Last Hope-hypothyroidism symptoms??

[Carlita81]

Okay. I've seen a neurologist (I have epilepsy too), endocrinologist (of course), ear, noes, and throat doctor, optometrist, a psychiatrist, even the ER (given the severity of the symptoms) doesn't know why and how these symptoms are related to thyroid disease given these symptoms are relieved via taking my levothyroxine. The ENT doctor said if its controlled why question it. However, if it gets worse or have relapses, who do I go to...

Have any of you guys had these symptoms

1. Severe vertigo (can't walk/stand, nausea, and uncontrolled seizure-like movements) I had to call 911 one time because I couldn't lift my head. The ER had to pick me up and I was flailing all over the place. I stayed in the hospital for 8 hours because they couldn't let me go until I could walk (and at least sit in the wheelchair straight).

2. Double vision (which goes with the hypothyroidism but it seems to double in severity to where I lose all dept perception)

3. It takes a good day to get better and a couple of days to walk without some sort of dizziness.

It has a lot in common with central vertigo (so looked up) but how does the levothyroxine control it if its a brain thing?

I have hypothyroidism due to an enlarge pituitary gland.

I'm looking more for someone who shares these experiences and resources. Unfortunately, my doctors are just as stumped as me.

Thanks ahead of time.

[radd]

Carlita81,

Welcome to our forum,

Thyroid hormones are absolutely critical for not only healthy fetal development but in maintaining adult healthy brain function. The hypothalamus & pituitary are glands in the brain. When the hypothalamus senses low circulating thyroid hormones levels it secretes TRH (thyroid releasing hormone) which in turn stimulates TSH (thyroid stimulating hormone) by the pituitary that increases T4 & T3 by synthesis and conversion.

Thyroid hormones are so important for the brain & central nervous system that the enzymes & receptors involved with activation/deactivation and that of gene expression have their own set of rules different to that of else where in the body, so helping ensure consistent levels. Thyroid hormones also play a large part in the release of neurotransmitters (brain chemicals) that govern our emotions, sleep patterns, etc. Imbalances in these can also influence how our thyroid hormones work.

Brain fog is a common symptom on the forum due to inadequate thyroid hormone levels or sufficient levels but ineffective workings due to other factors, for example an iron deficiency. The forum also sees large numbers of anxiety, dizziness, vertigo, feeling too cold/hot, numbness, ear issues (hearing, aching, feelings of fullness) and sight (double vision, eyeball pressure), low mood/depression, the list is endless.

My own vertigo started upon medicating levothyroxine & went on for four years until I added T3 meds and addressed all the health issues that had arisen as a result of the inadequate/ineffective thyroid hormone meds. It can tricky unpicking what has caused what and which to address first.

The meds we take don’t just diffuse into cells but must be transported into them. Due to the complexities of thyroid hormone synthesis, transport & regulation it is difficult to determine cellular levels so we have to be guided by blood tests and symptoms. The forums Fab-Four considered essential for good thyroid hormone workings are adequate; iron, Vit B12, folate & Vit D but in reality we also need zinc, selenium, magnesium, Vit A and protein to make it all work.

I am sorry to hear you have the added complication of epilepsy. I don’t have experience of this or know if the meds would have negative interactions with Levothyroxine but other members might be able to comment. Also post any recent labs complete with ranges (numbers in brackets) for further feedback.

.

‘The TH requirement for development is most apparent in the central nervous system (CNS) where severe TH deficiency in fetal and neonatal periods results in cretinism, a disease characterized by mental retardation, deafness, and ataxia; these consequences are irreversible if not treated soon after birth. Additionally, untreated hypothyroidism in the adult is associated with severe intellectual defects, abnormal balance

and defects in fine motor skills, spasticity, and deafness.’

frontiersin.org/articles/10...

[Carlita81 in reply to radd]

Thank you for the info. That's weird. When I take levo I have no symptoms. If I forget it takes about a couple hours before symptoms hit. It starts with double vision, then imbalance, then I can't step an inch before falling. I'm not sure why when EMS picks me up I go flailing and throw up though.

My other confusion is why wouldn't the endocrinologist know about these symptoms?

Even the ER couldn't figure the connection. I mean it's good it's controlled but still.

[radd in reply to Carlita81]

'My other confusion is why wouldn't the endocrinologist know about these symptoms?'

Because many endos are specialist in diabetes. That doesn't stop them taking thyroid patients but means they aren't as clued up on the intricacies, ie anything outside of normal..

[Batty1]

I have Meinere’s disease and when it attacks it can cause your current issues I walk round stumbling like Im drunk as the world spins out of control and I also suffer with migraines that cause double vision and actual temporary blindness in one eye and both happen without the headache at times and never suffered with migraines until I had thyroid problems…. Awful feeling.