any clues?: I posted recently about starting... - Thyroid UK

Thyroid UK

137,936 members161,765 posts

any clues?

Chumchum profile image
5 Replies

I posted recently about starting Thybon. I’m back with another post , feeling very despondent.

My t3 was 2.6 (3.1-6.8) while t4 was about 17. (12-22) It was suggested I start slow and add 5 initially to the 112 eltroxin dose and increase when tolerated to 10. I began and although my energy lifted and fatigue lifted I felt really bad brain fog/dizzy/detached symptoms 2 hours after taking Thybon, which would settle after a few hours. Increasing to 10 made it way worse with added sweating.. I tried lowering to 2.5, but the same brain fog/dizzyresult. I had to stop Thybon again as this brain fog was impacting my work significantly. Any clues or suggestions? I’m going to an Endo on Tuesday and thinking of asking for a trial of Armour. Would that be easier to tolerate? I’ve also sent away for a saliva cortisol test.

I took Thybon for many years on and off , since 2015 and always struggled with brain fog symptoms. Doc would raise it. No improvement. Tried naturethyroid and it was well until it was no longer available. Npthroid did not have the same effect and was often not available here so I went back on Thybon and Eltroxin. Brain fog returned. An endo I saw last year in relation to Empty Sella, suggested I stop Thybon and t3 would rise naturally. It didn’t ! But the awful brain fog symptoms stopped! Anybody ever had a bad reaction to Thybon?

I also am supplementing with methyl folate sublingual (Biocare) 400mcg plus added folate in a Biocare Vit B multi and after 8 weeks my folate levels are still only 9. They refuse to budge and never have been higher than 13. Any clues?

THANKYOU

Written by
Chumchum profile image
Chumchum
To view profiles and participate in discussions please or .
Read more about...
5 Replies
SlowDragon profile image
SlowDragonAdministrator

So you need to add T3 slowly

Did you split the dose of T3

Initially starting with 2.5mcg waking and…..a second 2.5mcg mid afternoon

Waiting at least a week before increasing morning dose to 5mcg

Waiting another week before increasing afternoon dose to 5mcg

Or possibly adding as separate 2.5mcg at bedtime

Then waiting at least 6 weeks before retesting

Important all four vitamins are at GOOD levels

What are vitamin D, B12 and ferritin levels

Week before test stop vitamin B complex

Chumchum profile image
Chumchum in reply to SlowDragon

Thanks Slowdragon - No I started on 5 as suggested here and after a week added 5. Then brain was so bad, I reduced to 2.5 morning and afternoon which didn’t make a difference to brain so I stopped. Maybe I need to go back and try again at 2.5 morning and afternoon.

Ferritin now 76

B12 now over 1,000

Folate a stubborn 9

Any suggestions for raising folate? Methylfolate 400 per day sublingual plus 200 in a methyl B complex is not shifting the level after 8 weeks

SlowDragon profile image
SlowDragonAdministrator in reply to Chumchum

Are you taking separate methyl folate in week before testing

Try 2.5mcg initially, add 2nd 2.5mcg mid afternoon

Then you might consider adding 3rd 2.5mcg dose either at bedtime or early evening if bedtime dose keeps you awake

3 doses per day roughly 8 hours apart

Hold at that for 6-8 weeks before retesting

See what results show

Before (possibly ) increasing morning dose to 5mcg

Chumchum profile image
Chumchum in reply to SlowDragon

Yes I kept up the folate the week before testing. Just don’t seem to be absorbing it.

Thanks for the suggestion - hopefully it’s just about adjusting to a smaller Thybon dose first. I’ll wait a week or so and try again🙏

McPammy profile image
McPammy

do you split your Thybon dose and leave 8hrs apart. This is important!!

Your symptoms sound like over medication if it’s a couple of hours after taking the Thybon. What was your T3 level before you added Thybon and what is it 2hrs after taking the Thybon??

You may also like...

hormone imbalance - any clues?!

severe ME, mostly housebound, tonne of debilitating symptoms, additional fibro diagnosis plus more....

My MediCheck Results any clues?

CRP HS: 2.01 mg/L FERRITIN : 128 ug/L 30 - 400 R FOLATE - SERUM: 18.39 ug/L > 3.89 R VITAMIN B12 -...

Please help...Results in! Haven't got a clue what any of it means!

in and state in normal range....words my doctor would use too! Any red flags or are they actually...

New and have no clue!

thoughts please? Should I insist on a referral to an endo? I just want to feel normal! Thanks, any...

Help with how to proceed

before an Endo suggested I stop it and see if t3 raised naturally with just eltroxin. I stopped t3...