Follow up from GP call

[Doris11]

All of 11 mins discussing my blood results! Bloods Serum B12 221ng/L (<178) B12 active 49.2 pmol/L (37.5 - 188) NICE guidelines suggest borderline deficiency! Gp said all normal nothing wrong with me! Serum folate 3.8ug/L (less than 7 can indicate deficiency)

My memory and concentration awful. Brain fog terrible even forgetting words! Lethargy and twitching in my legs at night! Sleepy/ sleeping in the daytime. I said the NICE suggest borderline deficiency and she just ignored it!

She was more concerned about my low TSH which is 00.052

(0.27 - 4.2) miU/L she said it’s to low and I need to lower my dose as when too low can cause lethargy! I said I will discuss with my GP. 🙈🙈🙈🙈🙈🙈🙈🙈🙈🙈🙈🙈🙈🙈🙈🙈🙈🙈 I am currently on 100mcg a day! It it was worked out by weight I should be on more!

any suggestions 😃

[Doris11]

Correction 0.052 (0.27-4.2) 🙈

[greygoose]

Doctors know nothing about nutrients - even less than they know about hormones, and that's saying something! So, they believe that if a result is anywhere within the so-called 'normal' range, it has to be normal.

All TSH causes is your thyroid to make more hormone when it's high, and less when it's low. It doesn't cause lethary or any other sort of symptom. She should go back to school! Although, to be honest, I don't suppose her teachers know any better than that. Sigh.

But your B12 is too low and she should be testing for Pernicious Anemia.

Your TSH is not too low, and it's not what she should be dosing by. She should at least be looking at the FT4, even if she can't get FT3 tested.

[Doris11 in reply to greygoose]

Thank you for your reply she said I’m not anaemic! I know useless and pretty scary really ☹️ thank you I will go on PA site and have a chat on there 😃

[greygoose in reply to Doris11]

Yes, I think that's the best thing to do.

[Doris11 in reply to greygoose]

Good morning I was mulling it over in my head last night and if feels like the Drs have been Gaslighting me and making me feel that it’s all in my head ☹️☹️☹️☹️

[greygoose in reply to Doris11]

I expect they have. That's what they usually do because they really, really do not want to diagnose and treat hypothyroidism.

[Hidden]

Who were you having this conversation with?

[Doris11 in reply to Hidden]

Gp

[Hidden in reply to Doris11]

I asked as your post wasn’t clear. You said you had 11 minutes conversation with GP and near end of your post said you’d discuss with your GP.

Probably me, I’m easily confused 🙈

[Doris11 in reply to Hidden]

It wasn’t my Gp it was another one 🙈

[Hidden]

Aah. I should have realised that. Sorry 🙈

[Doris11 in reply to Hidden]

No worries 😌

[Regenallotment Ambassador]

I’d have a read in the pernicious anaemia forum too, lots of us are in both. Could explain some symptoms 🌱

[Doris11 in reply to Regenallotment]

Thank you will look on PA site 🥰

[Bearo]

My experience is that it’s no good discussing blood results with a GP and saying “do you think **** is too low?” Because they always reply, “no, that’s fine”

Once you have checked and found something is too high or too low, or linked with a symptom you have, decide what you want to happen next e.g retest, further testing, prescription , referral, whatever. Ask here for research, NICE guidelines etc and push for what you want.

It’s really hard because it seems rude to try to push the GP, so rehearse exactly what you want done or write it down, or take someone with you to the appointment.

I think I’m writing this to remind myself to do it!