Questions for GP: I recently posted that my... - Thyroid UK

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Questions for GP

Weedslayer profile image
18 Replies

I recently posted that my thyroid gland suddenly enlarged - sore neck, buzzing ears, v tender joints & had cough for weeks. (Also had years of tiredness, aches/pains & have rheumatologist appnt booked) . Couldn’t get GP appnt but sent photo & blood tests immediately organised by GP before a f2f appnt. Tests all back but only specific thyroid done was Serum TSH level (4.19 ) so in range. All others were FBC, & for liver/kidney/diabetes/bone profile - all within normal ranges (good to know!)

Apart from insisting on ultrasound for goitre, should I be asking for more thyroid related blood tests - or could just do privately for ease. Since reading up about thyroid problems & matching my symptoms, I do feel this is a possibility that needs further exploration.

All new to me, so apologies if sound naive!

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Weedslayer profile image
Weedslayer
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18 Replies
Weedslayer profile image
Weedslayer

sorry, no idea why the TSH range disappeared. It’s 0.35-4.94.

greygoose profile image
greygoose

Hi Weedslayer, welcome to the forum. :) When can you come round and slay a few weeds for me? 🤣

You don't need a range for the TSH because a TSH is always a TSH and it should be around 1. So, yours is high, even though it's within the useless range - just being 'in-range' is pretty meaningless anyway. And your TSH is saying that you're hypo.

You do need a lot of other tests to get the full picture, but unlikely your GP would ever do them all, so getting them done privately would be the easiest solution. You need:

TSH

FT4

FT3

TPO antibodies (very likely that you have autoimmune thyroiditis=

Tg antibodies

vit D

vit B12

folate

ferritin

Details of private testing here:

thyroiduk.org/testing/priva...

:)

Weedslayer profile image
Weedslayer in reply to greygoose

Ha! Can you tell how I spend most my free time?! Thanks for the response. I’ve booked private bloods but now struggling to contact anyone at GPs to push for a scan. 10 days since goitre appeared.

greygoose profile image
greygoose in reply to Weedslayer

Yes, I've heard it can be difficult to get an appointment in the UK. Here in France, where I live, we hardly have any doctors to get an appointment with! It seems to be a wide-spread problem. :)

SlowDragon profile image
SlowDragonAdministrator

For full Thyroid evaluation you need TSH, FT4 and FT3 tested

Also both TPO and TG thyroid antibodies tested at least once to see if your hypothyroidism is autoimmune

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease

About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high TPO and/or high TG thyroid antibodies

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis.

Both are autoimmune and generally called Hashimoto’s.

Significant minority of Hashimoto’s patients only have high TG antibodies (thyroglobulin)

20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis

In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

Post all about what time of day to test

healthunlocked.com/thyroidu...

Testing options and includes money off codes for private testing

thyroiduk.org/testing/

Medichecks Thyroid plus BOTH TPO and TG antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes BOTH TPO and TG antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Only do private testing early Monday or Tuesday morning.

Link about thyroid blood tests

thyroiduk.org/testing/thyro...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism

thyroiduk.org/signs-and-sym...

Tips on how to do DIY finger prick test

support.medichecks.com/hc/e...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

Weedslayer profile image
Weedslayer in reply to SlowDragon

Thank you. I’ve ordered blue horizon’s gold. My immediate concern is persuading GP to arrange ultrasound on the enlarged thyroid! Annoying thing is I’ve also had a referral in Jan for tingling / weakness left neck to hand & fingers - been triaged & waiting next steps. Sounds like that could even be connected from reading articles on here.

SlowDragon profile image
SlowDragonAdministrator in reply to Weedslayer

You can get your own ultrasound for £100 approx

Weedslayer profile image
Weedslayer in reply to SlowDragon

Thanks. Where do I go for this? Any private hospital ? Will they do it without a referral?

SlowDragon profile image
SlowDragonAdministrator in reply to Weedslayer

Roughly where are you in U.K.

thyroiduk.org/?s=Ultrasound+

London option

thyroiduk.org/testing/priva...

But there are others around the U.K.

arTistapple profile image
arTistapple

If it’s too difficult to see a GP (this is a terrible state of affairs) can you write asking for an ultrasound. We have a new system at our GP where every morning you have an opportunity to fill out a ‘triage’ style form. A doctor then views your form and will decide what to do. It’s not a perfect system but it’s better than phoning and getting an appointment two weeks to a month in advance!

Otherwise I would arrange privately as SlowDragon advises. At least then you could get a move on. All this stuff just stretches out and takes forever. Good luck.

Weedslayer profile image
Weedslayer in reply to arTistapple

Thanks. We do have the same system but GP suggesting as bloods are ‘normal’, scan unnecessary. I’d have thought all more reason for scan as no known cause for enlargement. No f2f yet so hasn’t been examined - not sure they can make that decision? Longstanding cough, pain both sides neck, buzzing ear, tingly lips, tightness, feel like something in throat & today, whilst teaching , voice went croaky. Booked 1st available appnt - mid June☹️ Probably viral/bacterial thyroiditis but I’d like to rule out anything more sinister.

arTistapple profile image
arTistapple

OMG that’s ridiculous! The problem off course is that nothing thyroid (short of unconsciousness) is considered important. And off course ideally an examination would be good, but you know you have a goitre. From the sounds of it (and your history) it’s unlikely to be an infection - and if it was, I don’t think waiting for all those weeks is going to work! A&E?

Weedslayer profile image
Weedslayer in reply to arTistapple

He knows I have a goitre as I sent a photo as requested by surgery.

arTistapple profile image
arTistapple in reply to Weedslayer

This is a difficult one. The NHS just is not fit for purpose at the moment.

Weedslayer profile image
Weedslayer in reply to arTistapple

Also, definitely not an infection as all bloods came back fine. That actually makes me more concerned?! ..

FallingInReverse profile image
FallingInReverse in reply to Weedslayer

Which bloods in particular “came back fine”?

serenfach profile image
serenfach

I dont know if this would work, as I have never tried it, but just a suggestion. Phone 101 and lay it on thick - trouble breathing, dizzy, tingling lips, feel faint... Tell them you are having trouble getting a GP appointment and are now scared you will pass out.

A friend, a few years back, was having a lot of pain and very heavy continuous periods. GP not interested. So me carrying a bag with essentials and her trotted off to M&S, and she lay down and I started screaming for help. Ambulance arrived, long story short, she saw the Gyni within an hour and had a small op later that day. M&S sent flowers!

We joke about it now as we are two old hags, would probably be locked up somewhere now!

Weedslayer profile image
Weedslayer

update: managed to see a different GP who has referred me to endocrinologist. He said goitre & top of normal + symptoms warrants further investigation so hopefully all will be fine in the end.

Thanks to everyone for all the advice - really appreciated.

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