They still haven't found the holy grail - Thyroid UK

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They still haven't found the holy grail

diogenes profile image
diogenesRemembering
12 Replies

This paper and the comment in Medical Press tries to show that T4 treatment is overused in the USA. But that is only from their analysis of treatment by normal TSH and FT4. FT3 is never mentioned. Both they in the States and here are way behind the new evidence. This is the face of the status quo plainly written.

Joe M El-Khoury,

Seasonal Variation and Thyroid Function Testing: Source of Misdiagnosis and Levothyroxine Over-Prescription, 

Clinical Chemistry (2023).  DOI: 10.1093/clinchem/hvad017

Medical Press

Endocrinology & Metabolism APRIL 6, 2023 

21 million Americans may take a hypothyroidism drug they don't need

by Isabella Backman,  Yale University

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diogenes profile image
diogenes
Remembering
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helvella profile image
helvellaAdministratorThyroid UK

Absolutely agree.

There is another thread going on here:

healthunlocked.com/thyroidu...

LindaC profile image
LindaC

Not so long ago, Armour and [compounded slow release... apparently not so effective] T3 were doing fine in the US: it seems that some of the notorious UK naysayers even made an impact in the States! Sad for Americans too.

This can sometimes feel like the 'Pay Cheque Face'. I say this due to their sheer lack of even 'scientific curiosity', let alone patient care. I have the utmost regard for many medical disciplines, in particular medical researchers - I am often moved to tears at their outstanding progress made - yet when it comes to chronic illness[es], I am stunned by their arrogance [aka ignorance] and sheer contempt for patients sitting before them. 🤡🤠

DippyDame profile image
DippyDame

Agree....

High time the powers that be understood T3!

waveylines profile image
waveylines

Thank you Diogenes. So depressing..... Why oh why......???????? Do they just want people long term poorly so they end up on multiple drugs to counter the effects of under or no treatment for their thyroid? Big pharmacy must be rubbing their hands in glee..... Lol

RedApple profile image
RedAppleAdministrator in reply to waveylines

'Do they just want people long term poorly so they end up on multiple drugs '

In the US, yes, quite likely from what we see reported. But it's also quite simply an ongoing battle between patients and medics. These medics are so arrogant, stubbornly refusing to admit they've been getting it wrong all these decades. They will use any way they can to 'prove us wrong'.

waveylines profile image
waveylines in reply to RedApple

So true.... Then they wonder why people go off and self medicate. 🙄 I try to keep medics away from my thyroid meds management as much as poss. I don't rely on my annual blood test but regard it as a tick box process to be allowed to continue my meds!! I do my own tests and assessment separately mainly cos left in doctors hands they'd mess it up. Still am grateful for the prescription!!Will this ever change? No..... Not till some bright spark medic in the future invents what is already known to patients!! Am sure whoever it is will be hailed as the Saviour from all the medics for saving their skins!!

LindaC profile image
LindaC in reply to waveylines

I don't take any of their Pharma crap - only SERC for vertigo [something else left too long!] + dry-eye drops + nasal spray for CPAP... self-sourced T3. I am lucky, appreciate that. Best to you - ALL - xox

waveylines profile image
waveylines in reply to LindaC

My prescription is for NDT Armour - not 'crap' but life saving.... 😊As is the b12 vials they supply.

LindaC profile image
LindaC in reply to waveylines

'Crap' was referring to the multiple drugs given to people... one after another [can often be due to poorly treated thyroid issues] to counteract the prior ones. I have so far avoided them, other than essentials, e.g. antibiotics.

As for NDT, I used Armour [initially via Dr S, then NHS funded] for more than 5 years - until an Endo decided that I'd never been hypothyroid. [T3 advised 'for life' by Dr P - he was 'spot on'.]

waveylines profile image
waveylines in reply to LindaC

Sorry to hear that. What a stupid endo! 🙄 I was a patient of Dr S too. Amazing kind man.... Saved my life without doubt.

LindaC profile image
LindaC in reply to waveylines

Great to hear. Yes, both Dr S and Dr P without doubt saved my life. Oh, I'd been ignored from 2008, again 2009 - where it was soooo obvious just by looking at me - actually 2003 + 2007 my #s were highly indicative of hypothyroidism. All ignored me until Dr S - who just shook his head! GP accepted Dr S's diagnosis and in no time prescribed Armour for me, via NHS, plus I couldn't tolerate Levo [it was all along, Dr P, T3 that was needed]. Still that endo 'undiagnosed' me due to it having been Dr Skinner.

Gcart profile image
Gcart

agree with what has been said here .

I take medication for my heart . I can double up if I feel the need to ! Never been asked about that as a problem to me . I have not felt the need to increase and now find I have no need to repeat script for 3 months or so . No questions asked .

If they get anywhere near TSH though !!!!

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