after quite a push to get the endocrinologist to put me on T3 as levo was no longer working, I got my tsh down to 0.69 (my other levels are on this site somewhere) anyway did a medicheck blood test to check all the thyroid levels I had the nhs one on 3 rd January the medichecks one 31st Jan my tsh had risen to 28.7 so I sent the results to the endro who asked for an urgent thyroid test. Which I did on the 8 th feb it has come back with the tsh now at 39.4 ! No idea other levels but feel really tired at times. And a bit dizzy and sometimes breathless, it doesn’t help the that I am also 7 months with AFib 24/7 !
I am on 30 mcg but had increased myself to 42.5 mcg but he insisted that I reduce to what he prescribed and this is the result ! I know I have to take it in 5mcg amounts to increase but am furious I wasn’t listened to. They can’t do anything about the AF until the thyroid (tsh) is stable. I know all levels have to be okay but nhs don’t seem to bother but with medichecks they are all in the end of red zone including the antibodies
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Lilylui
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It seems to me that your treatment can't be monitored and dosed by your TSH only, and your endo (Note, not endro) is just constantly fiddling and messing things up.
T3 lowers TSH as you obviously know. But if the doctor is used to seeing results from people on T4-only he isn't going to understand your test results on T3 only. They won't be the same as they are for someone on T4 only and your doctor can't make your results look the same no matter how much he fiddles. The doctor will be trying desperately to keep your TSH in range when it simply might not be possible on T3 only.
Another problem is that doctors make huge increases and decreases in dose of T4 and/or T3 and make things even worse. They need a light hand when they make changes, not a sledgehammer, and changes in dose shouldn't be done too quickly either.
It is possible that you and your doctor are trying to achieve the impossible - keep your TSH in range, with Free T3 high in range (because you have no T4), and be symptom free.
Since you've bought T3 for yourself, I would suggest ditching the doctor, ignore your TSH, and raise your dose of T3 by 5mcg at a time, monitoring your Free T3, your symptoms, blood pressure, heart rate, and basal body temperature, and see how you feel.
Do you take anything for your AF? Or are you just being left to rot?
On blood thinners for AF my heart rate is high via AF if I do anything ! And thry can’t sort that until thyroid in control. The endo is a diabetic specialist we don’t have thyroid ones not where I am anyway.
Too be honest I can’t afford the private blood test, m6 last one was paid for by someone else or I could not have had it, and they won’t check for anything but T3. What should my free T3 be? I do have a book about it but with this brain fog!can’t seem to take it all in. I do know people are on T3 alone and do great.
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