discharged from endos clinic

[Kimkat]

I had my last appointment with my endo last week, which isn’t such a bad thing as he obviously didn’t really listen to me anyway. During the call he actually asked me how I was and when I said I was still not quite there yet, he then said well we all feel like that at times 🤦🏼‍♀️. So now I’ll definitely be pursuing the private option. Once I had given him my last blood results., he said he wants me to take 100mcg 4 times a week and 25 mcg for the other 3 days as I had managed to persuade my GP to up my dosage to 100 a day without his consent. Whatever! The man’s a joke, so I won’t be missing his non existent advice at all.

[DoeStewart]

So sorry to hear about your experience with your Endo, its quite unbelievable isnt it? I dont know of any other group of people who are treated like this by the medical profession, I know the NHS isn't as it should be but this attitude with patients with thyroid problems has been going on for years. The condescending manner you have been treated with is appalling and you won't lose any sleep by not seeing this "expert" again. I wish you good health and I hope you find someone to give you the treatment you need.

[bantam12 in reply to DoeStewart]

Cardiology is just as bad !

[DoeStewart in reply to bantam12]

My goodness really? I despair 🙈

[waveylines in reply to DoeStewart]

Indeed it is.....lol. Neurology not much better.......I had to grovel to get my B12 jabs on the NHS as he sat with his entourage, which he didnt even bother to ask me if that was alright, smirking. His argument was that it was cheaper for the NHS if I bought them. He seemed to enjoy my begging and in the end relented saying well alright like he was dong me a big favour!! Unbelievable. I had to grit my teeth and stay focussed on getting the outcome I wanted - getting the b12 injections as my GP wasnt allowed to precribe without his consent. That process took 7 months. He never bothered to investigate the cause of my tremors! So lazy as well. Having said that saw another neurologist four years later who has investigated, so far has been superb and miraculous enough, actually listens to and respects his patients! Chalk and cheese comes to mind. Ive long come to the conclusion you have to be very persistant, determined, focused and patient with the NHS.........

[Sparklingsunshine in reply to bantam12]

Hi

I had frozen shoulder a few years ago and it was so bad I went for a orthopaedic consult with a view to getting it sorted surgically.

The consultant was so rude and patronising I walked out and told his poor HCA who came chasing after me, where he could stick his operation, preferably with his own instruments, and where he would need surgery himself to remove them.

I was so angry and I'm normally pretty even tempered. I'm so glad I didn't go through with it as it rectified itself. I complained to my GP about it who admitted the surgeon had a "reputation".

[bantam12 in reply to Sparklingsunshine]

Yep I could right a book about all the hideous experiences I’ve had with various Drs, a huge number don’t give a toss about the patient !

[Batty1]

We should make a post about “The Awful things doctors have said to us”

[Kimkat in reply to Batty1]

Sounds like a plan 🙂

[LindaC in reply to Batty1]

Oh go on... sadly, we'd likely crash the site!

[Autumn_1]

I can totally understand your frustration, I waited ages to see an Endo & he was very patronising towards me. I like all of us,with help from this knowledgeable forum went well prepared, only to have every suggestion I made dismissed. It’s so upsetting, when all we want to do is feel better & we are all more than willing to put in the effort. All we need is someone qualified to guide us, not just write us off. Keep believing it will improve & take some solace, we’re in this together. 🙂

[Timetraveler67]

So sorry to hear of your experience kimkat I had similar last year my endo said I felt like I did because I was anxious, and wrote to my Dr telling her to refer me to mental health. I was so upset over that because all I wanted was my endo to recognise that the levo on its own wasn’t working but the Drs we see somehow have an art of twisting things around to suite what fits best for them. I’m so very carful now how I speak to Drs because what we say can be used anyway they like that suites them. I wish you well x

[Kimkat in reply to Timetraveler67]

Yes I think if we’re lucky enough to see an endo that specialises in the thyroid we are on to a winner, unfortunately they all seem to specialise in diabetes.

[jade_s in reply to Kimkat]

And not all that great at treating diabetes from what I hear and see. I was shocked when I went to a new endo at the local teaching hospital after I moved cities some years ago. The entire waiting room was full of people in wheelchairs with very bad diabetic legs or missing limbs and all appeared to be type 2's. They all obviously had very poor blood sugar control. I was just floored, really. It doesn't have to be like that! Maybe it was a fluke, but I don't trust any of the endos I've seen for anything endocrinology related (or any other condition either, obviously). I have some stories from relatives too (in the UK). But it's not just me. If you read Dr Richard Bernstein's books or watch his videos (US based), you quickly learn most endos are pretty awful at diabetes care. As DoeStewart says below, it's pretty bad, and not just in the UK :/

[DoeStewart]

Gosh, things are worse than I ever imagined. God Help Us All.