Thyroid issues: I began having constant bouts... - Thyroid UK

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Thyroid issues

Rinajo profile image
10 Replies

I began having constant bouts of flight or fight . EXTREME to where i couldnt function in daily routines . I went to dr. I was placed on medical leave and referred to a endocrinologist. I Had a ct scan and it showed a cerebellum tonsillar ectopia and a sinus condition that is also effecting my eustation tube in my ears .I have been battling with my company about my disabilty claim started with the endocrinologist due to my thyroid was overactive. I was placed on medicine for thyroid and i still have the overwhelming fear and the blurry vision when trying to read. I also noticed a indent in my head recently . Ive had a lot of pressure with my ears and in the back of my head . The disability company wants a psychiatric statement now. Is this normal .

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Rinajo profile image
Rinajo
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pennyannie profile image
pennyannie

Hello Rinajo and welcome to the forum :

Have you been diagnosed with Graves Disease by the endocrinologist as I believe in some States in America this is recognised as a disability - but this is a UK forum and Graves isn't recognised here.

Graves can effect all aspects of one's health, personality and mental health so I would see the psychiatrist as just part of the process.

You might like to register on the Elaine Moore Graves Disease Foundation which is Stateside and Elaine has a forum similar to here where you can ask your question and hopefully find help and support in your own zip code and time zone.

elaine-moore .com

Rinajo profile image
Rinajo in reply topennyannie

My sister had graves disease and had to have her thyroid removed. I havent been diagnosed with it as of yet but my thyroid goes back and forth and i dont feel the medicine is working all the way. I see the endocrinologist again on the 12 of this month so i needed to know what i needed to know about anyone else if they have had this problem.

pennyannie profile image
pennyannie in reply toRinajo

Well - have you had your thyroid antibodies run ?

Which antibodies were found positive and over range - TPO : TgAB : TR ab : TSI ?

Rinajo profile image
Rinajo in reply topennyannie

Ill pull the report and see. I will let you know soon. I was unaware it didnt stop with removal of thyroid . Thank you for the information.

pennyannie profile image
pennyannie in reply toRinajo

The thyroid is the victim is all this as when Graves attacks the thyroid the symptoms can be horrible and life threatening because the thyroid is a major gland :

The thyroid is the victim in all this and not the cause :

The cause is one of your immune system having been triggered to attack your body and when the immune system attacks the thyroid thyroid the symptoms are such that you end up going to the doctors as you need medical help.

Mainstream medical can't cure your immune system but they can prescribe Anti Thyroid drugs to block your thyroid hormones, T3 and T4 rising higher and higher as over range and very high T3 and T4 levels are life threatening.

The AT drug buys you time and the hope is your immune system calms down and this is just a ' blip ' and you can get on with your life drug free.

The most recent research is suggesting the longer the patient stays on the AT drug the better the outcome for the patient :

pubmed.ncbi.nlm.nih.gov/338...

pennyannie profile image
pennyannie in reply toRinajo

Your sister has Graves - it is an auto immune disease - there is no cure.

She has Graves but hypothyroid: elaine-moore.com

humanbean profile image
humanbean

I began having constant bouts of flight or fight . EXTREME to where i couldnt function in daily routines .

Do you have a name for your thyroid condition?

When there is too much or too little thyroid hormones in the body it has an impact on the level of cortisol (one of the stress hormones, produced by the adrenal glands) in the body. Both low and high levels of cortisol have unpleasant symptoms, and there can be some overlap between them, so it isn't possible to guess whether cortisol is at a low / "normal" / high level, it must be tested. When cortisol levels are wrong for you it can cause panic, anxiety, jitters, pounding heart beat, fast heart rate, irritability, and many other symptoms.

paulrobinsonthyroid.com/sym...

If you recognise yourself in any of the symptom lists in that link, which symptoms are they?

I'm wondering if you might have an adrenal problem in addition to the issues you've already mentioned.

.

Hypothyroidism reduces levels of stomach acid, and as a result patients end up unable to extract nutrients from their food. This leads to low levels and deficiencies that can lead to all sorts of problems, both physical and mental.

Hyperthyroidism causes the metabolism to run too fast. This leads to nutrients getting used up very quickly and deficiencies and low levels can affect them too.

The nutrients that get mentioned on here the most are:

Vitamin B12

Folate

Vitamin D

Ferritin

Iron panel

Others that people sometimes test or supplement or both :

Zinc

Copper

Selenium

Iodine

Calcium

There are a very few nutrients that can be supplemented without testing e.g. vitamin C. Magnesium can be supplemented without testing as long as the kidneys are healthy - and testing is unreliable for magnesium anyway.

Most nutrients should be tested before supplementing.

a sinus condition that is also effecting my eustation tube in my ears

I have Eustachian Tube Dysfunction, and it sounds as if you might have this too. I haven't found a cure for mine.

patient.info/ears-nose-thro...

Unfortunately treatment options are limited and in many cases not very successful and many people never find a cure or treatment that helps, but you should at least give the options a try. I'm currently following up a new idea (new to me, anyway) - that vitamin A (retinol) might help. I'm not hopeful, I must admit. I may have to pay privately to see a specialist, but my experience of ENT doctors has been dreadful, so I don't hold out much hope.

.

Don't get bogged down in assuming that you have one medical condition and that fixing that will fix everything if only you can find the perfect treatment. Doctors often act as if nobody can have more than one symptom or medical condition at a time. Multiple symptoms or multiple conditions are seen as a sign of the patient being a hypochondriac, which is 100% nonsense.

I think your doctors are probably wrong to suggest your problem is psychological or psychiatric - your cerebellar condition or thyroid condition could be the cause. But since this issue is a road block in your treatment, for the moment you may have no choice but to agree to see a psychiatrist, and just try to prove you are mentally well, and your problems are all physical. Try to see a properly qualified psychiatrist, not a cheap therapist who has limited training and can't diagnose anything.

.

I'm not clear on why nobody has suggested that you get your cerebellar condition treated surgically? Or is that not appropriate? I just had a quick whizz through a couple of links on the subject and your condition was compared to a Chiari Malformation. I thought those could be treated surgically.

humanbean profile image
humanbean in reply tohumanbean

I forgot to add these two links :

en.wikipedia.org/wiki/Ataxia

en.wikipedia.org/wiki/Cereb...

en.wikipedia.org/wiki/Chiar...

serenfach profile image
serenfach

Just to add that the insurance bods like a psychiatric statement, just to make sure you are not trying to cheat the system. It is normal and usually just a couple of questions, a quick look to see you are not very well, and a tick in the box. I hope you get to the bottom of it soon and can begin to be treated and feel well.

I lost one adrenal gland (removed without consent) and had HUGE rushes of adrenaline - I wore a path in the back garden trying to walk it off, and the dogs had so many walks, they were fit! I literally shook with what felt like pure rage - a really horrible feeling. Luckily I live in the middle of nowhere and could go out into the fields and scream and run about. I dont think anyone saw....

Essexlil profile image
Essexlil

hi, I have autoimmune underactive thyroid. Before my medication was at the correct level, when I woke up in the morning I used to get what I can only describe as a horrible rush of adrenaline rising up in my body. It was a very unpleasant way to wake up and it felt like a state of panic. Since I’ve been on the more correct dose it has stopped so I wonder if it is your thyroid not under proper control, causing your adrenal glands problems.

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