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moljanie profile image
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My results from private appt . Doctor recommends starting levothyroxine 75mg and retest in 8 weeks. Would have liked to prescribe t3 but due to my history of graves disease decided levo was worth a trial. Any experience with levo or T3 from former graves patients would be helpful to know. Latest bloods from private Gp tests are attached . Any advice would be greatly welcome . Thankyou.

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moljanie
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SlowDragon profile image
SlowDragonAdministrator

We should always start on levothyroxine

when you retest in 8 weeks

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Your folate is low

What vitamin supplements are you taking

Presumably you are supplementing vitamin D and B12?

Likely to benefit from daily vitamin B complex

supplementing a good quality daily vitamin B complex, one with folate in (not folic acid)

This can help keep all B vitamins in balance

Difference between folate and folic acid

healthline.com/nutrition/fo...

B vitamins best taken after breakfast

Thorne Basic B recommended vitamin B complex that contains folate, but they are large capsules. (You can tip powder out if can’t swallow capsule)

Thorne currently difficult to find at reasonable price, should be around £20-£25. iherb.com often have in stock. Or try ebay

Other options

healthunlocked.com/thyroidu....

Igennus B complex popular option too. Nice small tablets. Most people only find they need one per day. But a few people find it’s not high enough dose

IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg)

Post discussing how biotin can affect test results

healthunlocked.com/thyroidu...

As your serum B12 is over 500 (or Active B12 level has reached 70), you may be able to reduce then stop the B12 and just carry on with the B Complex……unless you have Pernicious Anaemia

moljanie profile image
moljanie in reply toSlowDragon

Hello, Thankyou for your advice . I have supplemented b12 with a few shots but it is now too high so will stop that. I have thorne b complex but it has b12 in it so need to find just b. Vits as I'm not sure how long for the b12 to go down also D3 k2 for vit d . You're recomendations have helped increase my vitamin levels . Ferritin has gone high not sure why as I'm not supplementing that one. Will be starting Teva levo tomorrow so hoping to see an improvement in symptoms . So grateful for all the advice on here it has been a god send.

SlowDragon profile image
SlowDragonAdministrator in reply tomoljanie

thorne b complex but it has b12 in it so need to find just b. Vits as I'm not sure how long for the b12 to go down

you would expect B12 to be high after injection

You could initially just take a separate methyl folate ….then after week or so alternate folate and vitamin B complex

After month just go back on vitamin B complex daily

Then week before blood test…..stop B complex and just take folate

moljanie profile image
moljanie in reply toSlowDragon

Thankyou I shall try that .

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