second operation after TT: Hello everyone Is a... - Thyroid UK

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second operation after TT

stoyan profile image
22 Replies

Hello everyone

Is a second operation necessary for residual thyroid after TT and high antibodies?

Maybe someone has already gone through this?

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stoyan profile image
stoyan
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22 Replies
greygoose profile image
greygoose

Hi stoyan, welcome to the forum. :)

Which antibodies are you talking about? Why did you have a TT? I'm afraid we like to have all the details before venturing to say anything much. :)

stoyan profile image
stoyan in reply togreygoose

TT 2 years ago for Based's disease, 3 months after TT I felt bad and symptoms, after 1 year ultrasound, due to swelling around the incision. The result is a remnant/replica/ of thyroid. I take Tcaps137/weight 73 kg/. I tolerate it well.

greygoose profile image
greygoose in reply tostoyan

OK, so the antibodies are TRAB and/or TSI?

I don't know Tcaps, is that T4 only? Do you have any blood test results to share with us? How do you feel on that dose?

helvella profile image
helvellaAdministrator in reply togreygoose

Tirosint as marketed in France.

TCAPS – capsule molle Lévothyroxine sodique

Licensee

IBSA Pharma SAS, Parc De Sophia-Antipolis, Les Trois Moulins, 280 Rue De Goa, 06600

Antibes

ibsagroup.com/subsidiaries/...

Links to one dosage:

PIL 100 (French) base-donnees-publique.medic...

SPC 100 (French) base-donnees-publique.medic...

greygoose profile image
greygoose in reply tohelvella

OK, thank you. But I don't take T4 so am not aware of all the brands. :)

helvella profile image
helvellaAdministrator in reply togreygoose

Not for one moment suggesting you would be aware.

And I have no idea why it isn't called Tirosint everywhere! Why TCAPS in France and only in France?

stoyan profile image
stoyan in reply tohelvella

Tcaps/ Tirosint/made in Switzerland, with only gelatin, glycerin and water. 9 out of 10 patients tolerate it well, me too. Sold in Europe, USA, etc., under different names.

helvella profile image
helvellaAdministrator in reply tostoyan

Yes!

But I'd want to know why not Tirosint everywhere?

Table of IBSA gel cap products and brand names in various countries
stoyan profile image
stoyan in reply togreygoose

T4 only

Brightness14 profile image
Brightness14

A good experienced surgeon should not leave anything behind apart from your parathyroids.

stoyan profile image
stoyan in reply toBrightness14

Yes, but it is possible, the ultrasound registers it, then is it operated again? My surgeon is retired and no one wants a second surgery.?

Brightness14 profile image
Brightness14

I agree, here in France they don't do part removal only whole.

Whatever the surgery, I always choose the most experienced one with plenty of operations done. Then hope for the best.

stoyan profile image
stoyan in reply toBrightness14

Anticorps anti-thyroperoxydase =12.97 UI/ml /norm less than 5.61/I thought there were no antibodies after TT 2 years ago?

stoyan profile image
stoyan in reply toBrightness14

Après TT, je prends Tcaps137 /12 evro/. FT3 et FT4 sont normaux Je me sens très bien.

Brightness14 profile image
Brightness14

I really don't know anything about antibodies I only had my thyroid removed for cancer.

What a shame for you I hope everything goes well for you soon.

Brightness14 profile image
Brightness14

Can you give your exact latest blood test results for TSH, FT4, FT3 and include the ranges please. There isn't a normal as such just what keeps us well, we are all different. There should then be more replies for you. Are you living in France? We are here to help.

Brightness14 profile image
Brightness14

I forgot what is 12 evro please

helvella profile image
helvellaAdministrator in reply toBrightness14

I read that as 12 euros.

stoyan profile image
stoyan in reply toBrightness14

12 euros cost for 1 month Not refundable in France.

stoyan profile image
stoyan in reply toBrightness14

Tirosint = T4

Brightness14 profile image
Brightness14

Oh I see it now what a chump, thank you. I now I only have the sight in one eye and an ongoing ear tumour but really, showing my age now.

Brightness14 profile image
Brightness14

I have an exemption here in France because I have no thyroid all my medications, scans, operations, GP visits etc.etc. are free.

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