Hi I've just got my thyroid checked again my heart is palpitating quite a bit I had them done in July and we're 0.35 (0.2-4) Hypothyroidism since 17 now 49 I know I know nothing really about my condition but I'm trying but it's hard 😞
Now they are 0.1 (0.2-4) I've been eating Brazil nuts as they can help? I've lost weight too 1 stone over 2 wks but only putting that down to going gluten free and dairy free maybe? I had to my stomach and bowels really feel so much better!!
Do I need to lower of increase my dose? Dr won't see me until next Friday! I'm due for a 7 day ECG end of October
Thank you for any help in advance x
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Julie-74
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I just got told I have hypothyroidism I'm absolutely clueless I'm not taking anything other than thyroxine 175g on a morning.I am in the process of going gluten free and dairy free my kids are not having issues with thyroid but have multiple vitamin deficiencies (the ones that live in their own homes too!!) I get migraines too!!
Drs just say let's test TSH levels end of.
I have changed drs I've even asked to get referred to an endo specialist
So you are going to need to test at least some things privately
GP could/should test vitamin D, folate, ferritin and B12 for you
GP could also test Ft4…..but unlikely to test Ft3
Ft4 = how much levothyroxine you are taking and is storage hormone
Ft3 = active hormone
To convert Ft4 to Ft3 we need GOOD vitamin levels
Bloods should be retested 6-8 weeks after each dose change or brand change in levothyroxine
For full Thyroid evaluation you need TSH, FT4 and FT3 tested
Also both TPO and TG thyroid antibodies tested at least once
Very important to test vitamin D, folate, ferritin and B12 at least once year minimum
About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high thyroid antibodies
Autoimmune thyroid disease with goitre is Hashimoto’s
Autoimmune thyroid disease without goitre is Ord’s thyroiditis.
Both are autoimmune and generally called Hashimoto’s.
Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease
20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis
In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)
Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins
List of private testing options and money off codes
I've done all the private tests and I'm low in everything vitamin b12 vitamin d folate iron ferritin I've had the test for celiac was negative and had colonoscopy all negative but feel so much better gluten and dairy free.My two girls are type one diabetic my sister and her lb is too they both have thyroid disease of some kind probably same as me. All my 8 children have issues around bowel and stomach issues so as a whole family trying to go gluten free and dairy free 🤯 four of my kids have been tested for thyroid which is negative so far well according to them anyway!
Do I need to lower my dose? My levels are in my post earlier today? Thank you so much I think you are all brilliant I can learn alot from you more competent that any Dr!
Not on any vitamins at all I get three months supply of the 100mg and randomly 1 months supply of 75mg they are different brands also three months ago they sent me a different brand out do you think that's why my levels have dropped?
Brazils contain between 50-90 ug selenium each so it’s important to only have 1-2 daily maximum. The selenium content of Brazils varies because of soil type. Doses of 400ug selenium daily have been found to be toxic. In the past I’ve taken a 200ug but this was to help with Thyroid Eye Disease symptoms & only for 6 months- I then reduced to 100ug.
I would 100% test privately if you are able for TSH, FT3 and FT4 plus key vitamins (ferritin, folate, B12 and vit D).
Do you think it's actually improved my levels because I've been on 175mg for yrs and it's never moved it's very interesting! I have had all the private tests and low in everything they will test! negative for pernicious anemia I will weigh the Brazil nuts ☺️
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