Endocrinologist ignored letter from previous Endocrinologist re investigation other hormone problems and even though all tests and scan say no evidence PCOS he think this is the problem causing high cortisol did not do any further tests and not interested, spent a day travelling to London for what?
What steps to take next, do I just go down the genetic route?
Are you trying to be diagnosed for PCOS? This is a thyroid group.
A month ago you were under replaced. How did you get on with your GP and or Endo getting an increase? Did you take them the evidence showing to keep TSH lower?
Which evidence? I was referred to London Endocrinology because they suspected cushings as I said in post not PCOS
There was a reply to your post by tattybogle with a link to a thread here. healthunlocked.com/thyroidu...
That has evidence and reasons you can take to your GP/Endo to try and get an increase.
You are under replaced at the moment so no wonder you have symptoms. Did you ask for a dose increase?
Your high cortisol levels should slowly reduce now you are on levothyroxine plus T3
Adrenals try to compensate for low Ft3 …..so now Ft3 will be improving adrenals won’t need to be working so hard and cortisol should reduce
Suggest you retest cortisol levels 3-4 months after getting dose T3 stable
Oooo Hi Stace,
Please follow SlowDragon’s advice - I did 😊👍
You seem to have a very clear idea of what you expected from the Endo, am I right?
I think on this occasion I would be encouraged by the fact they haven’t gone in guns a blazing doing all sorts of tests putting you on different treatments and making your life an unholy mess.
The really important thing is - and this is a founding scientific principle- is to only change one thing at a time. I often read sad accounts of where doctors have just thrown a load of stuff at a patient get them ‘off their desk’ and made things worse, with actually no idea then of what is doing what.
The best analogy I can make is when a chef is making a dish they add seasoning, a little at a time and taste in between. If we just pile loads of seasoning in we don’t know what to dial back on next time if we make a mess of it.
The thyroid is an all-encompassing organ, every single selling our bodies requires thyroid hormones, so when the thyroid stops working properly, every single part of our body is subject to some impairment to a greater or lesser degree. I had numerous issues which I had not attributed to having an underactive thyroid, and in the early stages being terribly under medicated.
So much resolved itself once I was on a therapeutic dose of Levothyroxine.
Please come back when you have up-to-date bloods and also write a summary of how you’re actually feeling because that should be driving treatment, not just the blood tests. They are merely a guide to advise.
And guiding principle change one thing at a time.
I would really encourage you to read a book and get a bit of a handle on your situation then you will know when you are dealing with the medical profession if you get a ‘dud’. They don’t know as much as you think they do, unless you’ve already had your illusions shattered of course 😱😂
Hi thanks for message.I'm on T4/T3 combo now but only 10mg T3 and splitting dose morning and afternoon.
I feel more able to get things done and the Endocrinologist I see in London did not seem to want to explain why my cortisol is high.. anyway my original Endocrinologist has given me a trial of T3/T4 but I think I need higher T3 .. awaiting results back from genetic test for Dio1 defect
The biggest problem with the medical profession is they do not want to explain. I expect there’s more than one possible reason why your cortisol is high but rather than explaining this they expect people to sit there and be doctored without the need for any explanation.
Please just remember the most important thing is how you feel and your symptoms.
I kept a real time note of anything I noticed.
It was unbiased. It wasn’t retrospective and it gave so much useful information.
When it can be related back to blood tests and dose it becomes a very powerful piece of information.
Good advice, I was supposed to receive a quality of life before and after questionnaire but not seen it yet
I've also read it can take several weeks to fully feel Liothyrine affects
I printed off some month to view calendars and just scribbled on a few words if I noticed anything. It was not war and peace, and it was not every day only when necessary, but that is the beauty of capturing these insights in real time. Interestingly, the GP I spoke to last took this far more seriously than me burbling away about how awful I felt over the past few weeks.
I also kept the discussion of my symptoms fairly dispassionate and related them back to blood tests and how I had interpreted them. I’ve got a post about it on my profile - it will be a few posts down now, but I actually shared how I generated my reports that I submitted to the GPs. 😊👍
What to do next.. or is this it?
help with what to do next
Not sure what to do next?
What to do next + patience
Help with what to do next 
