Something to make us smile : I took my uncle to... - Thyroid UK

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Something to make us smile

HashiFedUp profile image
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I took my uncle to see an NHS endocrinologist yesterday. Overall they were helpful, but I had to chuckle when they said “you don’t need to test for T3… as it’s a Google myth!”.

Glad they’re not my endocrinologist!

I didn’t have the energy to challenge them, or bring up the small matter of the NICE Guidelines… or the anecdotal testimony of thousands and thousands of people 😆

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HashiFedUp profile image
HashiFedUp
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RedApple profile image
RedAppleAdministrator

A google myth! I agree, there is a funny side to this but what planet are these people on for goodness sake! 🤣🤬 (mixed emotions of hilarity and anger)

M33R4 profile image
M33R4

Last week GP told me my TSH is abnormal to have another blood test. I am on Levo. My T4 and T3 were normal. I didn't want to bother telling her perhaps Levo is causing abnormal TSH as it's taken over my thyroid's role.

DippyDame profile image
DippyDame

Sorry HashiFedUp but my sense of humour does not extend to smiling at the drivel opined by this endo....it is not surprising but is none the less appalling.

Having spent years sorting out my complex thyroid issues I'm now in the middle of another debacle....Chronic UTI.

It was evident long before I'd even heard of T3 so as this medic conceded, my self medicating with T3 couldn't be the cause!! Conversely however, I'm convinced that decades of low cellular T3 has been the cause.

A "Google myth" that endo claimed. Preserve us from such ignorance!!

I've been through the standard list of UTI test options and scans for nearly 20 years ( roughly similar to my thyroid/T3 journey) and I did see one medic who almost instinctively understood my problem and prescribed prophylactic antibiotics which after several months were very slowly beginning to work. Looking back he was a rare creature!!

The overall issues regarding poor diagnosis and treatment are very similar to those suffered by thyroid patients....and the outcome for patients the same. Continuing symptoms and reduced QOL.

Yesterday another GP looked at my urine sample and decided, "that looks fine" but I'll send it to the lab. I just know what will happen next!!

Complete misunderstanding of the fact that the bacteria are embedded in the bladder walls and therefore not always in the urine unless the infected cells have been shed into the bladder when a sample is collected.

So, now I wait and suffer until results come back and I have to start explaining the mechanics of this problem to someone who should know all of this.

Sound familiar?

Instead, inflammation was suggested....with no thought as to what caused said inflammation.

I'll get there in the end but not without a lot of hassle.

Until medics listen to patients and exercise robust clinical evaluation in conjunction with lab tests...patients will continue to suffer

Altman and Bland (1995) in the BMJ, warned us of a logical fallacy “Absence of evidence is not evidence of absence”. In failing to accept this, the writer points out, we may be promoting disease and it might not be trivial.

Absolutely!!

Having got that rant off my chest....

I hope your uncle gets the thyroid treatment he needs and can summon a smile once he feels better.

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