Anyone on Levothyroxine 25mg.As I think these tabs are causing me some symptoms like: putting weight on, headaches,backache although I have a bit of osteo in my lower back.slight indigestion,I do take omeprazole,only if I have too.bloated,belly ache.although I am going through some other health issues at the moment.I find these make me feel awful I get muscles pain & cramp, energy,always tired,even after a lot of sleep very emotional & weepy & angry,itchy scalp,no energy blurry eyes, I had my eyes test last May,that were fine,my diet is fine,I feel worse on these than when I was on the 25mg,I have spoken to doctors,they don't thinks its the pills,my consultant says the same & my levels since I have been on are pretty normal.I am thinking of going off them I have only been on them since August 2022.I tried taking them in the morning before brekkies & a cuppa,but now take them before bedtime.I fel worse on these more than when I was on the 25mg,my docs won't alter them yet either.
Anyone else with any advice.Thanks in advance😀
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Welcome to the forum
How old are you
Unless over 65 years old, the standard STARTER dose levothyroxine is 50mcg
Starting, and staying on too low a dose levothyroxine will exacerbate hypothyroid symptoms
Levothyroxine doesn’t top up failing thyroid, it replaces it
Unless extremely petite, most people will eventually be on at least 100mcg per day
It’s highly likely you are under medicated and in desperate need of dose increase in levothyroxine
What were most recent thyroid and vitamin results and ranges
ALWAYS Book early morning blood test and last dose levothyroxine 24 hours before test
ESSENTIAL to test vitamin D, folate, ferritin and B12 at least once year
Low vitamin levels are EXTREMELY common when hypothyroid
Being hypothyroid frequently results in LOW stomach acid, this leads to bloating, acid reflux and poor nutrient absorption and low vitamin levels as direct result
Omeprazole is a PPI used to treat high stomach acid and long term use of PPI also results in low vitamin levels, especially B12, iron and magnesium
Low vitamin levels tend to lower TSH
Hi thank you for replying so fast,I am 59,I am 5ft 3 lol,don't think I will grow any taller now
well I spoke too my consultant & my GP only a couple of days ago. both were happy but won't do anything yet. my levels are tsh 2.03,thats all I know got told that it was normal,I am waiting for a letter of confirmation,so it may take a while.not having any more blod test as I recently had one in January.,also I forgot to mention on my post,I get & feel extremely cold since I have been on these tabs.use to get to hot before.I have been on Omeprazole for a long time,that is why I only take them occasionally now.all my results for blood tests come back normal.I also have to keep an eye on my blood pressure as that goes up & down like a yoyo,but only when I go into stress mode.I got started on 10mg,so have been on the 25mg only since Dec 2022
Are you in the U.K.?
Just testing TSH is completely inadequate
On levothyroxine most people when adequately treated will have TSH under 1.5
Most important results are always Ft3, followed by Ft4
When adequately treated most thyroid patients will have Ft3 at least 50-60% through range and Ft4 (levothyroxine) at least 60% through range…..often higher at 70-80% through range
Bloods should be retested 6-8 weeks after each dose change or brand change in levothyroxine
For full Thyroid evaluation you need TSH, FT4 and FT3 tested
Also both TPO and TG thyroid antibodies tested at least once
Very important to test vitamin D, folate, ferritin and B12 at least once year minimum
About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high thyroid antibodies
Autoimmune thyroid disease with goitre is Hashimoto’s
Autoimmune thyroid disease without goitre is Ord’s thyroiditis.
Both are autoimmune and generally called Hashimoto’s.
Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease (Hashimoto’s or Ord’s thyroiditis)
20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis
In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)
Recommended on here that all thyroid blood tests early morning, ideally just before 9am and last dose levothyroxine 24 hours before test
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins
List of private testing options and money off codes
thyroiduk.org/getting-a-dia...
Medichecks Thyroid plus antibodies and vitamins
medichecks.com/products/adv...
Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins
bluehorizonbloodtests.co.uk...
Just Thyroid includes BOTH TPO and TG antibodies -£49
randoxhealth.com/at-home/Th...
If you can get GP to test vitamins then cheapest option for just TSH, FT4 and FT3
£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code
thyroiduk.org/getting-a-dia...
monitormyhealth.org.uk/
Monitor My Health also now offer thyroid and vitamin testing, plus cholesterol and HBA1C for £65
(Doesn’t include thyroid antibodies)
monitormyhealth.org.uk/full...
10% off code here
thyroiduk.org/getting-a-dia...
NHS easy postal kit vitamin D test £29 via
vitamindtest.org.uk
Only do private testing early Monday or Tuesday morning.
Link about thyroid blood tests
thyroiduk.org/getting-a-dia...
Link about Hashimoto’s
thyroiduk.org/hypothyroid-b...
Symptoms of hypothyroidism
thyroiduk.org/wp-content/up...
I have some reading to do yes I am with NHS, & in the UK,I have been TSH, FT4 and tested,but no recent letter for results which I am waiting for.
If tests were done at hospital it can take a while to get results onto your records…..or you may need to email endocrinologist secretary for results
But looking forward…it’s more important to be getting NEXT blood testing including vitamin levels ……..and thyroid antibodies if not tested
You are legally entitled to printed copies of your blood test results and ranges.
The best way to get access to current and historic blood test results is to register for online access to your medical record and blood test results
UK GP practices are supposed to offer everyone online access for blood test results. Ring and ask if this is available and apply to do so if possible, if it is you may need "enhanced access" to see blood results.
Link re access
patients-association.org.uk...
healthunlocked.com/thyroidu...
In reality many GP surgeries do not have blood test results online yet
Alternatively ring receptionist and request printed copies of results. Allow couple of days and then go and pick up.
Important to see exactly what has been tested and equally important what hasn’t been tested yet
I will look into that,I used to be able to access it on my patient access,but now they have put a limit on what you can see,but it is so hard at the moment to even get access or to even see or book an appointment ,here in the uk,I have already made one complaint about my gp service,I had an appointment I was sat in my gp surgery for over an hr,waiting.hence the complaint.our receptionist,haven't got a clue,it takes them almost an to answer the phone,you get left on hold for an age!