test results : hello, I’ve had my recent... - Thyroid UK

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Kimmi01 profile image
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hello, I’ve had my recent medichecks results back and I don’t really know what they mean. The cover letter says that I’m on the correct dose of levothyroxine and my levels are fine.

As I’m still exhausted and struggling I’d appreciate any advice you could give me. Thanks so much in advance 😁

btw I’m trying to add more than one photo and my phone won’t seem to let me.

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SlowDragon profile image
SlowDragonAdministrator

you can’t add more than one photo to opening post

Add further images as replies in this post

looking at previous post and profile are you still only on 50mcg ?

This is only the standard STARTER dose

Free T4 (fT4) 16.5 pmol/L (12 - 22) 45.0%

Free T3 (fT3) 3.5 pmol/L (3.1 - 6.8) 10.8%

Was test done early morning and last dose Levo 24 hours before test

Which brand of levothyroxine are you taking

How long have you been on 50mcg

See/contact GP for next dose increase in levothyroxine to 75mcg

Kimmi01 profile image
Kimmi01 in reply toSlowDragon

Thankbyou. I have only just - for the past 4 months - been on 50, I was started on 25. I had a bad reaction to the teva levothyroxine but have had others, currently workhardt. My test was done at 9am and I hadn’t taken my levo that day - so over 24hrs.

SlowDragon profile image
SlowDragonAdministrator in reply toKimmi01

Many, many people react very badly to Teva

Teva is ONLY brand that makes 75mcg so instead insist on 3 x 25mcg Wockhardt initially

once established on 75mcg you might experiment with trying Accord or Mercury Pharma

unless extremely petite, likely to need further increase in Levo in coming months

Even if we frequently start slowly, most people need to increase levothyroxine dose slowly upwards in 25mcg steps (retesting 6-8 weeks after each increase) until eventually on, or near full replacement dose

pathlabs.rlbuht.nhs.uk/tft_...

Guiding Treatment with Thyroxine:

In the majority of patients 50-100 μg thyroxine can be used as the starting dose. Alterations in dose are achieved by using 25-50 μg increments and adequacy of the new dose can be confirmed by repeat measurement of TSH after 2-3 months.

The majority of patients will be clinically euthyroid with a ‘normal’ TSH and having thyroxine replacement in the range 75-150 μg/day (1.6ug/Kg on average).

The recommended approach is to titrate thyroxine therapy against the TSH concentration whilst assessing clinical well-being. The target is a serum TSH within the reference range.

……The primary target of thyroxine replacement therapy is to make the patient feel well and to achieve a serum TSH that is within the reference range. The corresponding FT4 will be within or slightly above its reference range.

The minimum period to achieve stable concentrations after a change in dose of thyroxine is two months and thyroid function tests should not normally be requested before this period has elapsed.

Some people need a bit less than guidelines, some a bit more

Kimmi01 profile image
Kimmi01 in reply toSlowDragon

Thanks so much, I have a lot more reading to do. It’s all very very confusing.

SlowDragon profile image
SlowDragonAdministrator

You mention Lichen sclerosus in your profile

This is autoimmune

So your hypothyroidism is likely autoimmune even though both antibodies are currently negative

Request ultrasound scan of your thyroid via GP

20% of Hashimoto's patients never have raised antibodies

healthunlocked.com/thyroidu...

Paul Robson on atrophied thyroid - especially if no TPO antibodies

paulrobinsonthyroid.com/cou...

Gluten intolerance is often a hidden issue too.

Request coeliac blood test BEFORE considering trial on strictly gluten free diet

Gluten free frequently gives benefit for autoimmune thyroid patients

Also may help with LS

lssupportnetwork.org/lichen...

Kimmi01 profile image
Kimmi01 in reply toSlowDragon

Thank you so much. I’ll work on all of that. I do know that I’m much better trying to be gluten free, and sugar free too actually, but I’m not overly strict with this so I’ll try to get tested on that too.

SlowDragon profile image
SlowDragonAdministrator in reply toKimmi01

No point testing for coeliac unless eating high levels of gluten

Recommend you just ensure you are absolutely strictly gluten free

I was diagnosed many years ago with lichen sclerosis which i actually had from childhood. I had an awful operation which they’ve actually stopped doing because it’s pointless, and have cream to keep it at bay. Also chronic sinusitis and post nasal drip

Lichen sclerosis is autoimmune - frequently improves on strictly GF

Also recommend trialing strictly dairy free for post nasal drip and sinusitis

Approx 50% of autoimmune thyroid patients find dairy free helpful or essential

Excess mucus often indicates dairy intolerance

Kimmi01 profile image
Kimmi01 in reply toSlowDragon

Thank you. I’m pretty much dairy and gluten free so I’ll continue with it thanks

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