Perhaps a little more information, please. What was your T4 result and did you have other tests? Where are you with menopause? Why has your thyroid been removed and when?
Without additional information -T4 certainly appears too high, is this a sudden rise? No T3 result. Assuming you are on Levothyroxine. Apparently, as we get older we require less but has TSH changed at all, there might well be something else going on here, hopefully, Endo will respond. Your symptoms could also be due to ME/CFS.
Hi again Penn1966, Sorry this is beyond my understanding, provided that tests have been taken under the same conditions, time of day, not taken medication that day, I have never known results to go "up and down" with the same medication and no thyroid. T3 test would be useful. I suggest that there is something more complicated going on and hopefully your Endo is on the ball. This might also be leading to the ME/CFS diagonosis.
I'm puzzled by your TSH in that image of your Medichecks test results. It seems to be too high for the level of Free T4 and Free T3 you have.
If I had your Free T4 and Free T3 I would want to reduce Levo dose until it was around 70% - 80% through range and then would add in T3. Adding T3 can sometimes reduce T4. Once T3 was okay, if Free T4 was still high I would reduce T4, if it was a bit low I would add some back. I don't know what these changes would do to your TSH.
Don't bother mentioning such a small change to your dose to a doctor. Once a doctor reduces dose getting the higher dose back again is sometimes virtually impossible.
Good morning Penn 1966, Why is Thyroid UK saying don't use this group as you get more help and better advice from them than any GP or Consultant I have ever seen they just want to know TSH results look at a sheet and say normal! It doesn't matter how you feel.
You don’t seem to be getting any good advice from your Endo (surprise surprise). I don’t understand why your TSH is 2.1 with an over range FT4. You have the same problem as me, I needed my FT4 way over range just to get my FT3 half way. I didn’t feel well.You do know that you don’t have to ask permission to lower your dose. You could try lowering it yourself by 12.5 mcg and see how you feel. Retest in 6/8 weeks. The only problem is that It will probably lower your FT3 as well which would show you need some Liothyronine alongside your Levothyroxine. As you have no thyroid you probably do need some T3. Doctors/Endos are there to advise not dictate.
That could be because your FT4 is too high for you. Who diagnosed you with CFS and fibromyalgia. My GP tried diagnosing me with CFS over the phone - I haven’t seen him since April 2019. I’m afraid I told him what he could do with his diagnosis and then went to a private Endocrinologist who said he could tell just by looking at me that I didn’t have CFS. All I needed was T3.
Seen it i had every blood test available before i was referred to The CFS FIBRO Clinic yesterday and was diagnosed by a rheumatologist who checked all my pressure points etc
Try Aripiprazole if you can get it. It is an antipsychotic but Dr Bonilla of Standford University wrote to me and said the following: Thank you for your comments; this is another reason we need to stop thinking aripiprazole is an antipsychotic. There are other benefits. I have seen in some patients aripiprazole is a miracle drug.
-There is data on anti-inflammation (decreasing cytokines),
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Warning a bit of a rant
The problem with ME/CFS and hypoThyroid
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Antibodies and Hashimoto’s
