T3 only endocrinologists PM please please 🙏🏻

[Kitty1watson]

Hello again.

Are there any endocrinologists out there (any at all) who are willing to let me try T3-only at a decent dose? I'm currently trying Armour and after an initial over-reaction to two tablets, it appears to have no effect on me at all.

I've been on 200mcg T4 and 30mcg T3 for some time and it does nothing.

I'm now trying 3 grains Armour in the mornings plus 2grains at night. I feel nothing.

Does my body just kill off all thyroid medication the moment it enters my body?

Feeling rather desperate.

[SlowDragon Administrator]

Looking at previous posts……can’t see any recent vitamin results

What vitamin supplements are you currently taking

When were vitamin D, folate, ferritin and B12 last tested

Presumably you have Hashimoto’s?

[Kitty1watson in reply to SlowDragon]

My D3 is bottom of range, but I take D3. B12 is now high as I take it. Ferritin is low in range.

Folate is high in range.

I take all the main supplements and just ordered those advised by Dr... in for a penny....

I don't have Hashimotos, I believe.

My latest thyroid results, (and they're always the same) are around:

TSH 0.01 suppressed (buy I take T3)

FT4 6.3 [9-19]

FT3 2.3 [3.2-6.8]

Dr report says I need to get my levels up urgently but I've been taking Armour for a couple of weeks and just feel awful, after one day of palpitations etc. I've gone right back to how I felt before despite an increase.

[SlowDragon Administrator in reply to Kitty1watson]

Please don’t name specific Dr

Will edit

[SlowDragon Administrator in reply to Kitty1watson]

What were results on 200mcg levothyroxine plus 30mcg T3

Which brand of levothyroxine and which brand of T3 were you taking

Have you had BOTH Thyroid antibodies tested for autoimmune thyroid disease (hashimoto’s)

TPO and TG antibodies

20% of Hashimoto’s patients never have raised thyroid antibodies

Have you had ultrasound scan of thyroid

ALWAYS worth trying strictly gluten free diet and/or dairy free diet

If dairy is an issue, would need lactose free levothyroxine, T3 or NDT

All four vitamins need to be optimal

Please add actual results and ranges

How much vitamin D are you currently taking

Are you also taking magnesium supplements and vitamin K2 mk7

Optimal vitamin D at least over 80nmol minimum

Low ferritin

Have you had full iron panel test for anaemia

Ferritin needs to be at least over 70 for any replacement thyroid hormones to work well

Are you vegetarian or vegan

Serum B12 at least over 500

Active B12 at least over 70

Folate at least half way through range

[Kitty1watson in reply to SlowDragon]

Those *are* the results from when I was on 200/30.

I'll have to go and find the full print out of vitamin ranges but they're what I've said, meaning B12 was over 700, D3 was about 50... I will check the exact figures later. Thank you.

[SlowDragon Administrator in reply to Kitty1watson]

You said ferritin was low …..How low Will need full iron panel test for anaemia

High B12, if NOT supplementing can be deceptive

Paradoxical B12 deficiency

b12oils.com/paradoxical.htm...

[Kitty1watson in reply to SlowDragon]

So, a few months ago ferritin was 40 (10-109). I started taking a liquid supplement and my latest test in July was 82.8 (13-150).

My CRP HS is 4.70 (0-5.0).

The latest folate result - I am actually not sure, I was thinking of a previous result. It is 11.35 (range >3.89). It's over 3.89, so presumably OK?

D3 is 55 which is "adequate". I do still take it.

Results

[SlowDragon Administrator in reply to Kitty1watson]

Have you now stopped iron supplements, if not you should do as ferritin is at good levels

It’s possible to have high iron and low ferritin

So if taking iron supplements you should do full iron panel test done 2-3 times a year

Medichecks iron panel test

medichecks.com/products/iro...

Vitamin D needs improving to at least around 80nmol minimum

[Kitty1watson in reply to SlowDragon]

I reduced the number of days I take iron, so every few days instead of every day. I take the D3/K2 oral spray.

[SlowDragon Administrator]

Ft4 7.1 (12-22)

Ft3 2.84 (3.1-6-8)

What were you taking thyroid wise ?

Last dose levothyroxine 24 hours before test

Last 1/3rd of daily dose T3 or NDT approx 8-12 hours before test

[Kitty1watson in reply to SlowDragon]

200mcg levothyroxine and 30mcg liothyronine. Yes, I follow the advice on here when testing.

[SlowDragon Administrator in reply to Kitty1watson]

To have such low thyroid levels on such high dose levothyroxine and T3 suggests malabsorption

Do you always take levothyroxine and T3 on empty stomach and then nothing apart from water for at least an hour after

No other medications or supplements within 2 hours

No iron, magnesium, calcium, HRT or PPI or vitamin D tablets within 4 hours of levothyroxine

Have you tried splitting levothyroxine taking half waking and half at bedtime

Do you split T3 into 2 or 3 doses

Are you on dairy free diet?

If no, definitely worth trying

If you are on it, or when on it ….you need lactose free levothyroxine and lactose free T3

Are you on strictly gluten free diet

Suggest you start taking a daily vitamin B complex

[Kitty1watson in reply to SlowDragon]

Unfortunately, I do everything you've listed and have been really regimented for a long time. I split doses, take supplements hours away from thyroid medication (I take one dose of thyroid medication first thing, 8am, nothing to eat or drink for over an hour, supplements at lunchtime, 1pm-ish, further thyroid dose at about 5pm, at least an hour before dinner, then again at bedtime). I'm on a lactose free medication, very rarely have dairy and have been gf since 2007. My kids have CMPA and gluten intolerance, so we rarely have dairy at all in the house (we all use alternative milks now, never buy cows milk and my husbamd still has normal bread/pasta etc but the rest of us don't).

I've now asked the doctor to really think about the fact that I was really well for about 3 months in 2019 (last few weeks of pregnancy and then 3 months after my twins were born). I'm convinced there's something there, for example:

Oestrogen/progesterone

Immunity suppressant

Taking metformin

Babies' thyroid hormones

Babies' other hormones (oestrogen for girl, testosterone for boy)

I also briefly felt better in about 2016, when I went back on the progesterone only pill after my first son was born, but that plateaued and then got worse again within two months. What it HAS done, though, is all but cure my severe migraines (I have aura migraines, possibly hemiplegic or vestibular migraine and went from 8 a week to less than 1 or 2 a week after starting cerazette again).

I'm waiting for two other private specialists to respond to me and am hopeful someone out there can help.

[SlowDragon Administrator in reply to Kitty1watson]

See how you get on with Armour

Is it lactose free?

[Kitty1watson in reply to SlowDragon]

Yes, I think so. I think I'm feeling worse, if anything!

[SlowDragon Administrator in reply to Kitty1watson]

Ever tried liquid levothyroxine

Several members find it significantly better than levothyroxine tablets

There’s Tirosint T3 as an option…..but not sure if can get here in U.K. yet .

[Kitty1watson in reply to SlowDragon]

Yes, I did try liquid levo, but it seemed to give me awful gastritis-type pain.

[SlowDragon Administrator]

21 days ago you started on 2 grains of Armour

But 10 days later you’re on 5 grains

That’s too much of an increase too quickly

Likely adrenals are unable to cope

Suggest you get Regenerus cortisol and DHEA saliva test

regeneruslabs.com/products/...

cdn.shopify.com/s/files/1/0...

Previous post you say you have hyper mobility (EDS) - that suggests your hypothyroidism is autoimmune