ozempic and hashimotos : hi my bmi is now over 3... - Thyroid UK

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ozempic and hashimotos

Rowing2 profile image
39 Replies

hi my bmi is now over 30 , my weight is Totally out of control and I’ve now put in over 3 stones. I’ve started reading about nhs possibly giving ozempic if bmi is high , but then I read an article which said the other benefits were is helps heal the gut which in turn can help hashimotos. Has anyone else heard of this? Many thanks as always

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Rowing2
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RedApple profile image
RedAppleAdministrator

Rowing2, ' I read an article which said the other benefits were is helps heal the gut which in turn can help hashimotos. '

Please post a link to this article so that others can read it and be able to discuss with you.

Rowing2 profile image
Rowing2 in reply to RedApple

I have looked everywhere and am at a loss to find what I read it. I was about 2am, but I hadn’t saved it.🙈nhs guidelines say , however, if your bmi is over 30 which mine now is, you can request it.

FallingInReverse profile image
FallingInReverse

For context, can you also let us know your current thyroid hormone replacement dose and your latest thyroid results.

I scanned past posts and you definitely had a time of it - what was the resolution ?

Rowing2 profile image
Rowing2 in reply to FallingInReverse

Hi there I still have no resolution 🥴. I’m now taking 100 mg levo , b12 injections every three months , taking selenium, vit d3 with k2 and berberine . I had my last bloods taken last week but they were incorrectly do I have to have them redone , I’ll let you know the results. Thank you so much for replying snd trying to help I’m very grateful . I’m also awaiting to see a rheumatologist , however was sent an appointment for a physio 🤯instead snd I’m hoping through Benenden to see a food allergy clinic

FallingInReverse profile image
FallingInReverse in reply to Rowing2

I'm glad you got such good relevant responses here.

I look forward to your next bloods.

And also keep us posted on your food allergy exploration! I've had a food/allergy theme my whole life and haven't started to really get to the bottom of it.

Rowing2 profile image
Rowing2 in reply to FallingInReverse

Hi I’m just waiting fir the letter back from the gp. to send to Benenden, I’ll let you know the outcome. Take care and thank you for caring

Aj2690 profile image
Aj2690

hey! I started semaglutide in Jan and have Hashimotos. I pay for it though. I haven’t seen any benefits yet, only had pretty awful side effects, however I have lost a stone. Let me know if you have any questions.

Rowing2 profile image
Rowing2 in reply to Aj2690

hi there, thank you so much for replying. How do you feel now. Are you on a continuous dose and was your bmi under 30 . Thank you again I’m super grateful for any advice

Aj2690 profile image
Aj2690 in reply to Rowing2

Omg I’m so sorry, I’ve just seen your response. So I had to stop for a little while until I had an endoscopy so I’m starting again at the moment. I’m still on the low dose and I find it great for reducing hunger symptoms, however my iron has completely dropped off so I’m unsure if that’s related, due to the low iron I’ve felt worse than usual. My bmi is currently 28 but probably was over 30 when I started (I gained 4 stone when my thyroid went nuts). Let me know if you have anymore questions.

london81 profile image
london81

I started on semaglutide which helped my weight loss simply by making me unable to eat. I’m now on ozempic ( paying £200 a month). It’s helped me maintain my weight alongside seeing a private thyroid doctor who monitors my levels. My antibodies are up, so it’s not cured hashimotos in any sense. It also comes with risk of thyroid cancer so if you do try it weigh up the risks and be willing to closely monitor all your thyroid and related levels

Ciri profile image
Ciri in reply to london81

Hi, could you let us know where you source yours from? I was looking into Second Nature and that package worked out around £57 per week to titrate onto. Thank you 😊

Rowing2 profile image
Rowing2 in reply to london81

thank you so much for the advice. I’d read about the thyroid cancer ( does that mean all diabetics also have that risk). I am at the moment taking supplements of selenium . The last consultant I went to said it can reduce antibodies , I’m awaiting bloods and have no idea how long it takes, or even if that’s true, but I will let you know the results , mine were I think 1,700 before . Was your bmi over 30 and how are you now

Rowing2 profile image
Rowing2 in reply to london81

is semaglutide cheaper than ozempic and is that why it’s seems to be the first option

RedApple profile image
RedAppleAdministrator in reply to Rowing2

Ozempic is just a brand name. It is semaglutide that is the active ingredient ozempic.com If you are hoping to be prescribed on NHS, they will probably opt for which ever is cheapest, but they are the same thing.

Rowing2 profile image
Rowing2 in reply to RedApple

thank you so much for your reply

Ciri profile image
Ciri

Hi, I'm in exactly the same situation as you, now considering approaching the GP, my BMI shot up over a year, so even clean eating and everything nutrition wise I can add is not keeping weight down .

Rowing2 profile image
Rowing2 in reply to Ciri

Exactly the same as me. I’ve never eaten anything that wasn’t freshly prepared , also when I came off t3 I put on another stone in 6 months. I feel like I’m an alien in someone else body.

Ciri profile image
Ciri in reply to Rowing2

Bless you, it's awful isn't it? I hate this extra weight. Don't look like myself at all. I have been offered a dietician appointment in a few weeks, although I'm not hopeful. They mainly seem to help eating disorders, people who struggle with "food noise" and overeat.I don't have those problems, just unexplained rapid weight gain.

My FT4 is low, plus off the charts antibodies, which is linked to metabolism problems.

I can see going down the private medication route and have been researching Tirzepatide. It's similar to Ozempic but is better suited to help this type of weight gain.

Rowing2 profile image
Rowing2 in reply to Ciri

Gosh we sound so similar. I’ve gone from ultra fit and healthy to not actually recognising myself. I feel like a fat lump. I still try to row, but am literally hauled into the boat and pulled out as I can’t do it myself. My hand is that bad now I tear food instead of cutting it snd break so much, it’s actually agony. Have you heard of Benenden , they fast track you and give you an amount for you to find who you wish to see gor the issue. You need a letter from your gp but it’s a fraction of the cost . That the route I’m going down at the moment gor allergies. Oh I’d never heard of that alternative thank you so much , I’ll take a look. You like me have weight gain totally unrelated to eating , it’s actually frightening isn’t it . I do think gut health also plays it’s part 😩

Ciri profile image
Ciri in reply to Rowing2

A regular day of eating is pretty much protein, more protein, lots of berries, seeds, leafy veg, fish, chicken and at least 2 litres of water, so I'm very aware what I'm putting into my body. I do agree, I call it my fat suit, and it breaks my heart.

Benenden are fantastic, we do have a membership. At the moment waiting for a NHS endo appt, so will probs fast track like you said

I'm so sorry to hear about your struggles, it's not uncommon with thyroid problems.

If these drugs can help us in dropping the extra weight and restart metabolic rate, they could be a blessing for people like us

You could regain fitness levels and get back to what you love doing.

The more common name for the injection is Mounjaro. I'd definitely suggest you read up about it's benefits

Rowing2 profile image
Rowing2 in reply to Ciri

god you are me??? All about protein , water and berries . Husbands a chefs s we used to have a healthy food business. Honestly makes me so cross when the last endocrinologists parting comment to me ,well it won’t come off on it’s own’ and he was a nicer one 🤯😩🥴🙈

Ciri profile image
Ciri in reply to Rowing2

Wow! Well if anyone is fully informed about nutrition is going to be you guys 😊 I see so many people on here distraught after being to the Endo, it's awful how some are treated, or not taken seriously. I've been at this over two years now it's only last summer the weight piled on, and my confidence left.

I am shocked he said that to you, they have no idea we have to live like this due to hormonal issues. There is a wealth of information and help on this great forum, it can make all the difference knowing you aren't alone.

I am happy to know there is help out there, even if I do have to fund it myself.

Rowing2 profile image
Rowing2 in reply to Ciri

he was the nice endo, the one before him I had to lodge a complaint against . Asked my educational background and career. Couldn’t get into his head and couldn’t understand I read case studies and was beyond furious that I had the audacity to take t3 without their consent. His name was the best🤣🤣🤣🤣🤣🤣🤣🥴 , but I was told I couldn’t say it on the forum . But it really did describe him to a tee 😜

Rowing2 profile image
Rowing2 in reply to Ciri

I’ll be think of you and hope you get all the help you need . Take care and so glad you’ve discovered Benenden too xx

humanbean profile image
humanbean

Did you know that low iron/ferritin can put on weight and make it harder to lose?

See this thread :

healthunlocked.com/thyroidu...

Marz profile image
Marz

Search the Internet for GreenMedInfo - where Sayer Ji has done an article on the topic today in his Newsletter...

Rowing2 profile image
Rowing2 in reply to Marz

thank you so much I will

Rowing2 profile image
Rowing2 in reply to Marz

hi I couldn’t find it 😩

Marz profile image
Marz in reply to Rowing2

greenmedinfo.com/content/gu...

Rowing2 profile image
Rowing2 in reply to Marz

I’ve just read it thank you. What I don’t understand is is this the same medication given for diabetes?

Marz profile image
Marz in reply to Rowing2

Think it's used for Type 2.. Try an internet search ?

radd profile image
radd in reply to Rowing2

Rowing2,

Ozempic is given to type 2 diabetics because it encourages more insulin (so helps control the amount of sugar in the blood), and reduces glycogenolysis (the glucose your liver makes).

It is given for weight control as also acts in the brain to reduce hunger, slows down food digestion and stomach emptying.

guysandstthomas.nhs.uk/heal...

Rowing2 profile image
Rowing2 in reply to radd

Hi there rad, thank you so much for your input . does that mean that diabetics have the same risks from this medication regarding thyroid cancer etc.

radd profile image
radd in reply to Rowing2

Rowing2,

Of course, and in addition many other conditions that under-medicated Hashi-hypo peeps might suffer anyway such as problems with the gallbladder, pancreas, kidneys, too low blood sugar (hypoglycemia - dizziness, vision issues, shakiness, anxiety, etc and increased with poor adrenal function).

If adding a little T3 to your Levo previously eliminated symptoms and helped maintain a normalised weight, and when withdrawn you gained symptoms and weight, it indicates your body requires T3 meds. Many of us requiring T3 have wrongly had our meds withdrawn and now buy our own either through a private prescription, or without .

This is one aspect for the popularity of the forum, and the camaraderie shown as members share T3 sources and their labs . If you think you need T3 meds, maybe this is a path you could consider?

radd profile image
radd

Rowing2,

Sorry you are having weight issues. I have no experience of ozempic so can’t comment re that. However, I notice two years ago you state you were doing very well on a Levo + T3 combo.

My weight normalised after I added a little bit of T3 to my meds several years back and I’ve managed to maintain this weight loss. Can I ask why aren’t you medicating T3 with your Levo now?

Rowing2 profile image
Rowing2 in reply to radd

I basically had many arguments with my consultants , one of which I made a complaint about as I had decided to take t3 myself. He was disgusted that I thought I knew better than him. All they looked at was tsh level results and because mine were under the basic levels they told me I was shortening my life🥴, even though I told them it made me feel better. I came off it , put on another stone and my tsh level zoomed to around 27 🤯 because they didn’t increase my levo at all. I think he wanted to teach me a lesson and told me I would feel terrible at first. I truly despair.

I’ve just had blood done we had slowly increased from the 50 mcg to now 100 . My results were t4 15pmol/L (9-23), t3 4.6 (3.5-6.5), tsh 0.29(0.35-5.5)and because of this the gp said via receptionist said reduce back down to 50mcg. I totally refused , so now I’m to continue 100 mcg until I next see the consultant again in 3 months. Truly it’s actually funny if it wasn’t so serious 🙈🥴🤯🤯🤯🤯🤯🤯

TiggerMe profile image
TiggerMe

Have you managed to get your B12, folate and ferritin levels up as they were all horribly low, a few months ago you were getting a B12 jab

Rowing2 profile image
Rowing2 in reply to TiggerMe

hi thank you for thinking of me, it’s so kind. In Jan my ferritin was 34 ng/ml(3.3-99,999) and folate 4.2 ng/ml ( 3.3 -99,999) because they just sneaked into range I was told they were fine. I argued my b12 as it was under,( but was told it too was fine )and got my first jab which I will get the second in may and then be retested . The b12 injection initially made me feel more clarity , but that has now disappeared . 😩😳

TiggerMe profile image
TiggerMe in reply to Rowing2

I think most of us supplement with a B complex and Vit D all year, many of us need iron too to stay optimised

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