Doc Martin and pseudogout

[Treepie]

The doc diagnosed pseudogout in this weeks episode and said it was related to thyroid.Googled it and found hypothyroidism is one of many conditions related to pseudogout. I am pretty sure I have had it three times in big toes and dehydration was the most likely cause.

[Elaine22]

hi I saw this on tv too. Immediately thought of last year, when I had a foot problem. I did mention to my doctor. She said, if it happens again to make an appointment for blood test. I believe it was gout. I’ll definitely be drinking more.

[Clydeiknowyou69]

I spoke with my doctor on Friday, I have calcium deposits in my arthritic (R) knee. He said it could be gout, or pseudogout. To have more blood tests done. Have auto-immune thyroidism,(Hashis) no treatment yet. Testing my TSH again also, if still above five I've to get levothyroxcine this time. Must catch up with Doc Martin.

[limonene7 in reply to Clydeiknowyou69]

Some people have very good results wit gout by taking celery seed as a supplement. Might be worth checking reviews on Amazon. 🙂There is also scientific evidence to back it up.

ncbi.nlm.nih.gov/pmc/articl...

[Charlie-Farley in reply to Clydeiknowyou69]

😱 still not being treated!!!

So 😬 just looked at your bio and past posts- your doc is ignorant- not his fault. You need to start reading and getting up to speed on your own health issues - can I suggest you go back and read the replies to your posts and take charge - you are destined for ill health if you wait for your doctor to sort you. Greygoose is one of the forum members who replied - very knowledgeable 😊👍 We might not be medical professionals but there is way more knowledge on here re thyroid than you will find in the average surgery- not their fault- huge remit unrealistic to expect it to be adequately covered.

[Clydeiknowyou69 in reply to Charlie-Farley]

I spoke to a different GP on Friday, he'll put me on levothyroxcine after they test my TSH again. Think they're more concerned about the calcium deposits, even though they're probably caused by the thyroidism.

[Charlie-Farley in reply to Clydeiknowyou69]

Hi again

On point yes - so many things go array when thyroid is out of whack and they delay treatment. Make sure they check all vitamins minerals mentioned on here too - B, D, ferritin, folate, magnesium etc. if taking supplements look at some of the replies to posts on here from SeasideSusie and SlowDragon about best vitamins etc to take especially important is form vitamin is in as this will affect bioavailability and thus may be no benefit to you - some cheap brands just go in one end and out the other. 😬

With D you need Co factor K2 MK-7 and magnesium to send calcium to bone and not be deposited in tissues. But more coherent explanations and all useful links will be found on SeasideSusie’s and SlowDragon’s post- just wanted to flag best place to find info if you hadn’t seen anything 😊👍

[Clydeiknowyou69 in reply to Charlie-Farley]

I have indeed had invaluable advice from several wonderful people on this site. Believe me I have been trying to get the doctors to listen, as I said the one on Friday seemed more enlightened regarding thyroid disease. Fingers crossed I get medicated after my next set of bloods. Thank you.

[Charlie-Farley in reply to Clydeiknowyou69]

If you want to see how I successfully got onto full replacement dose whilst in range for thyroid hormones and low TSH go have a nosey at my latest posts and bio. You can take charge, just need to get your ducks in a row. Hopefully this doc you are seeing will be prepared to involve you in decisions on your own well-being.

But if not please don’t humour them . I have read some heart breaking posts on here where people have lost months and years going along with the doctor knowing they are wrong, but hoping for an epiphany that never comes. 🙄

[Charlie-Farley in reply to Clydeiknowyou69]

With D you need Co factor K2 MK-7 I’ve edited original post 🙄 - need to go to bed 🥱👍

[oldebyre in reply to Clydeiknowyou69]

Could you let me know how to listen to Doc Martin - I also have the deposits in my knee - has anyone taken celery seeds along with Cytomel?

[helvella Administrator Thyroid UK in reply to oldebyre]

It is on television - not radio or podcast.

I can't see where you are, no country is identified in your profile. If you are in the UK, you can go here:

itv.com/hub/doc-martin/1a76...

But you need to sign up to the ITV Hub - and have the required hardware and software to access that.

If you are not in the UK, I have no idea, I'm sorry to say.

[oldebyre in reply to helvella]

Many thanks for your prompt reply - I'm in the US - I am familiar with that Doc Martin - I thought it was a real Dr. giving advise about deposits - as I said I have them, they are very painful when they make their presence known.

I'm going to a hematologist to try and find an answer, I also have slightly high iron levels which may be a factor.

If I am given an answer will post here.

Thanks for all the assistance.

[Clydeiknowyou69 in reply to oldebyre]

Have you had the calcium deposits for long? I've just been diagnosed. Getting bloods done to determine what's causing them. Do you have thyroid disease? I've had osteoarthritis in my knee for a lot of years, this can be a cause of this among other things.

[lismore in reply to Clydeiknowyou69]

Yes I have Hashimoto, the calcium crystals were found at a recent knee xray because of intense pain.

Awaiting blood results from hemotologist, which is doing in depth search. I was referred to hemotologist by rumetologist, I thought I had arthritis.

The pain moves to different areas ...ankle, wrist etc. It goes as suddenly as it appears, after visiting for sometimes days or weeks. Then it's gone until the next time.

[Clydeiknowyou69 in reply to lismore]

Thank you for your reply, I have pain at times in right shoulder also, right outer wrist, close to my hand. Have had pain in (R) thumb for a lot of years. Just assumed arthritis. Blood tests next week to try to determine a cause for the calcium deposits. Hope you get answers soon for your own health concerns.

[lismore in reply to Clydeiknowyou69]

Got the blood results positive for H63D which is linked to hematomacrosis, which can cause calcium deposits, not the uric crystals in gout.

See Dr next week, I'm very tired and joints ache, hope to come up with plan to lower iron saturation, my hashimoto could be a result of h63d.

[Regenallotment in reply to lismore]

ah interested in this, heamachromatosis came up on my gene analysis. This could help my chronic pains too. Thanks for sharing 🦋💚🦋

[lismore in reply to Regenallotment]

FYI....To be truly hematomachrosis they say you need two genes h63d and one other. My research tells me that there is more info on h63d syndrome. We should take note of elevated iron as it can cause a mountain of problems, liver heart etc. Let alone thyroid and cppd which I'm struggling with. Will update what Drs say next week

[Regenallotment in reply to lismore]

thanks! It says linked to COPD on my report too. Hope all goes well for you xx

[oldebyre in reply to Regenallotment]

COPD or CPPD, there's are big difference one is lungs and one is joints....??

[oldebyre in reply to oldebyre]

Have a look at this article about H63D

authorea.com/users/410930/a...

[oldebyre in reply to oldebyre]

Thinking about all of this makes me think that the faulty gene is at the root of many problems, thyroid etc.- testing in early life for faulty genes would be helpful and stop a lot of pain and suffering.....but we cant turn back the clock, so we deal with what we have, sadly we have to do the research ourselves....thank goodness for the web.

[Regenallotment in reply to oldebyre]

totally agree, as a child I had thought by now we’d just be scanned with a handheld device like on star trek and then whatever suitable medication delivered for perfect health. 🦋💚🦋

[Regenallotment in reply to oldebyre]

thanks I have heterozygous on the HFE making me a carrier. It says some carriers can iron load. I have lots of Celtic ancestry on Dads side.

[Regenallotment in reply to Regenallotment]

cripes thanks for spotting this, I thought CPPD is a typo. I’m off to Google it. Ahhhh I see now CPPD is Pseudogout, gotcha 👍

[Clydeiknowyou69 in reply to lismore]

Thank you for your reply, I'm awaiting my blood results at the moment. Hope you get answers from the doctor, and get on the road to feeling heaps better.

[Treepie in reply to Clydeiknowyou69]

Apparently can be both . Different crystals.

[Ellie-Louise]

I have had pain and no upward movement for years in my left big toe. I always put up with it, but a few months ag when I had to see the doctor about something else I mentioned it.

He sent me for an X-ray and a week later I had a call from the surgery telling me it had shown severe arthritis in the joint. They asked if I wanted surgery and as I really want to be able to wear my shoes again without pain, I agreed to it.

I am still waiting to hear and it’s been a good few months now. The girl next door had surgery on her toes and told me the waiting list is 3 years! She was lucky because someone she knew had private access to a clinic and got her in early.

[posthinking01 in reply to Ellie-Louise]

If it helps to wear 'shoes' I wear fashion clogs like Cotton Traders or the Italian company Fly Flots - they give you the width and are wonderfully comfortable - I haven't worn shoes or socks for that matter as they are so comfortable and look very smart and like boots if worn with trousers. If you would like a link please let me know and I will find one for you and post.

[Ellie-Louise in reply to posthinking01]

Thank you for your reply, I have some Fly Flots bought from Pavers.

[posthinking01 in reply to Ellie-Louise]

Could be low magnesium which is a problem with the thyroid which then allows calcium to build up unabated.

[Ellie-Louise]

I must admit, I do forget to take magnesium and when I do, it’s in the night to stop my legs from jumping about.

[posthinking01 in reply to Ellie-Louise]

Any gout issues are also a lack of Vitamin C apparently.

[Star13]

I was told I had gout in my big toe and referred to a specialist for medication but when I saw him he said it wasn’t gout but what Doc Martin said because it was in the wrong joint of the toe to be gout. He said take steroids for a couple of days which I did, never had an issue with it since. Apparently it’s a common miss diagnosis of GP’s.

Funnily enough I had another condition Doc Martin diagnosed as well on another episode recently. They always choose unusual conditions. It was Mal debarkment Syndrome which I had back in the 80’s after doing 6 international long haul flights in two weeks. I’ve never heard of that mentioned before anywhere. Brilliant program, so sad it’s been scrapped!

[Ellie-Louise]

I think they should make a prequel. Do a new series on Doc Martin’s young life starting when he is a child and starts thinking of a medical career. Also include when and where his blood phobia originates from.

[Starfish123 in reply to Ellie-Louise]

There are 3 movies that predate Doc Martin, he first appeared in Saving Grace and then they did 2 other movies, I think they are still available on DVD but for New Zealand so you need an unlocked DVD player to play in the uk. He is different though but well worth a watch.

[Ellie-Louise in reply to Starfish123]

I didn't know that. Thanks, maybe I'll have a search around.

We have the very last episode coming up this Wednesday.