Advise needed. 27yo

[Kiwiskater]

I’m new to all this. I feel very disheartened my TPO has come back at 507, my TSH 5.02 which is lowered from my 5.37 in November and my T4 14.8. I have a huge amount of symptoms and my doctors have said I look to have autoimmune thyroid disease but I’m not at a level to be medicated or to get a referral on the NHS. I’m only 27 so they have been sidestepping even having a thyroid problem even though it runs in my family and now I feel like I’ve just been shoved to the side and they will see me in a years time. Has anyone had a similar experience I’m unsure on what to do next.

[SeasideSusie Remembering]

Kiwiskater

Is your TSH over range? Have you had two over range TSH results? If so then over range TSH plus raised antibodies should give you a diagnosis of autoimmune thyroid disease (Hashimoto's) and you should be started on Levothyroxine.

SlowDragon Have you got the link about this please, it's not one I've saved I'm afraid.

[Kiwiskater in reply to SeasideSusie]

I’ve had two results both over the normal mark (0.27-4.20) my results were 5.37 in November and 5.07 in February. I questioned all this again today as I had a second appointment this afternoon since I wasn’t happy with yesterdays. They said the same thing I’m not high enough to be given medication. They also refused to refer me to a endocrinologist

[SeasideSusie Remembering in reply to Kiwiskater]

SlowDragon does have a link to a flow chart and I think this is where I've seen the information about diagnosing with raised TSH and raised antibodies. Hopefully she'll be around later and can give the link.

SlowDragon

[SlowDragon Administrator in reply to Kiwiskater]

Come back with new post once you get vitamin results

Likely to need supplements to improve

If vitamins are deficient GP should prescribe

If vitamins are low, but within range you will need to supplement

Email Thyroid U.K. for list of recommended thyroid specialist endocrinologist and doctors

Typical first consultation is £250

[e-mail]

Endocrinologist will then instruct GP to prescribe levothyroxine, and aim for dose at high enough level to bring TSH down around 1

[SlowDragon Administrator]

Always test thyroid levels early morning, ideally before 9am to get highest TSH

What time were these tests done

High thyroid antibodies confirms autoimmune thyroid disease also called Hashimoto’s

With two separate test results with TSH over 5 and high thyroid antibodies and symptoms you should be prescribed levothyroxine

See flow chart on top of page 2 here

gp-update.co.uk/Latest-Upda...

ESSENTIAL to test vitamin D, folate, ferritin and B12

Plus coeliac blood test too

Low vitamin levels are EXTREMELY common with Hashimoto’s

Low vitamin levels tend to lower TSH too

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested.

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

Low vitamin levels are extremely common, especially with autoimmune thyroid disease (Hashimoto’s or Ord’s thyroiditis) usually diagnosed by high thyroid antibodies

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis.

Both are autoimmune and generally called Hashimoto’s.

In U.K. medics never call it Hashimoto’s, just autoimmune thyroid disease (and they usually ignore the autoimmune aspect)

Recommended on here that all thyroid blood tests early morning, ideally before 9am

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/

NHS easy postal kit vitamin D test £29 via

vitamindtest.org.uk

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

List of hypothyroid symptoms

thyroiduk.org/if-you-are-un...

[SlowDragon Administrator]

nice.org.uk/guidance/ng20/c...

1.1 Recognition of coeliac disease

1.1.1 Offer serological testing for coeliac disease to:

people with any of the following:

persistent unexplained abdominal or gastrointestinal symptoms

faltering growth

prolonged fatigue

unexpected weight loss

severe or persistent mouth ulcers

unexplained iron, vitamin B12 or folate deficiency

type 1 diabetes, at diagnosis

autoimmune thyroid disease, at diagnosis

irritable bowel syndrome (in adults)

first‑degree relatives of people with coeliac disease.