TEST RESULTS…HELP PLEASE !: I’m thankful in... - Thyroid UK

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TEST RESULTS…HELP PLEASE !

Jollypolly profile image
26 Replies

I’m thankful in advance for comments on this recent blood test …I’m not very well and have had sore throat for 5 weeks…not like me really…

I used to have just numbers of optimal results for tests…seem to have lost them and can’t seem to find all the info…not at all scientifically minded and don’t really understand much of it…and if I do it gets too much to contain in my head…so help please…and THANKYOU very much ! There is one more page of test results but can’t see how to add it on this post so will just make a new one with it on.

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Jollypolly
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26 Replies
SlowDragon profile image
SlowDragonAdministrator

Looking at previous posts you are only on 25mcg levothyroxine…..that’s only half the standard starter dose levothyroxine

GP should increase dose levothyroxine by 25mcg to 50mcg daily

Which brand of levothyroxine are you currently taking?

Bloods should be retested 6-8 weeks after each dose change or brand change in levothyroxine

Likely to need further increase in levothyroxine after next test

Dose is increased slowly upwards in 25mcg steps until TSH is always below 2. Many people when adequately treated will have TSH below one. Most important results are always Ft3 followed by Ft4.

On just levothyroxine……Looking for Ft3 at least 50-60% through range and usually Ft4 a little higher

High cholesterol is linked to being hypothyroid and will reduce as your dose of levothyroxine is increased slowly upwards over coming months

nhs.uk/conditions/statins/c...

If you have an underactive thyroid (hypothyroidism), treatment may be delayed until this problem is treated. This is because having an underactive thyroid can lead to an increased cholesterol level, and treating hypothyroidism may cause your cholesterol level to decrease, without the need for statins. Statins are also more likely to cause muscle damage in people with an underactive thyroid.

Jollypolly profile image
Jollypolly in reply to SlowDragon

Hi..THANKYOU for replying. I’m not “ON” any particular dose of thyroxine..due to so much fluctuation because of adrenal insufficiency etc..and , clearly, low iron…and possibly other things…

However…MY AIM is to trytobe on 50 Levo …

Have had to be off everything g SO MANY TIMES because my body just can’t take any more…I get to about two weeks in and the fast heart rate and palps start and severe anxiety.

Of course, this in turn has brought me very low anyway..,and it’s all a vicious cycle.

After a two week long ans disciplined break from all thyroid, I restarted a couple of weeks ago…

Part of the problem was that last year…latter half…I trimmed down my supps…thought I could manage on a little less..partly to simplify things in my head…and partly reduce expenditure.

Mad big mistake of cutting out adrenal glandular…

Very cross with myself and have recently restarted…. Which hopefully will enable m,e to keep going with the Levo.

I had to stop all t3 end of last year for same reason..I was going into hyper so easily.

Funnily, I have found some things seem to be better, even without it.

All my life I had muscle weakness….which miraculously was cured with tiny amounts of t3..like…2.5 mcg..I seem to have long lasting effects after six or seven years experimenting with different forms of t3…and no seem to be able to be without…having said that…I feel pretty unwell at the moment….

It’s just that y muscles are so much better

The Levo I take is Almus….

Supplements wise…I HAVE been taking the minimum ..as I said…for four or five months…and this has probably been just one thing wrong too many…

Until just a couple of weeks ago was on

B complex…

C

D3

Sea kelp,

Iodine

Omega 7 for dryness eyes etc

Magnesium.

Bio Kult

Have just re ordered the stuff I dropped last year…

B12

Vit E

Multi Vit and minerals

A better probiotic

Also in the last ten days started taking Betaine, Pepsin and bitters

And Slippery Elm

Have got run right down clearly.

Cornish chick suggested my sore throat could be reflux..

I had already suspected this..though no other symptoms…

Had problems ten years ago..felt full and didn’t want to eat..

Had gastroscopy and he said yes…but ing oesophpagus and gave me omeprazole…then I read Sarah Myhill…stopped the tablets and cured it myself wirh liquorice etc…

I have a small swelling in throat plus very angry looking..and it’s sore…

No other symptoms…but it’s adding to anxiety..what’s wrong with it…five or six weeks on…

I’m terrified of another gastroscopy as I was totally traumatised by the last one…plus he was truly nasty to me….so don’t k ow what to do..

Sorry this is long….tried to give you a fuller picture….

THANKYOU for listening to me….

I’m doing all I can to improve my health…and must learn from this not to run myself down again.

SlowDragon profile image
SlowDragonAdministrator in reply to Jollypolly

With Hashimoto’s we should NEVER take iodine or sea kelp.

Levothyroxine contains all the iodine you are likely to need (unless long term vegan)

If you were to ever consider taking iodine or kelp should test iodine levels first

Iodine test

thyroiduk.org/help-and-supp...

If you are want to do an iodine test then a non-loading urine test is said to be the best test. Genova Diagnostics offer this test.

Urine Iodine Test:

Specimen requirements: Urine

Cost: £71.00Order Code: END25

Turnaround time: 5 - 10 days

Iodine is an essential trace element, vital for healthy thyroid function. Adequate levels are required to enable the production of T3 and T4 thyroid hormones, whilst also being required in other areas of health. Deficiencies can lead to impaired heat and energy production, mental function and slow metabolism. Urine iodine is one of the best measures of iodine status. This test is not performed as a loading test, but can be used to establish existing levels or to monitor iodine supplementation.

Jollypolly profile image
Jollypolly in reply to SlowDragon

I never used to take iodine but have taken it for some time now…there is a real debate about it…but Dr P and others say it is vital…a functional doctor I saw two years ago tested me and said I need it…and in fact upped dose from one I took..for a while at least…It’s debated lw, I believe…and I ended up on the side of taking it on trust from bits I’ve read..

SlowDragon profile image
SlowDragonAdministrator in reply to Jollypolly

Multi Vit and minerals

A better probiotic

Also in the last ten days started taking Betaine, Pepsin and bitters

And Slippery Elm

Multivitamins are never recommended on here

Most contain iodine and cheap poorly absorbed ingredients

Just vitamin D and vitamin B complex with folate in to maintain good vitamin D, folate and B12

Unlikely to need Betaine and slippy elm…..one or the other

Jollypolly profile image
Jollypolly in reply to SlowDragon

Yes THANKYOU….I’ve rethought the multi Vit ….and abandoned idea….You don’t mention Vit E…don’t you think we need…

SlowDragon profile image
SlowDragonAdministrator in reply to Jollypolly

I get to about two weeks in and the fast heart rate and palps start and severe anxiety.

Likely low iron/ferritin not helping

You should test cortisol and DHEA before taking anything for adrenals

regeneruslabs.com/products/...

cdn.shopify.com/s/files/1/0...

You may need beta blocker to help tolerate higher dose levothyroxine having been woefully under medicated for long time

You might find my profile info helpful.

Jollypolly profile image
Jollypolly in reply to SlowDragon

I’ve been on adrenal glandulars for some time…I most certainly need them…been tested twice in the past and I’m pitifully low on cortisol …and DHEA …and my symptoms tell me anyway,.Tell me…what is the difference in how you’d treat low iron and low ferritin? I am muddled about these two…

I can’t eat liver any more…used to, but it disgusts me now…I eat an egg a day…and other good food..but clearly not enough.

SlowDragon profile image
SlowDragonAdministrator

Vitamin levels

What vitamin supplements are you currently taking

Looking at results, presumably you are taking vitamin D, B12 and …….possibly vitamin B complex?

Yes iron is low

Look at increasing iron rich foods in diet

Eating iron rich foods like liver or liver pate once a week plus other red meat, pumpkin seeds and dark chocolate, plus daily orange juice or other vitamin C rich drink can help improve iron absorption

List of iron rich foods

dailyiron.net

Links about iron and ferritin

An article that explains why Low ferritin and low thyroid levels are often linked ….and currently your Ft4 and Ft3 are extremely low

preventmiscarriage.com/iron...

irondisorders.org/too-littl...

davidg170.sg-host.com/wp-co...

Great in-depth article on low ferritin

oatext.com/iron-deficiency-...

drhedberg.com/ferritin-hypo...

This is interesting because I have noticed that many patients with Hashimoto’s disease and hypothyroidism, start to feel worse when their ferritin drops below 80 and usually there is hair loss when it drops below 50.

Thyroid disease is as much about optimising vitamins as thyroid hormones

healthunlocked.com/thyroidu...

restartmed.com/hypothyroidi...

Post discussing just how long it can take to raise low ferritin

healthunlocked.com/thyroidu...

Never supplement iron without doing full iron panel test for anaemia first and retest 3-4 times a year if self supplementing. It’s possible to have low ferritin but high iron

Medichecks iron panel test

medichecks.com/products/iro...

Iron and thyroid link

healthunlocked.com/thyroidu...

Posts discussing why important to do full iron panel test

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

Chicken livers if iron is good, but ferritin low

healthunlocked.com/thyroidu...

SlowDragon profile image
SlowDragonAdministrator

Looking at previous posts

You have Hashimoto’s

Have you had coeliac blood test done

Or are you already on strictly gluten free diet

If still eating gluten, GP should be doing coeliac blood test if not been tested

CornishChick profile image
CornishChick

My Mum had a sore throat for weeks. Her GP suggested reflux (possibly silent?), my Mum didn’t think she had ever had reflux. She’s had a course of tablets and it has gone. Maybe worth a try?

Jollypolly profile image
Jollypolly in reply to CornishChick

Thanks for replying….do you know which tablets she had?

CornishChick profile image
CornishChick in reply to Jollypolly

I’m not sure but I can ask her 😊

Jollypolly profile image
Jollypolly in reply to CornishChick

Ok thanks .

CornishChick profile image
CornishChick in reply to Jollypolly

Famotidine. One 40mg tablet at night.

Jollypolly profile image
Jollypolly in reply to CornishChick

Ok interesting ..thanks

Jollypolly profile image
Jollypolly in reply to CornishChick

Thankyou

Imaaan profile image
Imaaan in reply to Jollypolly

I'm not sure you're aware of this but I want to give you a heads up that ppi/h2 blockers will negatively alter your thyroid levels. Same goes with slippery elm because it costs the stomach lining and reduces absorption levels of your meds. Whenever I've used all three in the past I have limited the amount of time that I was on them.

Jollypolly profile image
Jollypolly in reply to Imaaan

THANKYOU very much for this…Now I knew about PPis and indeed avoid them..but didn’t k ow about slippery elm…

It’s recommended if you need a bit of healing of the gut, isn’t it.?

And I think I MAY have Candida…leaky gut or the like…

I could spend a lot of money I don’t really have trying to find out precisely..or take a good guess based on my symptoms…

But thanks for making me aware of this, I very much appreciate…

Is Betaine and Pepsin in this category? I do hope not !

Imaaan profile image
Imaaan in reply to Jollypolly

I never knew either until my bloodwork became more wonky than usual after being on slippery elm/marshmallow root for several weeks. I started doing online research and then realized that it can effect absorption.

My doc suggested a cocktail of supplements that have helped me along the way. Ive found help in zinc carnosine, low dose of dgl, probiotics and digestive enzymes and for 2/3 months I was taking a low dose of ox bile. Also half a glass of goat kefir. I'm on and off with L glutamine. Wish I could ingest bone broth without any side effects because its amazing for the stomach.

Nowadays I reserve the slippery elm/marshmallow root if I have a flare up.

Wishing you well on your health journey.

Jollypolly profile image
Jollypolly in reply to Imaaan

Hi again.what is zinc carnisine? And what does it do? And DGL..do you mean the liquorice? That’s good for the gut isn’t it?

Imaaan profile image
Imaaan in reply to Jollypolly

That type of zinc is just another variation of the zinc supplements that are on the market. I used to use zinc picolinate for some time until I came across a small study that had encouraging results from zinc carnosine. It was beneficial for those struggling with ulcers and reflux so I switched over to zinc carnosine since it was helpful for the stomach. Not sure if it's doing anything for me but the cocktail mix of the supplements has been helpful for me. Dgl is licorice root that has had the blood pressure altering properties removed. My system is sensetive so I've decided to stick to a brand that offers a low dosage of 75mg.

Jollypolly profile image
Jollypolly in reply to Imaaan

Well this is all new to me! It’s odd..but I tried zinc several times…no idea which sort…it just didn’t agree with me…kept me awake even very low dose, so I gave up! But I’ll look into that..I too am sensitive to most things…

I’ve uses DGL once for a while to use INSTEAD of the ppis the doctor gave me…..so I’ll get some again as I feel something is wron.g

Many thanks for your input.

Imaaan profile image
Imaaan in reply to Jollypolly

Another benefit of zinc is that it's good for thyroid health in general. Its important to keep an eye on the zinc/copper ratio because one can upset the balance of the other in the body.

All the best :)

Imaaan profile image
Imaaan in reply to Jollypolly

Is Betaine and Pepsin in this category? I do hope not !

^^^^ Betaine as in HCL betaine? If so, it helps increase acid in the stomach to help digest your food. Your reflux can be due to having too little or too much acid. Either way adding betaine whilst your throat is raw can further possibly aggravate or increase your throat symptoms if its indeed from reflux.

Jollypolly profile image
Jollypolly in reply to Imaaan

Ok Thankyou all best wishes also

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