Advice for my elderly mother: I would like some... - Thyroid UK

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Advice for my elderly mother

Clara62 profile image
26 Replies

I would like some advice please, it concerns my mother of almost 91 years.

In the last years the results of her thyroid gland have been these:

FT3 = 2,12 (2.00 - 4.40)

FT4 = 1,22 (0.90 -1,70)

THS = 5,180 (0.270 - 4, 200)

As my mother has several medical conditions including chronic kidney failure ( mono kidney) hepatitis c, chronic liver disease, high blood pressure, etc the doctor says she doesn't want to give her thyroid hormone because she already takes too many drugs.

I, on the other hand, think that a little thyroid hormone could be good for her and that perhaps many pathologies have come to her precisely because she does not have good thyroid values.

But it's hard to go against a doctor's decisions.

The only thing I've been able to change is for her to quit folic acid after 30 years and take methyl folate. (I have a heterozygous MTHFR A 1298c, mutation, I think my mother too). In fact, since she quit folic acid she started to feel a little better. Fortunately, my mother has a good spirit despite everything and still enjoys her life.

Thank you.

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Clara62
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26 Replies
Anthea55 profile image
Anthea55

My immediate reaction is to your GPs comment that she "doesn't want to give her thyroid hormone because she already takes too many drugs".

Thyroid hormone is not a drug - it is a replacement for the hormones which your body can't make any more. Grrrr - one of the many things doctors don't know. Give your mother the hormone replacement and she may need less of the other drugs.

Your mother may be 90 but that TSH is far too high.

Keep fighting!

Clara62 profile image
Clara62 in reply to Anthea55

Thank you Anthea55🙏

jimh111 profile image
jimh111

It’s difficult to know what is best, it would depend on whether she has signs and symptoms of hypothyroidism.

TSH is higher in the elderly and indeed people with a mildly higher TSH live longer than those with a lower TSH. On the other hand her fT3 and fT4 are a little low. I would be tempted to go by her signs and symptoms and if she is given levothyroxine to start very slowly.

Clara62 profile image
Clara62 in reply to jimh111

I didn’t know that people with a mildly higher TSH live longer. My TSH has been suppressed for years now due to thyroid hormones replacement:(

jimh111 profile image
jimh111 in reply to Clara62

A few studies show this including this one journals.plos.org/plosmedic... .

Clara62 profile image
Clara62 in reply to jimh111

Thank you jimh111. This open a whole new vision for me. I always thought that a suppressed TSH was not to worry about. There are different opinions even here in HealthUnlocked. Anyway, I will try to lower a bit my medication and see if `i can put back in range my TSH.

TSH110 profile image
TSH110 in reply to Clara62

Don't dose by TSH alone getting your free T3 optimal is a much better parameter for health.

TSH110 profile image
TSH110 in reply to jimh111

But in this very interesting study the TSH was only 0.8 higher in the long lived and I don’t think anyone’s was over 5:

ncbi.nlm.nih.gov/pmc/articl...

Clara62 profile image
Clara62 in reply to TSH110

Thank you TSH110. Very interesting. The problem with me is that I have been having a TSH at 0,001 for the last several years due to the use of liothyronine, before when I used only thyroxine it was OK. I seem to feel better with T3 but I could lower it a bit

jimh111 profile image
jimh111 in reply to TSH110

I will study this when I have time. It's interesting because it is a rare study that measures TSH bioactivity.

It's worth pointing out that for younger people a TSH within the reference interval is the best place to be and a mildly elevated TSH is much worse than a mildly low TSH. Doctors never point out the risks associated with so called "subclinical hypothyroidism".

TSH110 profile image
TSH110 in reply to Clara62

Only statistically speaking it might not be so in every case. For me quality of life matters more than quantity

Lulu2607 profile image
Lulu2607

Hi Clara. I'm not as expert as some on here but if your mother was already on levothyroxine then that TSH would be too high. If she isn't though, as you suggest, then my understanding is that most Drs adopt a wait and see approach when TSH is mildly elevated, and retest regularly to check. (If I'm interpreting your results correctly) I agree with others though on the point that symptoms should be taken into account and that some of her other conditions might improve if she did take levo. I don't believe what the Dr said about too many drugs is correct in this case. If you need levo it should not be denied you because of other medications you are taking. That argument doesn't apply.

Clara62 profile image
Clara62 in reply to Lulu2607

Thank you Lulu2607. She never took levothyroxine, yes, symptoms should be taken into account but in her case is very difficult to understand what causes them having so many conditions. I would guess that low-dose thyroxine should do a little good...

Clara62 profile image
Clara62 in reply to Lulu2607

...in her case is very difficult to understand what causes them having so many conditions. I would guess that low-dose thyroxine should do a little good...

SlowDragon profile image
SlowDragonAdministrator

Have you had her vitamin D, B12 and ferritin levels tested?

Please add actual results and ranges if you have them

What about thyroid antibodies?

Low GFR (kidneys) linked to low Ft3

Was thyroid test done early morning, ideally before 9am

Clara62 profile image
Clara62 in reply to SlowDragon

Thank you SlowDragon,

Her ferritin is 183,50 ( 10-299).They didn't test B12 :(

Vit D was low but she started to take it daily a few months ago, so we need to retest.

No Thyroid antibodies so probably no Hashimoto...

Yes, test done before 9 am.

It's difficult to decide if she could have a little improvement with a bit of thyroxine. I don't think that it would do her any harm?

SlowDragon profile image
SlowDragonAdministrator in reply to Clara62

Suggest you get full thyroid and vitamin testing done via Medichecks or Blue horizon before considering next step

This includes vitamin D, B12 and folate and BOTH thyroid antibodies

Improving low vitamin levels can improve thyroid levels

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test

bluehorizonbloodtests.co.uk...

Clara62 profile image
Clara62 in reply to SlowDragon

Thank you SlowDragon 🙏🙏

humanbean profile image
humanbean

You might find this link of interest, particularly the table underneath the graph.

healthunlocked.com/thyroidu...

.

Is your mother being treated for her hepatitis C? There may be reasons why she hasn't been treated (her age perhaps?) but I don't know anything about the condition or the treatment (other than the fact that treatment does exist).

nhs.uk/conditions/hepatitis...

You mention "chronic liver disease". Is the Hepatitis C the "only" liver disease she has? Because if that is cured then her liver disease might disappear.

.

I would suggest that your mother's vitamin B12 is tested if it hasn't been so far. If it turns out to be low then she would need to be treated with methylcobalamin. Note that in people with liver disease that the liver's store of vitamin B12 may sometimes leak out into the bloodstream making levels in the blood appear high. I wouldn't know how to tell the difference between good/high levels of B12 or leaking levels of B12.

You might find this paper of interest:

academic.oup.com/qjmed/arti...

The best test of B12 would be an Active B12 test rather than a Serum B12 test. However, the NHS doesn't test Active B12 as far as I know. You would need to do a private test of the kind that Medichecks or Blue Horizon does.

medichecks.com/products/adv...

bluehorizonbloodtests.co.uk...

For discount codes (if available) see this link :

thyroiduk.org/help-and-supp...

.

SeasideSusie profile image
SeasideSusieRemembering in reply to humanbean

I did the Blue Horizon Premium Gold test in October and they were still doing the Total B12 test not the Active B12. I don't know if that has changed since then. Medichecks definitely does Active B12.

Clara62 for your information too.

Clara62 profile image
Clara62 in reply to SeasideSusie

Thank you SeasideSusie, unfortunately my mother does not live in UK, will have to find other ways

humanbean profile image
humanbean in reply to Clara62

You can find some places to order tests in different countries on this link :

stopthethyroidmadness.com/r...

I have no idea if any of the listed places are any good - I've only ever used UK companies.

Clara62 profile image
Clara62 in reply to humanbean

Thank you humanbean 🙏🙏

Clara62 profile image
Clara62 in reply to humanbean

Thank you humanbean. I will go through the links. My mother is being treated recently for hepatitis C , we need to see if it's been successful...

I will ask the doctors to test B!12

Gcart profile image
Gcart

One thing mentioned by others here does not apply to many . My mother , now dead and me as a mother of one son would never describe my symptoms of an illness to offspring . Most I know put on a good face , not wishing to burden them ! It’s close friends from where you might get a true account of their ailments !

Just a thought as you said your mum was good for her age .

Clara62 profile image
Clara62 in reply to Gcart

Thank you Gcart, will keep it in mind.

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