Bristol NHS 'causing harm' to patients by withholding thyroid drug
'People’s lives are being blighted'
By Cyril Dixon JJ Donoghue
bristolpost.co.uk/news/bris...
This was last year.
Alis
[ Added headlines so members can see better what this link is about. ]
It is still ridiculously expensive at £63. There is no reason for it not to cost the same as thyroxine, then we can all get it when needed.
I totally agree
Cost of 20mcg tablets now down to £42.48 per 28 tablets
healthunlocked.com/thyroidu....
I couldn't see which brand of tablets it was at that price, do you happen to know?
I'm currently given capsules, but would prefer tablets if possible. I'm vegetarian, so whilst I deal with the fact that I sometimes have to take medication that has gelatine in because there aren't alternatives, it's not ideal. Given that the tablets are now cheaper, I'd like to request they change, as can't see a reason for them not to?
Easier to fiddle about with doses too if you're on tablets.
20mcg tablets available by Teva, Morningside and Mercury Pharma (Advanz)
then why is Boots saying they cannot get Morningside for mr because their reimbursement does not cover the cost?
Because the price quoted here is how much the NHS will pay the pharmacy. Not how much the pharmacy will be charged by their supplier.
I really don't know what we can do about this but I would raise it with any and every body you can think of. It is madness.
Try small independent pharmacies
Format for how GP should write named brand added
Large chain pharmacies are generally disinterested in supplying anything other than what’s on the shelf even if prescription is written correctly to qualify for full reimbursement from NHS/Government
the problem is test we have no small I dependant pharmacies in our small country town and we are housebound!
try online pharmacies
thyroiduk.org/if-you-are-hy...
You will need GP to specify brand on prescription
It is lunacy that they're withholding T3 when they only end up spending more to treat everything that comes from not prescribing it. Short term thinking, or plain ignorance I'm not sure which but if we were properly treated and medicated it would save the NHS a fortune
It's great the more sunlight on this issue the better, it's scandalous.
I was trying to explain this situation to a group of friends at the weekend. I’ll send this link to them. They just couldn’t understand why I had so much trouble in the past trying to get the correct medication liothyronine T3. I was recently asked by my NHS Endocrinologist ‘do you know how lucky you are to be prescribed liothyronine on the NHS’. My answer was ‘definitely’. I keep my private only endocrinologist annual consultation too just in case the NHS pulls the plug. I think what has swung it for myself is that my TSH and levels T4 and T3 are always in range.
When I hear comments like that it really annoys me. It shouldn't be down to luck, its not charity, we pay for the NHS through our taxes. If needed T3 shouldn't be down to postcode lotteries or the bias of the Endo.
Would an NHS consultant say that to a cancer sufferer on a very expensive life extending drug or to parents of a child with a rare condition trying a cutting edge experimental treatment? I somehow doubt it.
I completely agree. I would never have believed it until I was in this terrible situation. Friends seem as though they don’t believe me. They think I’m exaggerating or I don’t need T3. I couldn’t stand up or walk to the toilet before I got it I got that bad. We should be treated equally across the country. Any other country and it’s prescribed. It’s all about the cost of it to the NHS. But not prescribing means people are constantly knocking at their doors for help adding to strains on NHS. People unable to work etc. if you need it you should be able to get it.
A Vision for the NHS.
An interesting piece from the lancet 
Canada's Tania Sona Smith - Powerful summary of recent BTA's twitter arguments against T3
