Newbie here please be gentle. After years of thinking hypothyroidism wasn't serious I've spent the past year religiously taking my levo to try reduce TSH . 6 months ago 13.8. 3 months 12.6 2 weeks ago 27.8 !!!! I mean WTF gotta have another blood test in 2 weeks but what can I do . Im on anti depressants anti anxiety and anti psychotics along with stomach protector and bladder weakness meds . I wake up reach across take meds BUT I do have a cup of tea about 30 minutes after I take them. All advice welcomed
TSH ridiculously high: Newbie here please be... - Thyroid UK
TSH ridiculously high
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bwitch
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Levo should be taken an hour away from food and drink and at least 4 hours away from all other meds.
°Which meds do you take specifically? Others may know of any interactions which will be inhibiting your uptake if levo.
°How much levo do you take?
°How long before or after your blood test did you take your levo?
You might find when you're optimally treated you find significant reduction in your anxiety. My own severe OCD has reduced by 90%.
bwitch in reply to
I'm on slow release propanalol and venlafaxine also omemprezole. Oxybutinin. Codeine naproxen. Omemprezole and now on 150mcg levo was on 125mcg. Bloods done at 1pm levo took at 11am. And that's amazing that being properly medicated has helped , I can't wait for that to happen . Would love to come off medication
OMG! I am not a doctor! But I was taking Omemprezole and my tsh went to 35.1!!! It seriously intreracts NO MATTER THE TIME OF DAY you take it. I stopped. My TSH is .4. Everyone is different. This is my experience. Please mention to your doctor and see what they say.
interesting as I’m on Omeprazole. Didn’t know this x
Read the Summary of Product Characteristics document - carefully.
Hi bwitch, I'm so sorry you have all these conditions at once! It seems we are at the mercy of the Dr's and Pharmacutical companies who're apparently happy to prescribe on results regardless of the effect we experience. Antidepressants , in my non expert opinion, are legalised addictive poison,I have not met anyone who's benefitted from long term use, quite the reverse, so I hope one day you will be able to come off them. Opremazole is designed, as I understand it, to protect your stomach lining, so it follows that absorbency must be reduced .I have found, after reading "The Autoimmune Fix"by Dr O'Bryan that wheat is the root of all my evils, perhaps this will work for you? I no longer need Opremazole because I no longer have acid reflux or painkillers because I rarely have joint pain now as a result of taking wheat out of my diet, also, my mental mood and energy levels are so much better. .That said, myTSH has recently gone through the roof too, as per my recent posting.I have had 3 tests now in quick succession, perhaps the recipe for Levo has been changed and it doesn't suit some of us? MyDr just shrugged and saidI should see the Thyroid specialists as he didn;t understand what was going on!!My advice is to see the Throid specialist ASAP and to read the AutoImmune Fix.Best of luck.
Lilylui in reply to
my tsh was 107, it’s now down to 20 I have been hypo for 20 yrs but only had an issue last year (after the first vaxx never had a second! )my body stopped converting the levothyroxine from T4 to T3, I got on T3 only and it has bought my levels down I now have to take 50 mg Levo every 2 weeks, T3 is hard to get in the U.K. but worth pushing for it.
Also if it is my TSH being at 27 responsible for me feeling so crappy how on earth did you cope with it that high.surely that's dangerously high x
TSH is just the message from pituitary to thyroid to tell the thyroid to work
Most important results are ALWAYS Ft3 followed by Ft4
Omeprazole lowers vitamins for many people…..resulting in poor conversion of Ft4 (levothyroxine) to Ft3 (active hormone)
TSH doesn't 'directly' relate to how unwell you actually are, or how ill you feel.
The HPT axis is an extremely complex system ,and so the reasons for this apparent discrepancy are many..... but it is possible for someone with TSH 100 to still be functioning relatively ok .. and it is also possible for someone with TSH 7 to literally have to crawl up stairs with a level of brain function approaching "zombie" .
.... to quote Charlie-Farley 's excellent analogy ; TSH is like someone asking your next door neighbour how you are, instead of asking you .
Sometimes your neighbour may have a pretty good idea and will be more or less correct in her report .. but sometimes. she's behind the times , or fooled into thinking you're dancing round the kitchen because she's heard jazz music through the wall all weekend ...and some people's neighbours never knew them very well in the first place.... or are deaf.
SlowDragonAdministrator
How much levothyroxine are you currently taking
Can see from previous post 6 years ago you were on high dose of 375mcg levothyroxine
Bloods should be retested 6-8 weeks after each dose change or brand change in levothyroxine
Just testing TSH is inadequate
What is GP doing
Have you been referred to endocrinologist
Do you have autoimmune thyroid disease, also called Hashimoto’s usually diagnosed by high thyroid antibodies
For full Thyroid evaluation you need TSH, FT4 and FT3 tested
plus both TPO and TG thyroid antibodies tested at least once
Very important to test vitamin D, folate, ferritin and B12 at least once year minimum
About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high thyroid antibodies
Autoimmune thyroid disease with goitre is Hashimoto’s
Autoimmune thyroid disease without goitre is Ord’s thyroiditis.
Both are autoimmune and generally called Hashimoto’s.
Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease (Hashimoto’s or Ord’s thyroiditis)
Essential to test vitamin D, folate, B12 and ferritin
What vitamin supplements are you currently taking
When were vitamin levels last tested
Recommended on here that all thyroid blood tests early morning, ideally just before 9am and last dose levothyroxine 24 hours before test
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins
List of private testing options and money off codes
thyroiduk.org/getting-a-dia...
Medichecks Thyroid plus antibodies and vitamins
medichecks.com/products/adv...
Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins
bluehorizonbloodtests.co.uk...
If you can get GP to test vitamins then cheapest option for just TSH, FT4 and FT3
£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code
thyroiduk.org/getting-a-dia...
Monitor My Health also now offer thyroid and vitamin testing, plus cholesterol and HBA1C for £65
monitormyhealth.org.uk/full...
NHS easy postal kit vitamin D test £29 via
Only do private testing early Monday or Tuesday morning.
Watch out for postal strikes, probably want to pay for guaranteed 24 hours delivery
Wow super helpful answer thank you so much 6 years ago I was probably taking them when I was sober enough to remember. So GP does these tests and I was low on feretin but after 3 months they took me off it. I don't take any vitamins or supplements so suggestions gratefully received. I cant have weight loss surgery till TSH around 10 but also I feel so bloody rubbish in general it needs sorting. I was refered to endo years ago but they gave up cause obviously I was in active addiction. My thyroid levels where never this bad as an alcoholic 😱 thank you again will definitely be going the private test route x
Blood results
B12 is far far too low
Are you vegetarian or vegan?
Do you have Low B12 symptoms
Assuming you do, request testing for Pernicious Anaemia BEFORE starting any B12 supplements
b12deficiency.info/signs-an...
methyl-life.com/blogs/defic...
B12 drops
healthunlocked.com/thyroidu...
B12 sublingual lozenges
amazon.co.uk/Jarrow-Methylc...
cytoplan.co.uk/shop-by-prod...
B12 range in U.K. is too wide
Interesting that in this research B12 below 400 is considered inadequate
healthunlocked.com/thyroidu...
Note that improving folate when B12 is very low is not a good idea. Taking folate before B12 is good enough can lead to severe neurological problems.
en.wikipedia.org/wiki/Subac...
It is vital if you intend to supplement both B12 and folate that B12 is started a week before the folate.
low folate
With serum B12 result below 500, (Or active B12 below 70) recommended to be taking a a B Complex (to balance all the B vitamins)
once your serum B12 is over 500 (or Active B12 level has reached 70), stop the B12 and just carry on with the B Complex.
How other member saw how effective improving low B vitamins has been
healthunlocked.com/thyroidu...
Bladder weakness is a symptom of low B12
Oh wow all this is super helpful ..im on 80mg of propanalol and I keep telling the GP I've got low B12 symptoms but they say no thats all signs of hypothyroidism. Everything I'm suffering is put down to hypothyroidism. I'm suffering from horrendous memory issues and I'm petrified alcohol abuse has caused permanent damage.. im going to sit and go through all this fabulous information and make a bullet point list to take to see GP
NHS increasingly only treats the numbers …..not the symptoms
B12 range is far too wide here in U.K.
it’s possible to have symptoms long before B12 level is under 200
Alcohol abuse can result in low B1 (thiamine)
So you may from other benefits from adding vitamin B complex
Being hypothyroid can also result in low thiamine
verywellhealth.com/hashimot...
But it’s important to start B12 for at least a week BEFORE adding vitamin B complex
How long have you been on 80mcg propranolol?
What was it prescribed for?
Started on 40 18 months ago, it got upped and quetiapine added a year ago by my psychiatrist.
Psychiatrist should have known propranolol can affect thyroid hormones
There’s two specialist consultants who can prescribe T3 (liothyronine) active form of thyroid hormones
Endocrinologist and psychiatrist
Depression and anxiety are extremely common hypothyroid symptoms
Hashimoto’s often linked to, or misdiagnosed as bipolar
Links re Mental Health issues including Bi-polar and Hashimoto's
drknews.com/when-hashimotos...
holtorfmed.com/mental-illne...
thyroidpharmacist.com/artic...
hypothyroidmom.com/miss-dia...
ncbi.nlm.nih.gov/pmc/articl...
ncbi.nlm.nih.gov/pmc/articl...
First step is to get levothyroxine dose fine tuned so that TSH is always below 2. Most people when adequately treated will have TSH around or under one.
Most important results are always Ft3 followed by Ft4. Ft3 at least 50-60% through range
Get all four vitamins tested and optimal
Vitamin D at least over 80nmol minimum. Between 100-125nmol may be better
Serum B12 at least over 500
Active B12 at least over 70
Folate and ferritin at least half way through range
Getting coeliac blood test done before considering cutting gluten out.
Then, in 2-4 months might be able to consider SLOWLY reducing dose propranolol
b12 deficiency is caused by several things: pernicious anemia, alcoholism, poor gut absorption that can be due to taking medicines like PPIs e.g Omeprazole. You may need your B12 to be a lot better for the thyroid meds to work better. I did - but we’re all different! Go on the pernicious anemia page for more information. Good luck
helvellaAdministratorThyroid UK
My eyes go straight to "stomach protector". What are you taking?
Many medicines which could be described like that have a very noticeable effect on absorption of levothyroxine.
If your TSH is even remotely indicating your current state, those test results show a major issue. We often see arguments about whether TSH at 2 or 3 is acceptable - inside the reference interval but towards the high end. Your results are far, far too high.
I'm on slow release propanalol and venlafaxine also omemprezole. Oxybutinin. Codeine naproxen. Omemprezole and now on 150mcg levo was on 125mcg. Bloods done at 1pm levo took at 11am.
Report
How much propranolol ?
How long have you been on propranolol
Propranolol slows uptake and conversion rate of Ft4 (levothyroxine) to Ft3 (active hormone)
ESSENTIAL to NOT stop propranolol……propranolol has to be reduced incredibly slowly …especially on levothyroxine
pubmed.ncbi.nlm.nih.gov/168...
rejuvagencenter.com/hypothy...
labtestsonline.org.uk/tests...
Drugs that may decrease PTH include cimetidine and propranolol.
As a side effect propranolol frequently lowers magnesium levels
Essential to test vitamin D
NHS easy postal kit vitamin D test £29 via
Bloods done at 1pm levo took at 11am.
TSH has pronounced daily variation. Highest in morning and lowest after lunch
So TSH would have been higher if tested correctly at 9am
…..always test thyroid levels early morning, ideally just before 9am
Ft4 is falsely high as you took levothyroxine 2 Hours before blood test
Ft4 is right at bottom of range
Shows you are under medicated and dose has correctly been increased to 150mcg
Bloods should be retested 6-8 weeks after each dose change or brand change in levothyroxine
Always take last dose levothyroxine 24 hours before test
Which brand of levothyroxine are you currently taking
Do you always get same brand levothyroxine at each prescription
Approx how much do you weigh in kilo
Guidelines on dose levothyroxine by weight is approx 1.6mcg levothyroxine per kilo of your weight per day
We have to increase dose slowly upwards
ESSENTIAL all four vitamins are optimal too
Yes I always get same brand. That's one thing the endo told me to ensure and I weigh like 150kg so I'm guessing a need a horse capsule of levo 🤣🤣🤣
so likely to need further increase in levothyroxine after next test
Which brand of levothyroxine are you taking
Always take on empty stomach and then nothing apart from water for at least an hour after
And no other medications or supplements within at least 2 hours
Magnesium, vitamin D, PPI at least 4 hours away
You may find as dose levothyroxine in slowly increased upwards, you may start to slowly reduce weight
Have you had thyroid antibodies tested for autoimmune thyroid disease, also called Hashimoto’s. Usually diagnosed by high thyroid antibodies, but 20% of Hashimoto’s patients never have high thyroid antibodies and ultrasound scan of thyroid can help get diagnosed
Accord 100mcg and teva 2 x 25mcg . So am I best taking levo at night as if I don't take my codeine as soon as I wake up it's really hard to get pain under control . No autoimmune tests. I'm lucky my GP asked me last time I had bloods what I needed prior to weight loss surgery. ( We where convinced it would of dropped below the 10 mark ) so I can push for lots of tests because obviously I'm pretty poorly with it being so high. I'm at least going armed with reasons why the tests should be run
Teva brand levothyroxine upsets many many people
Request 50mcg Accord brand after Christmas
Meanwhile, do you have enough 100mcg Accord tablets to cut some in half to get 50mcg
Highly recommend a weekly pill dispenser so it’s easy to see instantly if missed a dose …..and if cutting tablets in half…..put the remaining half in next day’s section
Yes suggest you change to nighttime dosing
You can take tomorrow morning dose as per usual
Take next dose at bedtime
Or if want to swap over slowly
Take tomorrow mornings dose about 5am (set alarm)
Next night ….take about 2-3am
Next night take at bedtime
Make sure you eat main meal at least 2-3 hours before bedtime
And nothing apart from water at least an hour before levothyroxine
If your out late eating/or drinking…..can take levothyroxine in middle of night
Lots of members always take levothyroxine in middle of night …..especially if lots of other medications to fit around
Always test thyroid levels early morning around 9am
Ideally before test adjust levothyroxine as follows…..so last dose is 24 hours before test
If testing Monday morning, delay Saturday evening dose levothyroxine until Sunday morning. Delay Sunday evening dose levothyroxine until after blood test on Monday morning. Take Monday evening dose levothyroxine as per normal
I already get my meds, apart from thyroxine due to playing with dose, in blister packs due to memory. And again fabulous clear and concise guidance which is how I need it thank you
I'm lucky my GP asked me last time I had bloods what I needed prior to weight loss surgery
TSH .
6 months ago 13.8.
3 months 12.6
GP should have increased levothyroxine by 25mcg 6 months ago
On levothyroxine TSH should ALWAYS be below 2
TSH should be under 2 as an absolute maximum when on levothyroxine
gponline.com/endocrinology-...
NHS England Liothyronine guidelines July 2019
sps.nhs.uk/wp-content/uploa...
Page 9
Test for Deficiency of any of the following: Vitamin B12, Folate, Vitamin D, Iron
See page 13
1. Where symptoms of hypothyroidism persist despite optimal dosage with levothyroxine. (TSH 0.4-1.5mU/L)
Graph showing median TSH in healthy population is 1-1.5
web.archive.org/web/2004060...
pathlabs.rlbuht.nhs.uk/tft_...
Guiding Treatment with Thyroxine:
In the majority of patients 50-100 μg thyroxine can be used as the starting dose. Alterations in dose are achieved by using 25-50 μg increments and adequacy of the new dose can be confirmed by repeat measurement of TSH after 2-3 months.
The majority of patients will be clinically euthyroid with a ‘normal’ TSH and having thyroxine replacement in the range 75-150 μg/day (1.6ug/Kg on average).
The recommended approach is to titrate thyroxine therapy against the TSH concentration whilst assessing clinical well-being. The target is a serum TSH within the reference range.
……The primary target of thyroxine replacement therapy is to make the patient feel well and to achieve a serum TSH that is within the reference range. The corresponding FT4 will be within or slightly above its reference range.
The minimum period to achieve stable concentrations after a change in dose of thyroxine is two months and thyroid function tests should not normally be requested before this period has elapsed.
Oh I think I got my results mixed up. The one I've shown was April. Then I've had 2 more tests since. One in july/August which was the 13.8 then levo increased from 100 to 125 then latest one 27.6 only 2 weeks ago which saw levo go to 150 but bloods repeated after 4 weeks. When surgery back open I'm going to ask for print off from last 2 and see what everything else is doing.. now I've got clear advice to get the best results from levo hopefully it will start to go down. Honestly can't thank you enough and thanks for taking time out on Christmas eve ( now day) merry Christmas x
Omeprazole is a PPI used to protect stomach lining
But it also LOWERS stomach acid and vitamin levels
If it’s essential to take because of other medications….PPI should be as far away from levothyroxine as possible
Perhaps consider taking levothyroxine at bedtime and PPI in morning
Many people take Levothyroxine soon after waking, but it may be more convenient and perhaps more effective taken at bedtime
verywellhealth.com/best-tim...
No other medication or supplements at same as Levothyroxine, leave at least 2 hour gap.
Some like iron, calcium, magnesium, HRT, omeprazole or vitamin D should be four hours away
(Time gap doesn't apply to Vitamin D mouth spray)
If you normally take levothyroxine at bedtime/in night ...adjust timings as follows prior to blood test
If testing Monday morning, delay Saturday evening dose levothyroxine until Sunday morning. Delay Sunday evening dose levothyroxine until after blood test on Monday morning. Take Monday evening dose levothyroxine as per normal
Will also need to supplement to improve and maintain low vitamin levels
Essential vitamins are optimal for levothyroxine to work
Low stomach acid can be a common hypothyroid issue
Thousands of posts on here about low stomach acid
healthunlocked.com/search/p...
But never assume you have low stomach acid
healthygut.com/4-common-bet...
Web links re low stomach acid and reflux and hypothyroidism
nutritionjersey.com/high-or...
stopthethyroidmadness.com/s...
thyroidpharmacist.com/artic...
How to test your stomach acid levels
healthygut.com/articles/3-t...
meraki-nutrition.co.uk/indi...
huffingtonpost.co.uk/laura-...
lispine.com/blog/10-telling...
Ppi like Omeprazole will lower vitamin levels even further
gov.uk/drug-safety-update/p...
webmd.com/heartburn-gerd/ne...
pharmacytimes.com/publicati...
PPI and increased risk T2 diabetes
gut.bmj.com/content/early/2...
Iron Deficiency and PPI
medpagetoday.com/resource-c...
futurity.org/anemia-proton-...
Make sure you don't take anything containing Biotin for several days before any blood tests. Apparently biotin is used in the testing process and can skew the test results.
SlowDragonAdministrator
Request full iron panel test for anaemia including ferritin
Migraine is common hypothyroid symptom
Also meant to say this print out is from April. The latest test results weren't printed out as got a call to go see GP immediately..I was already on steroids and antibiotics for a seriously nasty chest infection. would they have interfered with results?
Antibiotics can affect absorption of levothyroxine…..especially if taken too close to levothyroxine
Steroids more likely to lower TSH…..
Are you still on steroids or antibiotics?
Move levothyroxine dose to bedtime/middle of night and change to Accord brand only
Retest in 6-8 weeks
Meanwhile get coeliac blood test done via GP BEFORE cutting gluten out
Working on improving low B12 as well
Vitamin D test too
Then can start looking at SLOWLY reducing propranolol in Feb or a bit later
I was stuck on propranolol almost 20 years. Took about 4-6 months to ween off 40mg daily …..More on my profile
Gluten free diet was a revelation
Hi bwitch,
These guys know their stuff - lot to work through but do it. I started in earnest two years ago nearly and their advice transformed my life (it’s in my bio). You’re so brave to reach out and this is the first step.
I had a lot of the symptoms you mention and they resolved themselves with adequate Levothyroxine. I’m just under 15 stone and on 150 ug of Levothyroxine (guidelines 1.6ug per kg). I have gone strictly gluten-free and have found this to be extremely beneficial.
Doctors don’t know how to interpret bloodline tests. I had to argue for every dose increase. The last GP said, “but your in range!?” and I said to him “but there is room in the range for another dose increase.”
Not a clue…..
Read other people’s posts and lived experience- it will build your knowledge
😊👍 welcome to the forum.
They really do know their stuff. I've so much stuff to read and it will be good to go GP actually knowing what I'm talking about. My coeliac test was done last bloods as both my daughters have just been diagnosed so it was suggested myself and son got tested.. im so pleased I asked on here. I've got a busy few months I think. Just keeping everything crossed it ends in my TSH being where it should and my weight loss surgery x
Have you had coeliac blood test results back yet?
approx 5% with Hashimoto's test positive for coeliac, but a further 80% find strictly gluten free diet helps or is essential due to gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies
Assuming test is negative you can consider go on strictly gluten free diet asap
If coeliac blood test is positive you will probably need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially
Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse
chriskresser.com/the-gluten...
amymyersmd.com/2018/04/3-re...
thyroidpharmacist.com/artic...
drknews.com/changing-your-d...
Non Coeliac Gluten sensitivity (NCGS) and autoimmune disease
pubmed.ncbi.nlm.nih.gov/296...
The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported
nuclmed.gr/wp/wp-content/up...
In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned
restartmed.com/hashimotos-g...
Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.
All three of your children need testing for autoimmune thyroid disease and get their vitamin d, folate, ferritin and B12 tested at least Annually
Don’t assume that NHS will check vitamin levels of coeliac patients…..rarely seems to happen these days
Coeliac results are fine. I will try gluten free as I'm prepared to try anything. So much information my brain is going to explode 🤯 but I'm so happy you've all took time out to answer me..im fed up of feeling bloody awful and only hope this works x
Seriously, maybe you have been misdiagnosed and your drug regime is causing all your issues/ symptoms you are being prescribed all those chemicals . Be well and God Bless you!
There is much literature about antipsychotics and some antidepressants reducing thyroid function. The correct diet and plenty of water could help a lot along with your doctors or s good nutritionist who works with thyroid. You tube has lots of useful info too. Good luck.
What is your current levo dose? How does your dose compare to the (approx) full replacement dose, which is about 1.7mcg per kg body weight?
Remember that levo should always be taken by itself, well away from food and other meds.
If you are already taking a hefty dose of levo, it could be that your absorption is poor. What sort of stomach protector med are you on? If you have a severe issue like gut wasted due to gluten intolerance, then your absorption could be compromised.
Do you have any idea of whether your levo is converting to T3? Has your doc run an FT3 test to see if you are within the normal range? Docs often forget to tell patients that T4 (levo) is just T3 waiting to happen, and T3 is what causes the benefit.
From personal experience, I can assure you that thyroid level is a MAJOR factor in both anxiety and panic attack.
I'm going to ask for every test known to man and those they won't give me I will get don't privately. I'm self funding my gastric sleeve so it makes sense to get everything where it should be x
if you get thyroid and vitamin levels where they should be (and possibly gluten free diet too) you more likely won’t need gastric sleeve
I take my levo Mercury Pharma) about 9.30 to 10.30 pm. My last meal is done by 5.30pm. I am prescribed 125, but take 150, and feel very well, most of the time. I used to have blood tests every 6 months, but since Covid our GP’s are doing nothing, including blood tests. It must be 2 and a half years since I last had a blood test. Just as well I feel ok! They do ask for my blood pressure every so often, which I take myself and send to them. As with most GP’s they have no idea about thyroid.
I'm actually really lucky. Apart from 1 rogue doc they are all lovely and I've never not got an appointment. I do an e consult and 99% of the time get a response the same day usually a phone call and on the times I've needed an appointment its been within 24 hours. I don't need to charm to door gargoyles I just bypass them 😃
Pity they don’t have a clue how to read thyroid test results
I cannot add to the brilliant information here, but just to say love your name! Yes, I know what it means - I have been called it often enough!
I suggest you give the info here a try, or nip over and I can supply toads etc... 
I hope you feel better soon and sending you a cwtsh.
Sooo confused. My thyroxine was upped by 25mcg and after some fantastic advice on here I started taking multi vitamins and taking my thyroxine at night and my TSH has gone down to 2.5 😍😍😍 I'm absolutely flipping delighted. Got an appointment on Monday with nurse over another thing but will triple check with her as obviously its really confudled me
No point testing thyroid levels until at least 6-8 weeks after any dose change or brand change in levothyroxine
How much levothyroxine are you currently taking
Multivitamins are never recommended on here
You need a separate vitamin D, separate vitamin B complex and separate B12 supplement….taken daily after breakfast
And a separate magnesium supplement taken afternoon or evening…..must be at least 4 hours away from levothyroxine
Have you discussed reducing propranolol slowly with your GP/psychiatrist
It was upped to 125mcg and oh my mistake with so many vitamins being recommended I thought multivits would work. I shall go off your recommendation . Yes I spoke to GP about my propanalol and they said ideally they would prefer another blood test to shoe thyroid levels still ok and me to feel an improvement in myself. But they have said for me to really think about it and if I still decide yes then make an appointment and we will work out a plan/timetable.
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