Fed up with GP: How does someone find a MEDICAL... - Thyroid UK

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Fed up with GP

ColdBanana profile image
11 Replies

How does someone find a MEDICAL DOCTOR that can write prescriptions that actually listens to you WITHOUT spending copious amounts of money I don't have? Is this possible?

I cannot believe how IGNORANT some of these professionals are. But I have had pleasant interactions with very reasonable ones in the past, so I know they exist - but that is NOT mine as of right now.

I was literally told with a straight face that my 4.2 TSH is not a problem because it is not over 10. Even though my hair is coming out in clumps and I am asleep come afternoon, low temps, cold ETC.... He BEGRUDGINGLY agreed to test me because I asked......

When I asked for a morning test because the last one I had done was at 6pm which could cause TSH to be lower. He said it wouldn't of made a difference. I then said in my experience it does and the consensus is it DOES. Then he asked me where I got that information from and whether or not they were medical professionals, and he then went on to tell me how he went to medical school etc. Btw, he booked it for morning before I even asked anyway lol..... So it didnt matter either way.... Petty

When he went to check my blood pressure he barely had the cuff on right, and for some reason he is the arbiter of truth because he went to medical school. And that is who is gatekeeping my health as a result. God help me......

Thanks. Would appreciate ANY! advice regarding a good one!

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ColdBanana
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SlowDragon profile image
SlowDragonAdministrator

There’s nothing on your profile page

Are you currently taking any replacement thyroid hormones

What were most recent Ft4, Ft3

Have you had BOTH thyroid antibodies tested at least once

What vitamin supplements are you currently taking

When were vitamin D, folate, ferritin and B12 last tested

Please add results and ranges

Recommended that all thyroid blood tests early morning, ideally just before 9am and last dose levothyroxine 24 hours before test 

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins then cheapest option for just TSH, FT4 and FT3 and includes BOTH TPO and TG antibodies -£29 

randoxhealth.com/at-home/Th...

Monitor My Health also now offer thyroid and vitamin testing, plus cholesterol and HBA1C for £65 

(Doesn’t include thyroid antibodies) 

monitormyhealth.org.uk/full...

10% off code here 

thyroiduk.org/getting-a-dia...

NHS easy postal kit vitamin D test £31 via

vitamindtest.org.uk

Only do private testing early Monday or Tuesday morning. 

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism 

thyroiduk.org/wp-content/up...

Tips on how to do DIY finger prick test 

healthunlocked.com/thyroidu...

come back with new post once you get results

List of thyroid specialists and endocrinologists 

healthunlocked.com/thyroidu...

Starting levothyroxine - flow chart 

With 2 separate test results of TSH over 5 and symptoms you should be started on levothyroxine

gps.northcentrallondonccg.n...

SlowDragon profile image
SlowDragonAdministrator

Hair loss frequently low iron/ferritin

Jaydee1507 profile image
Jaydee1507Administrator

Its common unfortunately to find GPs like this one. You need to be a little bit wise and clever to snoop out a good one who will listen to you and be more open minded and they are out there if you look.

Take evidence of keeping TSH lower with you to your appointment. Try a different GP at the same prctice and be persistent - nicely. You need to keep them on your side but don't give up and fall at the first hurdle. Keep plugging away at it, its the squeeky wheel that gets oiled.

healthunlocked.com/thyroidu...

ColdBanana profile image
ColdBanana in reply to Jaydee1507

thank you jaydee, i will do what you suggest. i hope i eventually find a good one , i am always polite but i felt a bit gas lit today if im honest. i checked and they have requested all the bloods i asked for to be done early morning in june which is ok , and with them , but yeah based on the result if i need to go back i think i might find a lady doctor as they tend to be more understanding . i just went with the first appointment that was available this morning .

Jaydee1507 profile image
Jaydee1507Administrator in reply to ColdBanana

Its usually the lab that vetoes FT3 testing, not always the GP. Its rare to get it tested on the NHS unfortunately which is why most of us here have to pay for tests.

ColdBanana profile image
ColdBanana in reply to Jaydee1507

Yeah, i hear you. Ft3 was never mentioned unfortunately, but since they are checking everything else including cortisol, i thought that might be an ok compromise.

If cortisol / tsh came back borderline, im hoping they might trial me on something either way , which would be 1 less thing to stress about

arTistapple profile image
arTistapple in reply to ColdBanana

I always thought ‘lady doctors’ were more understanding. But ColdBanana I have been forced to change my mind. In fact when a woman treats you badly it feels worse. Dare I say with male doctors there is an expectation (for me anyway) that they won’t listen and I am not so disappointed. My present female doctor is practically threatening me that I am depressed, leaving me with “We will see!” Felt like something from the three witches in that Scottish play! Talk about gaslighting?

ColdBanana profile image
ColdBanana in reply to arTistapple

Yeah. I think you will always get an oddball here and there. It's just a shame when it happens though because your health is not a trivial matter, especially when they don't fully understand how you feel. I will just have to keep my fingers crossed; but i had a bad feeling about the dr i saw yesterday before i even got there, n i guess i was right. In the past, the male doctors were always nice to me so i know they exist -- for some reason though i feel like the women might go the extra mile for me in terms of being 'borderline' - but will have to see. Did you ever end up getting the treatment you need or are they still brushing you off as something else ? Was your tsh very high or normal ?

arTistapple profile image
arTistapple in reply to ColdBanana

I am still playing the game. I have good advice that makes total sense from the forum. Just been looking at all my test results since this journey started this morning - wondering how to/what to do. NHS just are not up to the job. However I am using them at the moment to see what state my heart is in. I want/need to start T3 again but heart symptoms whilst trying it were not good. I noticed my TSH as well as my hormone levels are on downward trajectory. Well this does not make sense at all for the TSH believers. However whilst ‘they’ do not check hormone levels it’s fine for them. If I leave it up to the NHS they will reduce my dose shortly!

ColdBanana profile image
ColdBanana in reply to arTistapple

Even if they did check hormone levels of T3, it is still not an infallible metric. I say this because I am someone who HAS very good levels of T3, but I will not rely on a single blood test to tell me how I am feeling anymore. It is so sad they are dosing people according to a test that is not even a thyroid hormone, and a test that can be raised/lowered by many things outside of hypothyroidism... But of course, everyone must be the same. It is so unfortunate. Is it possible you might have a degree of hormone resistance? I never noticed any effects from even 5-6 grains of thyroid, so I'm thinking I might be resistant. When I get my blood test results back, I will probably try figure the rest out myself, assuming it is barely normal or "borderline".

arTistapple profile image
arTistapple

Yes resistance is possible. I am just not quite able to say that yet! It all looked so simple at the start. Shoot!

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