I am currently suffering with dizziness especially when I first get up. I can feel my heart beating fast in my tummy area. It’s so scary and can come out of the blue when I am standing. I just had my TSH tested and it was 0.85. I also have acid reflux and keep belching all the time, just waiting to have a camera down to see what’s causing it. The PPI’s were making it worse.
I recently had all my bloods checked by a neurologist because I have areas of numbness and they were all normal. Doesn’t anyone suffer anything similar and have any advice. My blood pressure does rise a bit when I stand up. Many thanks 😊
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FT3 3.92 pmol/l (Range 3.1 - 6.8) and it was recommended you try an increase in Levothyroxine from 75mcg to 100mcg/ consider seeing an endocrinologist who might support a trial of T3.
Thank you for your reply. I am currently seeing a GP. I did tell them my T4 was high and T3 was low but they didn’t want to know. I am currently on 75mg thyroxine. My TSH was normal at 0.85 so they won’t do any further tests. All my bloods were normal but my folate was low at 3.6 the range was 3 - 20. My RDW was 11.8 and the range was 11.6 - 14 and my MCHC which is something to do with my red blood cells was 349 and the range was 315 to 345. I did a 24 hour urine test and just waiting for the results.
I cannot afford to see a endocrinologist and I don’t think my GP will refer me because of my TSH result. I am also keeping a log of my blood pressure, it’s seems fine when I am sitting down but does go up when I stand up. It’s all so scary as I don’t know what’s going on.
Were you taking B complex before low folate result or only started since low folate result
Thorne Basic B recommended vitamin B complex that contains folate, but they are large capsules.
(You can tip powder out if can’t swallow capsule)
IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results
Test early morning, before 9am and last dose levothyroxine 24 hours before test
Get thyroid test results …..assuming Ft3 is still far too low ….request/insist on referral to thyroid specialist endocrinologist of your choice from the list
I would suggest getting your BP checked out by a GP if you are concerned. They should take it sitting, and standing at least. Blood pressure normally drops slightly on standing due to gravity. It can indicate an issue with your cardiovascular system but I emphasise the can bit. Best to get it checked out.
I am currently logging my readings once a day. My blood pressure is OK sitting but when I stand it goes up the top reading is fine but the bottom reading can go up to 90.
Do you have enough Levo to increase it yourself, to 100mcg? It might help the T3 to rise, we have many members who've had cardio issues due to low T3, which have resolved once they get their T3 levels up.
As only TSH was tested, you don’t have a full picture of your thyroid health. I would retest privately when you are able. Medichecks are often discounted on Thursdays so maybe worth checking then.
I successfully raised my folate by supplementing with Thorne basic b complex. This resolved many of my adverse symptoms.
Thank you for your reply and advice. My vitamin D was 96 (not sure of the range) my Ferritin was 84 - range 15 - 200 ug/l and B12 was 534 - range 180 - 640 ng/l.
I am taking 50mg Accord and 25mg Mercury.
I take my thyroxine in the morning an hour or two before I get up. I am strictly gluten free and I do have dairy but not too much I replace my milk on my cereals with coconut milk.
Yes I was having B12 injections privately and take vitamin D with K2 drops. Now I just take B complex, D with K2 , C, Omega 3 oil, selenium and zinc.
The indigestion is getting me down, as I keep belching all the time and get fluttering in my stomach, it just doesn’t feel right. I have been waiting weeks for an appointment to have a camera put doesn’t to see what’s going on. I recently stopped Nexium which I think has made it worse. I also have numb areas below my knee, my little toe and round my tummy. Really strange, I have to have nerve testing for this. Don’t know if it’s all connected.
Thousands of posts on here discussing low stomach acid as direct result of being hypothyroid/inadequate dose levothyroxine
Low Ft3 results in ongoing hypothyroid symptoms
Most GP’s and most endocrinologists don’t understand this
Vast majority of endocrinologists are diabetes specialists and useless for anything other than bog standard hypothyroidism
Poor conversion of Ft4 to Ft3 results in high Ft4 and lowish TSH……unless you test TSH, Ft4 and Ft3 together it’s impossible for a medic to recognise what’s going on
Come back with new post once you get all three tested together
You will need thyroid specialist endocrinologist - there are a few who are private and NHS on the list
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