T3 Advice!: I started taking my T3 on Wednesday... - Thyroid UK

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T3 Advice!

PrincessAnnie profile image
40 Replies

I started taking my T3 on Wednesday morning with 5mcg so this is my third day and I’m feeling kinda weird,I don’t even know how to describe it🤷‍♀️I feel slightly hyper maybe with a little bit of a headache.

I’m sticking to my current dose of levo for now which is 75mcg one day and 100mcg the next,is this feeling normal when first starting?

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PrincessAnnie profile image
PrincessAnnie
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40 Replies
SeasideSusie profile image
SeasideSusieRemembering

PrincessAnnie

It could well be down to the individual. I felt nothing, not even when I increased, then quite some time later I just realised that I generally didn't feel so bad as I used to.

PrincessAnnie profile image
PrincessAnnie in reply toSeasideSusie

Someone said to me they had headaches and felt a weird feeling in their body but it passed,I guess I’m just looking for some more reassurance.

radd profile image
radd in reply toPrincessAnnie

PrincessAnnie,

When I first introduced T3 I had a headache and inner heat that lasted about three days each time I had a raise of 5mcg.

PrincessAnnie profile image
PrincessAnnie in reply toradd

Thanks for your feedback radd it’s reassuring.

DippyDame profile image
DippyDame

It's most likely your body adjusting to the T3.

We are all different

Try to be patient and don't be tempted to alter your dose too soon.

It took me a long time to find my therapeutic dose....now T3-only!

Hope you feel better soon.

PrincessAnnie profile image
PrincessAnnie in reply toDippyDame

That’s what I’m hoping dippydame🙏I was going to add another 5mcg in the afternoon on Monday but I think I’ll give myself the 7 days on the 5mcg and see how I go.

DippyDame profile image
DippyDame in reply toPrincessAnnie

Sounds like a good plan

Three days is too soon

"Low and slow" is the way we're advised to go.

Jasp6 profile image
Jasp6

I felt tired and headachy for a couple of days after introducing T3. Then the improvements kicked in, some fairly quickly and others improved over time. Biggest improvements have been regaining a zest for life, more mental and physical energy, less heavy and sore limbs. Still waiting to find out if I can continue on it. I am on 100 levo and 10 T3.

PrincessAnnie profile image
PrincessAnnie in reply toJasp6

Thanks for your feedback it’s appreciated.

AppleOrchard profile image
AppleOrchard

I started T3 in February. I increased 5mcg every two weeks. I’m now on 25mcg. I didn’t feel anything but everyone is different. It’s important to do it slowly to allow your body time to adjust.

I reduced my levo from 125 to 75. That may have been too much. Time will tell. I will have a blood test on 9th May to see how it’s going.

I do feel much better although not there yet. The main thing is my voice is much better most of the time.

Given that you feel a bit weird perhaps allow two weeks between dose increases.

I hope it makes a difference for you in a positive way.

PrincessAnnie profile image
PrincessAnnie in reply toAppleOrchard

Thanks for your feedback it’s appreciated.

shaws profile image
shawsAdministrator in reply toAppleOrchard

25mcg of T3 is approx to 100mcg of T4.

Valerie2015 profile image
Valerie2015

I had headaches for weeks and actually didnt feel good but I persisted, they passed and I have been better on combination therapy. Go slow…

PrincessAnnie profile image
PrincessAnnie in reply toValerie2015

Appreciate your feedback I’ll definitely go slow.

Confused22 profile image
Confused22

I had the headaches too and it threw me when I started as I wasn’t warned about them! I started at 10mcg per day which other users here have suggested was too high as a start dose. I also dropped from 100 to 75 of my levo at the same time. I split to 5mcg of T3 twice a day in an effort to not give my body such a big hit of T3 in one go and the headaches definitely eased after a few days. I’d say if you’re still getting the headaches to wait until you can manage a few days before increasing your dose if you can. Good luck, hope it is a help to you.

PrincessAnnie profile image
PrincessAnnie in reply toConfused22

Thanks for your feedback it’s appreciated I’m feeling ok today.the endo wanted to start me on 10 in the morning and 10 and night so I’m so thankful for this forums knowledge on starting slow.

FancyPants54 profile image
FancyPants54

Day 3 of any dose increase (T3 or Levo) has me feeling a bit like you describe. A bit revved up. Keep going. It subsides and normalises for me, so hopefully it will for you too.

PrincessAnnie profile image
PrincessAnnie in reply toFancyPants54

Thanks for your feedback it’s very reassuring,feeling ok today🤞

FancyPants54 profile image
FancyPants54 in reply toPrincessAnnie

That's how it goes for me. I feel good on day one of a T3 increase but day three usually seems me like you described and then I can start feeling rubbish for a couple of days and then it levels out. I'm due another increase by the feel of me! I'm on 55mcg a day so it looks like I don't absorb it very well.

PrincessAnnie profile image
PrincessAnnie in reply toFancyPants54

Aw sorry to hear that,that seems like an awful lot,do you take levo too?

FancyPants54 profile image
FancyPants54 in reply toPrincessAnnie

I have reduced my Levo from 125 to 50 now. And it wasn't until I reached 50 with it that I felt any benefit at all from the T3. Levo has never helped me, and the worse I have got the more I think it's actively made me suffer. Some people need a lot of T3. We need what we need. We are all different. This time last week I was 1 week into the 55mcg T3 increase and had much more stamina than normal. This week I'm struggling again so that's why I think it's time to rise. My private endo is happy with what I'm doing although he did ask me on Thursday if I would consider putting my Levo back to 75. The rapidity of my refusal meant he immediately acquiesced.

PrincessAnnie profile image
PrincessAnnie in reply toFancyPants54

Maybe give it a bit more time to see if it helps🙏

FancyPants54 profile image
FancyPants54 in reply toPrincessAnnie

No, it did help and now it's dropped so that indicates a time for a raise. My BP and temp are fine so no worries there. I had to drive up the M1 yesterday and could feel myself fighting off falling asleep. I can't have that.

PrincessAnnie profile image
PrincessAnnie in reply toFancyPants54

No that’s not good at all😢how long would you recommend waiting before having my bloods checked?

FancyPants54 profile image
FancyPants54 in reply toPrincessAnnie

This is your first T3, so I would say you need to wait the recommended 6 weeks. But if your weird feelings subside and you start to feel ready for more, you can add another 5mcg dose in 2 weeks, and again after another 2 weeks. Only when you feel you have enough to be going on with is it worth waiting the 6 weeks to test. Blood tests on T3 are not really that useful anyway. I've been regular with mine because my FT4 was not behaving quite as it should and my T3 wasn't helping much so I need all the clues I can get. But you will probably find the process easier. I'd say you can work your way up to 20mcg a day in split doses, before you need to do a test.

PrincessAnnie profile image
PrincessAnnie in reply toFancyPants54

Thanks for your advice❤️

FancyPants54 profile image
FancyPants54 in reply toPrincessAnnie

So much of this is trial and error. But if you get unpleasant or unusual reactions, don't back-track immediately. I've been guilty of that and as a result it's taken a long time to get to where I am. Hold any dose change at least a week before you change anything, longer if possible.

PrincessAnnie profile image
PrincessAnnie in reply toFancyPants54

I guess I just panicked a little but it’s settled now and the reassurance I’ve had on this forum has helped me to continue.I’m going to add another 5mcg in the afternoon on Wednesday as that’ll have been 7 days but I’ll give that the two weeks and see how I go,I’ll be going on holiday the following Wednesday so I’m not really wanting to change anything while I’m out the country.

PandoraXX profile image
PandoraXX

I also felt hyper taking the same dosage - though my Dr. thought my numbers looked good on paper. I have since halved the dosage and feel a lot better! I was also getting breathless during intense physical exercise - but now I feel okay since halving the dose. Still have to check blood work. My doctor dismissed my complaints by labeling them "subjective". :-(

PrincessAnnie profile image
PrincessAnnie in reply toPandoraXX

Thanks for the feedback it’s reassuring to know it can happen,doctors are good at that aren’t they🙄

tj61 profile image
tj61

Hi, when I started T3 at 20mcgs a day, I had a headache for six weeks and it did eventually go away 🤞

PrincessAnnie profile image
PrincessAnnie in reply totj61

Thanks for your feedback,the endo wanted to start me on 20 a day but I’m just starting on the 5 then I’ll add another 5 in next week.

tj61 profile image
tj61 in reply toPrincessAnnie

With hindsight I think it would have been more sensible titrate gradually, but he immediately halved my T4. Although my pulse & temperature normalised, I can't say I feel a lot better, but a bit.

PrincessAnnie profile image
PrincessAnnie in reply totj61

Hopefully you’ll feel better soon🙏I think it’s just a matter of getting your dose right and what time is best for you to take it.

HornM profile image
HornM

Hi PrincessAnnie, I take the same levo dose as you and have had similar issues when trying to add 5mg t3 in the past. I had a very 'thick' feeling head, and a 'tired but wired' feeling that I would associate with being over medicated (yet there's no chance I was hyper). I felt unlike myself/depressed and ceased after a couple of days as I assumed I wasnt tolerating it. Since then I've ensured my nutrient levels are all optimal and am geared to try again (I had ferritin issues and I understand that can create issues). Now reading your post, and responses, I'm realising it's important to push through these undesirable symptoms, rather than reading them as a sign to stop. I too needed reassurance (and will likely need it again) and am glad for your post! I might follow you and see how you go on your journey. Fingers crossed for improvements from here :)

Are you taking regular t3 or slow release?

My doc has just prescribed me 2.5mg slow release, so ill be starting very low and slow.

PrincessAnnie profile image
PrincessAnnie in reply toHornM

I’m taking normal t3,well at least I think it is,he wanted me to start taking 10 in the morning and 10 at night and up my levo to 100 a day but after advice on here I’m sticking with my current dose of levo and introducing the t3 at 5 at a time,I don’t feel as weird now,maybe just a slight headache but certainly not as weird as I did the day I posted this.I’m going to add in another 5 in the afternoon on Wednesday as that will have been a week and see how I go from there.

HornM profile image
HornM in reply toPrincessAnnie

That's good that you don't feel as weird, im glad to hear it, any improvement is a relief. Yes, sounds like the advice on here is far more sensitive to the reality of how some of us weather it - thank goodness for this community, right? Good luck with your increase on Wednesday!

PrincessAnnie profile image
PrincessAnnie in reply toHornM

Most definitely I’ll be forever thankful to this community🙏Thank you and I hope things work out for you too.

Everybody is different. That being said, I suffered when the doctor put me on only 5mcg of t3 and my normal T4 dose. It caused me the contrary effect. I was cold, had headaches and constipation came back. Two months later I was fine. It seems it does not work for me. I had my blood work last week and T3 is exactly the same as it was. I did not call the doctor because I wanted the T3 to work. Evaluate your case and if you feel strange, do not suffer and call him. Best of luck and good health!

PrincessAnnie profile image
PrincessAnnie in reply to

It’s gone away now so alls good thank you.

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