see the full outline of it. My sister had her Thyroid removed due to cancer and she is baffled by it herself. The picture doesn’t give it justice to how red it goes

This can feel hot internally within throat also as externally too. Causing a blazing sensation of heat rising towards my skull but stops there. Has anyone any ideas why this would happen or what would cause this to glow red seeing the whole butterfly effects name sake. This isn’t itchy in any way either on top of a hoarse voice more days than none.

Thanks all in advance who might have an answer for me as a man I see from reading the thyroid problems effect’s women more than men. This is baffling to me and don’t know what to do. I had paid for a private test before and was told that’s rubbish. That in last few years this was wrongfully dismissed as rubbish wrongly.

[SlowDragon Administrator]

welcome to the forum

Please add that you are male and approx age to your profile

You have MS?

Autoimmune

Having one autoimmune disease makes others more likely

PPI like omeprazole will lower vitamin levels

For full Thyroid evaluation you need TSH, FT4 and FT3 tested

Also both TPO and TG thyroid antibodies tested at least once to see if your hypothyroidism is autoimmune

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease

About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high TPO and/or high TG thyroid antibodies

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis.

Both are autoimmune and generally called Hashimoto’s.

Significant minority of Hashimoto’s patients only have high TG antibodies (thyroglobulin)

20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis

In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

Post all about what time of day to test

healthunlocked.com/thyroidu...

Testing options and includes money off codes for private testing

thyroiduk.org/testing/

Medichecks Thyroid plus BOTH TPO and TG antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes BOTH TPO and TG antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Only do private testing early Monday or Tuesday morning.

come back with new post once you get results

Please add results from previous private test

I had paid for a private test before and was told that’s rubbish. That in last few years

[Luna2024 in reply to SlowDragon]

My thyroid results were as follows

Total Thyroxine (T4) 45 mol/L outside range minimum 58-161 mol/L

Thyroid Stimulating Hormone TSH 0.38 outside range on lower end

Free Thyroxine (FT)4 12.9 pool/L inside range

This is central Thyroid Regulation & Activity.

This explains the brittle nails, that flake etc…

Free T3 2.6L this was outside normal range 2.8-6.5 pmol/L

It’s not immune as those are in green zones for both.

Feeling I know my levels should be higher than they are I asked if I had no MS and all the medicines I’m on what would my real levels of Thyroid be? No one answers because these are really low explains lots of issues I have. That Dr’s. Use MS as problem for them is easy solution to use. As all these could be MS is wrong thinking from many Dr’s. As I feel these issues are causing pain I never had before. Since my MRI’s have been stable with three lesions in 7 years is damn awesome considering other personal issues among that I had to deal with including diverticulitis having one extremely bad attack put me in hospital.

[Luna2024 in reply to Luna2024]

also I forgot to mention I have a 12 mm Pineal cyst seen since 2013 not 2005. Two spinal cord lesions 1.7 cm in size and one .7 mm in size beside each other nearly.

Could the cyst be causing peripheral damage to keeping warm in a warm home.

[humanbean]

People with thyroid disease are usually said to be 90% female. In fact most autoimmune diseases are majority female, although I doubt the female percentage is the same for every autoimmune disease.

I am under the impression that autoimmune diseases in general are getting more common than they used to be. I am also under the impression that more men are joining this forum now than was true when I first joined in 2013.

Just for info, you might find this list of interest :

en.wikipedia.org/wiki/List_...

Some diseases are thought likely to be autoimmune but this hasn't been confirmed yet in all cases.

I read once a few years ago that over 70,000 substances and materials are now fed to people in food and medicines or are used in clothing or are used in farming or exist in soil and the atmosphere than there were in 1950. This could be one reason for the rise in autoimmunity.

[SlowDragon Administrator]

So you have below range Total T4, below range Ft3

What’s the range on Ft4?

Ft4 at 12.9 could be right at bottom of range is range is 12-22

Your probably looking at central hypothyroidism

bestpractice.bmj.com/topics...

This is where TSH (message from pituitary to thyroid) is not increasing and responding to too low a levels of thyroid hormones

You need a pituitary, adrenal and thyroid specialist

Roughly where in U.K. are you

next steps

Get BOTH TPO and TG antibodies and vitamin levels tested

Vitamin D, folate, ferritin and B12

An ultrasound scan of thyroid might be helpful too

[SlowDragon Administrator]

Here’s link for how to request Thyroid U.K.list of private Doctors emailed to you, but within the email a link to download list of recommended thyroid specialist endocrinologists

Ideally choose an endocrinologist to see privately initially and who also does NHS consultations

thyroiduk.org/contact-us/ge...