hello again,
I’ve had the results from Medichecks and I was right as I feel tired after 10 hour sleep. I’ll attached a photo of my result. I was told my carbimazole needed to be reduced. I am on 5mg 3 Times a week. I am not seeing a gp until mid January should I just take 2 instead of 3?
thank you for any comments.
Could you stop completely? 15mg per week is a really low dose and your levels are far too low. I can’t remember if you’ve previously said stopping causes your levels to rise unexpectedly. If you’re reluctant to stop completely you could drop to 2x 2.5mg per week.
Stopping / reducing will allow them to rise. It might be that naturally your levels are in range or even still below optimal. I can’t see stopping 15mg would equate levels to rising above range, but you would know better how sensitivity you react to carbimazole.
What antibodies were tested previously? TPO, TG, TSI, TRab? I see from previous posts your had an ultrasound detecting nodules. Do these hyper function? Have you had uptake scan?
Was nutrients have been tested?
Might help if you condense your history in a bio as you have many previous posts and to offer the best advice it’s it best to clarify your diagnosis & previous treatments.
Ok. I’ll try to be short. In 2017, I was diagnosed with. having sub clinical hyperthyroidism . I had a scan. Found a goitre and 7 dormant nodules on my thyroid and put on 5 mg carbimazole daily. In May 2021, I started following a vit d and co-factors supplements protocol as my vitamin d was below 50. I tested TSH in November and my readings was 9 so I was advised to stop carbimazole for a month and test again. It went down again so they reduced to 3 a week and told to forget about the supplements. I wasn’t too happy about that and restarted the protocol 3 months ago. Medichecks told me today that my dose of carbimazole was too high. My cholesterol levels are also high every time my TSH goes up. I am convinced there’s a link between the vitamin d protocol and my thyroid. I will stop taking carbimazole this month and ask myGP to be referred to an endocrinologist. To my knowledge, I have never had the tests you mentioned. My mum was hyper with a noticeable goitre and had her thyroid removed. I want to avoid that if at all possible. I had the well-being advanced woman test from Medichecks.
What does dormant nodules mean? How was that diagnosed?
What antibodies have you had tested?
Your vitamin D levels are ok. So stick with supplement level to maintain it.
Have other nutrients been tested?
Hello again. The nodules were diagnosed on the scan in 2017. I was told they were not active. I think it’s better if I send you photos of results. I can't see what antibodies they tested. I am a bit puzzled by it all really. I really appreciate you having a look. Thank you
And now I can’t work out how to send you the photos. I’ll work it out eventually.
Unless the nodules are highly cystic (fluid filled) then it can’t be assumed they do not function (which I is assume is same as inactive). Only an uptake scan shows function, it can’t be discovered using ultrasound.
Of course you can decide the cause of your hyper it’s not relevant, (most doctors do) and continue to adjust carbimazole until levels “in right range” but if you determined the cause you could have a better understanding of fluctuations and if your hyper has potential for remission or not.
Medicheck advance tests TG & TPO, these appear with both hashis & Graves - as both autoimmune . Hyper Graves is diagnosed by positive TRab or TSI.
Photos can be attached by using sun & mountain icon. Or may be easier to type out eg show as - TSH 5.07 (0.27 - 4.2)
HelloI live in Australia. A, few years back . I was on this medication for about 2 to 3 months. When I started feeling better I reduced to 2 then 1. When I had my next test my reading was underactive thyroid instead of over-active so my doctor told me to stop and I haven't taken since. Regards Vicki
It’s also ESSENTIAL to test folate, ferritin and B12 at least annually
Likely to have low vitamin levels when hypothyroid, as you currently are
Similarly high cholesterol is linked to being hypothyroid
nhs.uk/conditions/statins/c...
If you have an underactive thyroid (hypothyroidism), treatment may be delayed until this problem is treated. This is because having an underactive thyroid can lead to an increased cholesterol level, and treating hypothyroidism may cause your cholesterol level to decrease, without the need for statins. Statins are also more likely to cause muscle damage in people with an underactive thyroid.
Bloods should be retested 6-8 weeks after each dose change or brand change in levothyroxine
For full Thyroid evaluation you need TSH, FT4 and FT3 tested
Also both TPO and TG thyroid antibodies tested at least once
Very important to test vitamin D, folate, ferritin and B12 at least once year minimum
About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high thyroid antibodies
Autoimmune thyroid disease with goitre is Hashimoto’s
Autoimmune thyroid disease without goitre is Ord’s thyroiditis.
Both are autoimmune and generally called Hashimoto’s.
Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease
20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis
In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)
Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins
Testing options and includes money off codes for private testing
Medichecks Thyroid plus antibodies and vitamins
medichecks.com/products/adv...
Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins
bluehorizonbloodtests.co.uk...
Only do private testing early Monday or Tuesday morning.
Link about thyroid blood tests
thyroiduk.org/testing/thyro...
Link about Hashimoto’s
thyroiduk.org/hypothyroid-b...
Symptoms of hypothyroidism
thyroiduk.org/signs-and-sym...
Tips on how to do DIY finger prick test
See detailed reply by SeasideSusie
healthunlocked.com/thyroidu...
Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee
Hi there,
We are all different, but in my experience any changes to your dose should be slow and consistent. I went through this process several times before I got it right. Instead of taking on alternate days I took a smaller dose every day - a pill cutter is an essential piece of kit, if you haven't already got one. So, for example, I went from 5mg a day down to 2.5 and kept to that dose until everything was stable then I reduced by half again and did the same.
Good luck!
Too much Carbimazole..
HYPER Carbimazole Dosage
Graves and Carbimazole update
Carbimazole 
Carbimazole Confusion
