hashimotos

[bellaquattro]

hi there I’m new i hashimotos thyroid for 20 years and been treated with 75 micrograms for all this time,im mostly cold and get tiered very easily in the winter and some days in the summer, when the sun is out I get a nervous feeling and do so much better and do loads of things around the house and garden this has been going on for about two years, the thing is I have lost 2 stone my gpgphasdone nothing just blood test I am slim but losing this is I’m now 6 stone 4 has anyone else had this experience I thought it might be graves, please to meet you all thanks for any information kind regards magie

[greygoose]

Hi bellaquattro, welcome to the forum.

Difficult for anyone to comment without more information. Do you have a print-out of your latest blood test results? If so, post your results, with the ranges, and let us have a look. You are legally entitled to have one, so if you haven't, just ask at reception.

It rather sounds like you might be experiencing what is called a Hashi's 'hyper' swing. This is just a temporary blip, it's not the same as Graves' and will pass, but it will show up in your blood test results. And, to be honest, there's not much your GP can do other than blood tests. The important thing is to do the right blood tests, and you won't know if she has until you get a print-out of the results.

[buffy77 in reply to greygoose]

thank you greygoose

[greygoose in reply to buffy77]

You're welcome.

[SlowDragon Administrator]

Welcome to the forum

Do you always get same brand levothyroxine at each prescription

Roughly how old are you

Some people do need less levothyroxine after loosing weight and/or after menopause

But it could be that you have low vitamin levels

For full Thyroid evaluation you need TSH, FT4 and FT3 tested 

You know you have Hashimoto’s

Low vitamin levels are very common with Hashimoto’s

What vitamin supplements are you taking

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

Recommended that all thyroid blood tests early morning, ideally just before 9am and last dose levothyroxine 24 hours before test 

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

Monitor My Health also now offer thyroid and vitamin testing, plus cholesterol and HBA1C for £65 

(Doesn’t include thyroid antibodies) 

monitormyhealth.org.uk/full...

10% off code here 

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Only do private testing early Monday or Tuesday morning. 

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism 

thyroiduk.org/wp-content/up...

Tips on how to do DIY finger prick test 

healthunlocked.com/thyroidu...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee 

[SlowDragon Administrator]

As you have had are you on strictly gluten free diet

If not request coeliac blood test via GP,

Gluten intolerance often results in weight loss

Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances.

Most common by far is gluten.

Dairy is second most common. 

 A trial of strictly gluten free diet is always worth doing

Only 5% of Hashimoto’s patients test positive for coeliac but a further 81% of Hashimoto’s patients who try gluten free diet find noticeable or significant improvement or find it’s essential

A strictly gluten free diet helps or is essential due to gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link) 

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and may slowly lower TPO antibodies 

While still eating high gluten diet ask GP for coeliac blood test first or buy test online for under £20, just to rule it out first 

Assuming test is negative you can immediately go on strictly gluten free diet 

(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially) 

Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

drknews.com/changing-your-d...

Non Coeliac Gluten sensitivity (NCGS) and autoimmune disease

pubmed.ncbi.nlm.nih.gov/296...

The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported

nuclmed.gr/wp/wp-content/up...

In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned

restartmed.com/hashimotos-g...

Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.

Similarly few months later consider trying dairy free too. Approx 50-60% find dairy free beneficial

Hashimoto’s and leaky gut often occur together

[Aidan_]

Have you been checked for any bowel cancer tumors if you are losing weight? CT Contrast Scan endoscopy/colonoscopy?

Things are not always a thyroid & did you rule out MG Mysthenia Gravis? I have a friend told he had Fibro he had MG all along plus tumors cancer in thymus & on kidney

[buffy77 in reply to Aidan_]

thank you Aiden will look intothis