Results in - call with endo this Friday - Thyroid UK

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Results in - call with endo this Friday

fish_turner profile image
6 Replies

I've got my results back from my bloods in the NHS app but my appointment with my endocrinologist isn't until this Friday. Results in image look like the 10mg of carbimazole I started in July has brought my T4 too low hence why I'm gaining weight week on week despite a good diet and lots of regular exercise. He did say this may happen at my appointment in September, and advised he'd be looking to take me down to 5mg if possible.

Is there anything in particular I should ask the endo on Friday? Anything I need to be aware of? Anything I can do about the steady weight gain?

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SlowDragon profile image
SlowDragonAdministrator

Have you had TSI or Trab antibodies tested to confirm autoimmune hyperthyroid…called Graves diseases

If not these need testing

Also TPO and TG antibodies invade this is actually early stage autoimmune HYPOTHYROID…..called Hashimoto’s. Hashimoto’s frequently starts with transient hyperthyroid results and symptoms before becoming increasingly hypothyroid

Also request coeliac blood test - unless already on strictly gluten free diet

Ultrasound scan of thyroid as well

Essential to test vitamin D, folate, ferritin and B12

What vitamin supplements are you currently taking

fish_turner profile image
fish_turner in reply toSlowDragon

Thanks for the response. I was diagnosed with Graves following first round of tests - I started taking vit D at the start of winter as it always helps me - also taking a probiotic as I’m on antibiotics for my skin (unrelated).

SlowDragon profile image
SlowDragonAdministrator in reply tofish_turner

Skin issues like hives often linked to autoimmune thyroid disease

How much vitamin D are you currently taking

Important to test twice year when supplementing

Iron/ferritin likely to drop when hypothyroid

fish_turner profile image
fish_turner in reply toSlowDragon

I'm taking it for acne (seeing a dermatologist) - had to pay the excess to see the endo through private healthcare (with work, luckily) and figured I might as well!

Taking 2000iu daily, will drop to 1000iu when the sun returns - will ask for iron/ferritin test on fri, thanks

SlowDragon profile image
SlowDragonAdministrator in reply tofish_turner

Is it isotretinoin for acne

hindawi.com/journals/cripe/...

This case describes a patient with positive family history of autoimmune hyperthyroidism and hypothyroidism who developed symptoms of autoimmune hyperthyroidism after completing a course of isotretinoin for cystic acne.

Further studies should be done to determine the extent to which isotretinoin acts as an environmental trigger to autoimmune thyroiditis. Until then, clinicians should be more cautious when prescribing isotretinoin to patients with a known family history of autoimmune disease.

pubmed.ncbi.nlm.nih.gov/272...

Patients treated with isotretinoin should be monitored with thyroid function tests.

endocrine-abstracts.org/ea/...

NHS easy postal kit vitamin D test £29 via

vitamindtest.org.uk

fish_turner profile image
fish_turner

No - but the derm did suggest trying tret if the current treatment plan doesn’t work, so I’ll be sure to read up! Thanks

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