I've now had 2 silent migraines.. One before I was diagnosed hyper/graves 2 years ago. The only symptom is disturbed vision, like I'm looking through a child's kaleidoscope.. No pain, but a weird sensation behind my eye. Even if I close my eyes, I can still see the sparkly colours. 10 minutes later it had gone.
Could this be thyroid/ted related? Or completely unrelated and separate?
Seeing colours as you describe isn’t associated with TED.
It may be silent migraine. Any nausea?
Are your thyroid levels stable & good in range? I find higher frequency of migraines when levels are “off” & around dose changes - when levels drop or rise.
Hi, my dose was increased in December, I've not yet had blood tests..No nausea, just felt really weird.. And obviously a bit worried, then it went away within 10 mins..
Hi. I get the aura and silent migraines...used to get them about twice a month in clusters until about a year ago. I'm hypo though. Have had them frequently for about 15 years and like you wondered if they were linked to thyroid. Strangely though since being on iron supplements they've almost stopped and have only had two episodes in about the last 10 months. Possibly worth checking iron levels but that's only my experience. Like you after 10 - 20 minutes vision back to normal but quite scarey until you understand what they are.
Thanks, my thyroid doesn't work anymore since Rai, but when I had one initially I was hyper. I am taking iron tablets as my ferritin was low. This is only the second time I've had it..
I have had quite a number of aura/silent migraines. Even more than one in a day.
Am convinced they are in some way related to my hypothyroidism and the levothyroxine I take. But have never fully convinced myself as to why they happen. It doesn't seem to be an obvious and simple case of taking too little (or too much).
Sorry to hear that, having one is weird enough. My thinking was initially I was hyper, unmedicated and levels off and now maybe since my dose increase of levothyroxine, my tsh is moving up too high.. Endo didn't want me back for bloods till June. Maybe I'll get in touch again..
Looking at your profile and previous post
You need to get full thyroid and vitamin testing done 6-8 weeks after latest increase in dose levothyroxine
Do you always get same brand levothyroxine
all thyroid blood tests early morning, ideally just before 9am and last dose levothyroxine 24 hours before test
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
List of private testing options and money off codes
thyroiduk.org/getting-a-dia...
Medichecks Thyroid plus antibodies and vitamins
medichecks.com/products/adv...
Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins
bluehorizonbloodtests.co.uk...
Monitor My Health also now offer thyroid and vitamin testing, plus cholesterol and HBA1C for £65
(Doesn’t include thyroid antibodies)
monitormyhealth.org.uk/full...
10% off code here
thyroiduk.org/getting-a-dia...
Only do private testing early Monday or Tuesday morning.
Watch out for postal strikes, probably want to pay for guaranteed 24 hours delivery
Yes I think I am due a blood test as I must be coming up to 8 weeks since my last. My Endo has told me not to go back until June... Unless I need too!
My brands have been messed around the last few months - I was changed from accord to Aristo - I felt like death on Aristo, so the pharmacy changed me to mercury as they said they couldn't get accord.. So now I'm taking Mercury.. I do feel a bit better with the increased dose.. Although I do feel like I am constantly shaking internally.. Previously I I just felt that at night, now I feel it all day...
only do test after 6-8 weeks on unchanging dose and brand of levothyroxine
I believe it could be related JUUJOO.
I’ve had migraine with aura (luckily, no headache but vision badly affected) on and off most of my life, with under active thyroid eventually diagnosed in my sixties. Usually happened after relaxing from a period of stress, strong fluorescent lighting, or inadvertently eating chocolate, cheese and tomato on the same day.
Son, a diver, found research that links it to a PFO/heart murmur (tiny hole in the heart that many have since birth). My granddaughter also has this but migraine with aura is v. painful…….
Interestingly though, when thyroid was initially under treated, a scan showed I’d developed PFO in the other artery, which eventually disappeared with adequate thyroid treatment and B12 injections for PA (both conditions in other members of the family).
Thanks thats interesting, I did just sit down to relax when it happened ... And I did eat a mini organic dark chocolate bar just before !
I am taking the Thornes basic B12 complex, have taken for a couple of months now, so hopefully when I retest vitamins it will have increased a bit.
Also, my daughter (10 years old) came home from school 2 months ago with a bad headache and the same kaleidoscope vision... (I've never mentioned it in front of her)
I am wondering if it's thyroid /autoimmune related...I know these issues run in families. My mum is hypo. My nan was hypo but had a scar on her thyroid, I have Graves... They did test her tsh/T4 but said all was OK.. Didn't rest antibodies or anything else. Its a mystery!
PS Looking at your profile and noticing burning mouth and ongoing fatigue, am wondering about B12 deficiency, both which are strong indications and often accompany thyroid disease, as well as vice versa (four in our family have both).
Dr J Chandy (free access to his book online), Tracey Witty and the Pernicious Anaemia Society, all have websites with good information and further sources of research, support, etc.
I hope you find answers soon JUUJOO 🤞
I've had them too but not for quite a few years now. I am pretty sure my levels were off but I was also under a huge amount of stress when mine happened.
I developed silent migraine auras around the same time I had my under active thyroid diagnosed. With treatment they reduced and were mild. I started HRT and think this has messed with my thyroid. I am having daily auras. I have been diagnosed with Hemiplegic migraine so have motor weakness in limbs too. I know that my folate is low and I suspect other iron levels are low too. Low iron/ ferritin etc can cause a whole host of issues, insomnia, breathlessness, fatigue and migraines. I have started to get the bumps on my thumb nail back but I think this maybe low thyroid and low iron sign.
Hopefully you are feeling improved as your post was a month ago, but I just thought I would let you know I am another that suffers from these.
Oh wow. Daily auras. Poor you 
I've not had another since thankfully. I think it's my body's way of telling me my levels are off. I'm not feeling any better so ive just had private bloods. See how I go.
this is interesting about HRT. I recently started Femoston 2/10 and two months later I’ve got daily auras w/o migraine and vertigo. Also have hypothyroidism for which I’m taking levothyrox. Going in on Monday for lab checks on hormone levels and thyroid.
Any updates on how you’re feeling?
I need to maintain ferritin levels above 90 to not suffer regularly with silent migraine.
I was seen at the neurology clinic recently as my symptoms were happening more often, they told me I had migranous neuralgia which was caused by female hormones/hrt. They said they would go once I was through menopause/stop hrt..
When I was younger I got lots of migraines or cluster type headaches. Doctors opinions varied. Probably about ten years ago after chiropractic treatment for something apparently unrelated, the headaches changed to ‘silent’ migraines. I got them quite often with distinct aura, which worked into a blind spot over about half an hour and then disappeared. I have had very few since starting thyroid treatment but I had one the other day and that’s when I realised I rarely get them now. Still there but rare. I am not optimally treated for hypo as yet.
Is this thyroid related?
Silent Thyroiditis
Is this thyroid related?
Is this thyroid related?
Is this thyroid related?
